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Did anyone have a nuchal translucency measurement of over 3.5 mm?

  1. MamaMoose

    GOLD / squash / 13464 posts

    I have no advice just sending love and hoping everything is just fine!

  2. LovelyPlum

    eggplant / 11408 posts

    I'm so sorry that you are going through this Sending you positive thoughts

  3. Mrs. Jacks

    blogger / pineapple / 12381 posts

    @swedishfish: you want the cvs in the available window. I say go for it. It was easy and it is definitive. I wasn't as concerned about the low risks of it when I did it because I felt the benefit far outweighed that risk. Make sure they send the FISH and the chromosomes because you'll get the FISH results really fast and then the chromosomes will confirm but take longer

    I think you are making a wise decision and I wish you the best of luck for normal chromosomes.

  4. skibobrown

    pomegranate / 3388 posts

    I had a normal NT but had some worrisome results later on during the anatomy scan. Everything turned out 100% fine upon further testing. I've heard a lot of stories that have turned out this way, and I hope yours does too!

  5. Applesandbananas

    pomegranate / 3845 posts

    Thinking of you

  6. 78h2o

    grapefruit / 4441 posts

    @swedishfish: I am so sorry that you are having to worry about this. It's probably not much comfort, but remember that the risk algorithms are really set up to create more false positives than false negatives... they screen that way to be able to avoid everyone having more costly or invasive tests, but they know there are going to be high number of false positives. They'd rather that than increase the risk of problems falling through the cracks. My understanding is that a good number of abnormal NT results turn out to be just fine. I so so home that will be the case for you. Sending lots and lots of prayers your way.

  7. Ra

    honeydew / 7586 posts

    Oh, sweetie. I'm so sorry you have a another stressor on your plate. Sending lots and lots of love your way!

  8. loopedd

    kiwi / 536 posts

    Sending good thoughts your way

  9. mrsjyw

    GOLD / wonderful apricot / 22646 posts

    hugs and good thoughts your way

  10. kentuckygirl

    pear / 1786 posts

    So sorry Hoping for the best as you wait for more information.

  11. bunnylovesbear

    kiwi / 600 posts

    @swedishfish: If I'm remembering correctly, my doc told me the test had over 98 or 99% accuracy... I'm comfortable with those odds.

  12. travelgirl1

    cantaloupe / 6630 posts

    I have no experience but sending you lots of

  13. momazon

    kiwi / 613 posts

    Thinking of you and hoping for the best. Stay strong. ((Hugs))

  14. ChiCalGoBee

    nectarine / 2028 posts

    @swedishfish: I know insurance is a tricky topic, but I would *HOPE* that your insurance company will take care of it after the fact if you go ahead and do it, especially when you have medical reasons for your doctor requesting it. Ugh, insurance should be the last thing on your mind right now:-(. FWIW, I only had to pay $400-$500 out of pocket. When we had something come up on the anatomy scan, having already done that test saved us a lot of worry and scrambling. It's some of the best money I've ever spent, and I would say that even if I'd had to pay the (gulp) full $2700 out of pocket. SO hoping everyone gets their act together in a timely manner for you. I'll be checking to see what you hear tomorrow. Feel free to PM me if you have questions about MaterniT21, or about the results sheet they send you, which talks about percentages of accuracy for Trisomies 21, 18, and 13 if you want to take a look.

  15. Mrs.Pinecone316

    persimmon / 1316 posts

    Don't know much about this but praying it is like the many other stories I have heard where the baby end up completely healthy! Hoping you get some answers and a good plan tomorrow.

  16. Ree723

    grapefruit / 4819 posts

    I'm sorry, I hope it turns out to be nothing serious. I'll be keeping you in my thoughts

  17. Espion

    pomegranate / 3577 posts

    @swedishfish: Praying for a healthy little bean and that this all is worry over nothing.
    Looking at risk assessment tables, there is an exceptionally high chance that your little baby is totally fine. The nasal bone is another thing they look at in risk assessment. Praying for you, friend

  18. lamariniere

    pineapple / 12566 posts

    Keeping you in my thoughts.

