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  1. hellobeeboston

    cantaloupe / 6771 posts

    @catlady: hi! i can feel you on the SLOW pace. We've been in EI for about 5 months now and I can say that there is DEFINITE improvement for sure at this point. It still seems sloooowwww, but when you step back and see the progress, you can see how far they come in a short time. Stick with it. They will help you learn some tricks to do at home, and I bet you'll see some great improvements in the next few months!

  2. bubblegum

    pear / 1689 posts

    @catlady: I hope that your begin to see progress soon. In my state it didn't take that long to get EI started BUT it did take awhile to get speech, which was our main reason for started EI. I feel like I was slowly dying just waiting but now, a year and a half later, he's a beast at so much! And you're LO will be too!

  3. hellobeeboston

    cantaloupe / 6771 posts

    Hey Mamas! I hope you're all doing well... We have our 6 month evaluation coming up in January and they were saying the state is changing this check in to be 100% parent interview instead of testing/interacting with the child... What has been your experience?

    We're actually going to do a combo of both since this is new procedure for MA EI, but I feel like as a parent I'm so biased and want to make sure I'm providing correct answers... On the otherhand, if LO is having an off day when we do the evaluation, that would throw the whole thing off!

    THANKS, Hope you all had a wonderful holiday.

  4. crazydoglady

    clementine / 873 posts

    How is everyone? I've been wanting to update for a while but it feels so overwhelming. 6 months ago, we started the referral process with the county EI service and it got us nowhere. After months and months, they couldn't match us with a speech therapist (apparently there is a huge shortage here.) I feel so dumb, but I had no idea you could just use your insurance...it's just that everyone kept pointing me to the same facility so I didn't know. To think, we lost 6 months of therapy. DS is now 2.5 and we started (thank the Lord, this was hard to secure also) weekly speech therapy. They tested him and said that he is at a 1% receptive and 3% expressive. So, basically, 97-99% of kids his age are more advanced. They did say that this likely a low estimate because he seemed to be refusing to speak which is his personality. He's very stubborn. I just feel...ugh...like how can we ever get past being 99% behind? I feel defeated.

  5. magnolia

    clementine / 792 posts

    @crazydoglady: that’s horrible that they never matched you with a therapist. Makes me so angry! I live in a big city where there are therapists but the bureaucracy is horribly slow. My son turned 3 and aged out of EI so I have been paying out of pocket for speech therapy and hoping my insurance will reimburse some. The actual providers who accept my insurance are hard to find. We are waiting for preschool evaluations to be done and then we have to find a school that has space for him. Oh the stress. But he’s made huge progress in his speech so I’m very proud of him and think it’s worth every cent. We recently started music therapy and are starting OT next week.

    I hope speech is helpful for your little one!

  6. crazydoglady

    clementine / 873 posts

    @magnolia: Thank you! We were supposed to start with speech therapy in October but it never happened. So frustrating. We really like our new speech therapist and it's free once we meet our pretty low family deductible.
    I'm glad to hear your LO is thriving!

  7. arosebyany

    clementine / 949 posts

    @crazydoglady: heyyyy! So glad you revived this thread. It's awesome you've made some progress and he's getting his services. I pretty much had the same experience with EI where I am also. The case manager pretty well told me they didn't have the services to support DS and it would be better if we just went private . Well we did go private and DS has been in speech for almost 3 months now. I don't know percent wise where they placed him, just that at 2yrs old he's at the 9 month old level. He's also currently still not verbal. He seems to be starting to understand slightly more and he'll answer to his name about 50 percent of the time now, where before it was zero. He seems to be making progress, it's just very slowwwwww lol.
    @magnolia: I hope your preschool Eval goes perfect!

  8. Boopers

    persimmon / 1496 posts

    @crazydoglady: that is so frustrating, I’m so sorry you had to wait all those extra months for therapy to start.

    DS1 is now 2y9m and has been going to speech therapy for 6 months. I see little progress wins but his speech is still unintelligible most of the time for others. For a long time he was saying “didi” for baby, then started saying “bibi” and last week started saying “baby”. I was so excited I recorded him to save that little progress memory forever!

    He has also started stuttering which I know is totally developmentally normal for his age, but this we noticed during one of his sessions he’s doing some secondary characteristics associated with stuttering. He’s been intensely blinking his eyes, pulling his head back and up and grimacing while he’s stuttering. His therapist wants to keep a close eye on it and possibly refer us to a neurologist if it continues to be persistent. We mostly notice him doing that if he’s tired or if he’s trying to compete with background noise or talking around him. We still have a few years to see if this stutter is developmental and will go away on its own or if he’ll require therapy for it. She said at this age there isn’t much they do for it therapy wise, but she gave some good tips for us to implement at home.

  9. crazydoglady

    clementine / 873 posts

    @arosebyany: Isn't it awful? I was so upset with EI that I asked, "if you don't match children with services, then what do you actually do?" I was so upset. So, one speech therapist called us and asked if we could do morning appt and I said we needed pm so she said she would tell our caseworker. And apparently that was our ONLY chance with EI. No one told me that (Sorry if this is repeat...)
    I'm so glad your little guy is finally getting services and is making progress. 💕

  10. crazydoglady

    clementine / 873 posts

    @Boopers: I'm so glad you were able to record him! I hope the stuttering thing resolves itself, but I know it can be totally normal.

