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  1. hellobeeboston

    cantaloupe / 6683 posts

    @catlady: hi! i can feel you on the SLOW pace. We've been in EI for about 5 months now and I can say that there is DEFINITE improvement for sure at this point. It still seems sloooowwww, but when you step back and see the progress, you can see how far they come in a short time. Stick with it. They will help you learn some tricks to do at home, and I bet you'll see some great improvements in the next few months!

  2. bubblegum

    pear / 1629 posts

    @catlady: I hope that your begin to see progress soon. In my state it didn't take that long to get EI started BUT it did take awhile to get speech, which was our main reason for started EI. I feel like I was slowly dying just waiting but now, a year and a half later, he's a beast at so much! And you're LO will be too!

  3. hellobeeboston

    cantaloupe / 6683 posts

    Hey Mamas! I hope you're all doing well... We have our 6 month evaluation coming up in January and they were saying the state is changing this check in to be 100% parent interview instead of testing/interacting with the child... What has been your experience?

    We're actually going to do a combo of both since this is new procedure for MA EI, but I feel like as a parent I'm so biased and want to make sure I'm providing correct answers... On the otherhand, if LO is having an off day when we do the evaluation, that would throw the whole thing off!

    THANKS, Hope you all had a wonderful holiday.

  4. crazydoglady

    kiwi / 549 posts

    How is everyone? I've been wanting to update for a while but it feels so overwhelming. 6 months ago, we started the referral process with the county EI service and it got us nowhere. After months and months, they couldn't match us with a speech therapist (apparently there is a huge shortage here.) I feel so dumb, but I had no idea you could just use your insurance...it's just that everyone kept pointing me to the same facility so I didn't know. To think, we lost 6 months of therapy. DS is now 2.5 and we started (thank the Lord, this was hard to secure also) weekly speech therapy. They tested him and said that he is at a 1% receptive and 3% expressive. So, basically, 97-99% of kids his age are more advanced. They did say that this likely a low estimate because he seemed to be refusing to speak which is his personality. He's very stubborn. I just feel...ugh...like how can we ever get past being 99% behind? I feel defeated.

  5. magnolia

    clementine / 779 posts

    @crazydoglady: that’s horrible that they never matched you with a therapist. Makes me so angry! I live in a big city where there are therapists but the bureaucracy is horribly slow. My son turned 3 and aged out of EI so I have been paying out of pocket for speech therapy and hoping my insurance will reimburse some. The actual providers who accept my insurance are hard to find. We are waiting for preschool evaluations to be done and then we have to find a school that has space for him. Oh the stress. But he’s made huge progress in his speech so I’m very proud of him and think it’s worth every cent. We recently started music therapy and are starting OT next week.

    I hope speech is helpful for your little one!

  6. crazydoglady

    kiwi / 549 posts

    @magnolia: Thank you! We were supposed to start with speech therapy in October but it never happened. So frustrating. We really like our new speech therapist and it's free once we meet our pretty low family deductible.
    I'm glad to hear your LO is thriving!

  7. arosebyany

    clementine / 945 posts

    @crazydoglady: heyyyy! So glad you revived this thread. It's awesome you've made some progress and he's getting his services. I pretty much had the same experience with EI where I am also. The case manager pretty well told me they didn't have the services to support DS and it would be better if we just went private . Well we did go private and DS has been in speech for almost 3 months now. I don't know percent wise where they placed him, just that at 2yrs old he's at the 9 month old level. He's also currently still not verbal. He seems to be starting to understand slightly more and he'll answer to his name about 50 percent of the time now, where before it was zero. He seems to be making progress, it's just very slowwwwww lol.
    @magnolia: I hope your preschool Eval goes perfect!

  8. Boopers

    persimmon / 1465 posts

    @crazydoglady: that is so frustrating, I’m so sorry you had to wait all those extra months for therapy to start.

    DS1 is now 2y9m and has been going to speech therapy for 6 months. I see little progress wins but his speech is still unintelligible most of the time for others. For a long time he was saying “didi” for baby, then started saying “bibi” and last week started saying “baby”. I was so excited I recorded him to save that little progress memory forever!

    He has also started stuttering which I know is totally developmentally normal for his age, but this we noticed during one of his sessions he’s doing some secondary characteristics associated with stuttering. He’s been intensely blinking his eyes, pulling his head back and up and grimacing while he’s stuttering. His therapist wants to keep a close eye on it and possibly refer us to a neurologist if it continues to be persistent. We mostly notice him doing that if he’s tired or if he’s trying to compete with background noise or talking around him. We still have a few years to see if this stutter is developmental and will go away on its own or if he’ll require therapy for it. She said at this age there isn’t much they do for it therapy wise, but she gave some good tips for us to implement at home.

  9. crazydoglady

    kiwi / 549 posts

    @arosebyany: Isn't it awful? I was so upset with EI that I asked, "if you don't match children with services, then what do you actually do?" I was so upset. So, one speech therapist called us and asked if we could do morning appt and I said we needed pm so she said she would tell our caseworker. And apparently that was our ONLY chance with EI. No one told me that (Sorry if this is repeat...)
    I'm so glad your little guy is finally getting services and is making progress. 💕

  10. crazydoglady

    kiwi / 549 posts

    @Boopers: I'm so glad you were able to record him! I hope the stuttering thing resolves itself, but I know it can be totally normal.

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