  19. SugarplumsMom

    bananas / 9227 posts

    Hoping for the best!

  20. Adira

    wonderful pomelo / 30692 posts

    I'm so sorry you're going through this. Sending you lots of love.

  21. Cole

    grapefruit / 4649 posts

    I wanted to tell you I am thinking of you and hoping you get positive information soon!

  22. mediagirl

    hostess / wonderful persimmon / 25556 posts

    Just wanted to let you know I'm thinking about you.

  23. littlek

    GOLD / squash / 13576 posts

    Thinking about you!

  24. MrsMccarthy

    honeydew / 7295 posts

    Thinking of you over here too

  25. psw27

    pomelo / 5220 posts

    Thinking of you!

  26. catomd00

    grapefruit / 4418 posts

    Sending positive thoughts your way. Try to remember that a thickened nuchal fold does not automatically mean anything!

  27. fancyfunction

    grapefruit / 4085 posts

    Thinking of you!

  28. QBbride

    pomegranate / 3192 posts

    @swedishfish: thinking of you today!

  29. swedishfish

    GOLD / coconut / 8266 posts

    Update: the genetic counselor didn't really tell us much that we hadn't already researched. The nasal bone was visualized so the risk of Down syndrome goes down slightly. We decided to do the MaterniT21 test now and go ahead with an amnio in a few weeks. I'm going to ask my OB for a blood work prescription to check for an infection. I already had the blood drawn for the MaterniT21 test. We decided to go with the amnio over the CVS because the amnio can test for spina bifida which can go hand in hand with a heart defect.

    I feel like I can't even announce this pregnancy. I'm pretty numb right now.

  30. PawPrints

    pomegranate / 3658 posts

    @swedishfish: So sorry you are going through this. Do you know when the MaterniT21 results should be back?

  31. swedishfish

    GOLD / coconut / 8266 posts

    @PawPrints: the genetic counselor said usually 7-10 days but it could take up to 2 weeks.

  32. MamaMoose

    GOLD / squash / 13464 posts

    @swedishfish: I'm so sorry. The waiting must be so difficult. But at least you have a plan of action and hopefully you'll get some comforting answers sooner rather than later.

  33. Tidybee

    nectarine / 2834 posts

    I'm so sorry that you're going through this.
    I will cross every finger toe and eye that all is okay. It is a really
    Overwhelming and emotional process to go through.

  34. Cole

    grapefruit / 4649 posts

    My fingers are crossed for you. I had the Maternit21 test and it took the full two weeks for results. I hope yours comes back faster but I thought I would let you know that the longer turn around time isn't uncommon.

  35. Pepper

    pomelo / 5820 posts

    @swedishfish: I'm so sorry you're going through this, and that you have to wait that long for some answers. I am hoping and crossing my fingers for everything to be OK.

  36. ChiCalGoBee

    nectarine / 2028 posts

    @swedishfish: Where do you live? I happen to live a few miles from where MaterniT21 was sent (processed in La Jolla, CA), so results were back within a few days. However, I know of other bees who had it take longer just because of distance. Hoping they put a rush on yours.

  37. ShootingStar

    coconut / 8472 posts

    I don't know the exact number, but at my NT scan the neck thickness was "borderline" according to the doctor. I had already had MaterniT21 testing so they were able to rule out any problems. They made it sound like it was a good thing that we'd already had the testing because it would have been concerning. DS turned out totally fine.

    I hope you guys get good answers.

  38. knittylady

    pomegranate / 3212 posts

    I hate that you have to wait so long for answers. Thinking of you

  39. 78h2o

    grapefruit / 4441 posts

    @swedishfish: Thinking good thoughts for you... That's good they were able to see the nasal bone. I'm sure the wait is excruciating... I remember how hard it was for me just waiting for my betas. Maybe you could plan some distracting activities, like the movies or something? Do you have a sitter? Hang in there, mama.

  40. Smurfette

    GOLD / wonderful coconut / 33402 posts

    Hugs!

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