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DS had a febrile seizure from a high fever

  1. Mrsbells

    squash / 13015 posts

    We have experienced these with both kids so now we watch their temperatures with eagle eyes

  2. trixi

    cherry / 119 posts

    @shabang my son had a febrile seizure when he was just over a year old. Scariest night of our lives, as it happened in the motn and we barely noticed the crib creaking repeatedly and an odd noise coming from DS's room. I will never forget my or my husband's terror, or the limp feeling of DS afterwards--plus those moments of heartache of not knowing if he would be okay.

    Our ped said it was scarier for us than him, and he is JUST fine. It just happens when a fever comes on all of a sudden, or drops too quickly.
    Even though he is JUST fine, it is still SO SCARY.

    However, the good news is it's been almost 2 years, and he has not had one since. We are still very cautious with fevers, and layer Tylenol and Motrin as needed when DS is sick, and check on him every few hours in MOTN. We taper off the meds during the day, when it's not naptime--to monitor him closely.

    I am pregnant with our second and will always be cautious when she is sick, and give the layer of Tylenol/Motrin when she's not feeling well.

    The feeling doesn't really go away, but it does subside. I'm sorry you had to experience it, but just remember LO IS OKAY!

  3. Shantuck

    pear / 1503 posts

    This happened to my nephew about a year ago while he was at daycare (hasn’t happened since) and they use those thermometers with the sticker that attaches to the child and alerts you on your iPhone if the temp rises above a certain number. Those might be worth looking into for peace of mind. So sorry you experienced this.

  4. Mama Bird

    nectarine / 2881 posts

    Sometimes these things are just a one-off. DS had one around 18 months and it hasn't happened again, and hopefully won't!

  5. shabang

    apricot / 328 posts

    @Shantuck: I've never heard of that and am looking into it right now.

    Thanks everyone! I'm hopeful we never have a repeat.

  6. Shantuck

    pear / 1503 posts

    @shabang: The one I’m thinking of is the temptraq one but it looks like there is also a feverfrida from the nosefrida people.

  7. autumnleaves

    persimmon / 1499 posts

    @shabang: One of my boys has had 4 febrile seizures and it is so scary. I think knowing that it is not that uncommon helps - the 2 pediatricians that we see both have kids who have had febrile seizures and then I talked with 2 ER doctors recently and 1 had a febrile seizure himself when he was a baby and the other has a child who had one. And also knowing that most children only have 1 or if they have more than 1 they may have a few febrile seizures and then they outgrow it. My son does not take an anti-seizure med. We saw a neurologist but since the seizures are definitely fever related, I decided not to put my son on one. We do start giving him motrin or tylenol when he has a fever over 100 and if it is a high fever we rotate every 3 hours with tylenol and motrin. I told daycare to call me if he has a fever over 100 or if he is fussy with no fever - their policy is to call if 101 but I don't want it to get to that point. Last summer high fevers with ear infections caused his 2 seizures and we ended up getting tubes and avoid ear infections all winter. The seizures he had recently were caused by a fever from a viral throat infection. He has hasn't had HFM yet and I am totally stressed that he is going to get a high fever and seizure with that.

  8. shabang

    apricot / 328 posts

    @autumnleaves: Knowing that its not uncommon does help! I'm glad I posted here. No one in my family had ever heard of it, and although our daycare director and some of the other teachers were familiar, my daughter's current two teachers were not, and they were very concerned.


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