  11. hellobeeboston

    cantaloupe / 6771 posts

    @crazydoglady: @Boopers: @arosebyany: @magnolia:

    Hey Mamas.... how are your little ones doing?!?! Any progress updates to report?

  12. Boopers

    persimmon / 1496 posts

    @hellobeeboston: we are seeing some progress. More people say that they can understand him, but he still has a lot of progress to make with his articulation and fluency. We are pretty certain that the stuttering that he developed in December is a true stutter. We have a follow up with his neurologist in 2 weeks and I think at that point we are moving forward with an MRI to see if there are any underlying neurological causes for the stutter.

    He is still receiving private therapy 2x a week and recently qualified through our school district to receive additional therapy 2x a week starting in August so I’m so happy that he will be getting a lot of support.

    We had his 3 year well visit last week and they administered a hearing screening. He failed both ears 😫 Luckily, we already had an ENT appt scheduled for the following Monday to check his tonsils and adenoids to see if they were contributing to his speech issues. So while we were at the ENT, an audiologist gave him a full hearing screening which he failed. He has mild hearing loss in one ear and mild to moderate hearing loss in the other ear. The ENT said that it looks to be temporary due to excess fluid in his ears. He said that he wants us to give him an antihistamine for 6 weeks to see if it helps drain the fluid. If he still has fluid in his ears at his followup next month, then we are going to have tubes put in to help drain the fluid. He wasn’t concerned about his tonsils, but said his adenoids might be an issue, so we are also checking those again at his followup.

    I feel like we are getting closer to figuring out underlying causes for his articulation and fluency issues, but it’s a lot to do before we get answers!

  13. catlady

    grapefruit / 4972 posts

    @hellobeeboston: I just looked at my last post on this thread, which was right after our very first EI session. D is actually coming up on his 6th month assessment this week and I'm excited and interested to see how he will do.

    We are in EI for feeding delays and we also see a feeding specialist at a hospital once per month. When we started, he was almost 12 months old and had never attempted to put food in his mouth, he refused to allow us to feed him, and if he did somehow get food in his mouth, he gagged and spit it out.

    There was literally no progress at the beginning but we had a couple turning points a few months in when he finally realized that there were foods that he liked and also that he could feed himself. Since then we've had slow but steady progress. He is now 17 months and his breakfast this morning was mushed up bananas (which he fed himself using a spoon), a green smoothie (which he drank using a straw), a small soft muffin, and some graham crackers. He eats so much every day now and I'm so proud of him.

    He's still very far behind his peers in terms of skills like chewing correctly, and he has a long way to go before he will be able to handle "typical" foods for his age (for ex. EI has advised us that he shouldn't even eat cheerios yet). However, he is like a totally different kid than he was only 6 months ago and I am really hopeful that he will fully catch up before he ages out of EI or maybe even earlier.

  14. hellobeeboston

    cantaloupe / 6771 posts

    @Boopers: Hey there - wow, a lot going on for you guys! Hopefully the tubes clear up the issue of the fluid. Does he get a lot of ear infections? My nephew did and also failed a hearing test, but then after the tubes went in he passed! It has also helped his speech... Also, that's great about the extra support.. fingers crossed for you!

    @catlady: great news about the improvements! it's excellent that you're seeing progression. Hope the 6 month eval goes well!!

  15. bubblegum

    pear / 1689 posts

    I am so happy to see this thread still going strong!! I hope everyone is having a positive experience with their EI process. DS has aged out of the younger children program over a year ago and at the end of the month would have made it to a year in his new program. The explosion of language has been amazing! I hope everyone else is having just as a positive experience as well.

  16. crazydoglady

    clementine / 873 posts

    @hellobeeboston: Thanks for bumping! I have been meaning to update for a while.

    DS is doing GREAT in speech therapy. Our speech therapist doesn't think that he has apraxia or any underlying cause for his speech delay. She said, "I think this is just how he learns language." She is amazed by his cognitive reasoning which is totally awesome when you are so concerned about your kid's delays. I am trying to think of specific examples, but he has developed so many words. We can actually talk to him (though it's very short answers.) He can recite the entire book Brown Bear (we have to say each word first) but in December, he wouldn't repeat ANYTHING after us. I asked what he wanted to read last night and he said, "Brown Bear." He has started putting words together. He fronts his sounds so g sounds like d and k sounds like t, but he is progressing and he is trying. He still babbles and "swallows" his words, but it's lessening. Sometimes I get sad when I see how advanced his peers are in speech (he's nearly 3,) but I also need to respect that this is where he is and it's about progress, not perfection. To say I am proud of him is an understatement. I feel like I am gushing and am totally cool with that.

  17. crazydoglady

    clementine / 873 posts

    @bubblegum: @hellobeeboston: @catlady: @Boopers: I am loving reading all these progress stories!! It's so encouraging and makes you feel good about all the effort, time, and heart this takes.

  18. tlynne

    apricot / 308 posts

    DS2 is finally making some progress in speech! He is really trying to use words more often now, though I am often the only one who understands without context clues, lol. He is also coming up with some random sentences (out of the blue), but rarely repeats them : \. It looks like we will be dropping OT in a few more sessions, though, as he is catching up on age-appropriate skills :). He just tested with the local school system to see if he qualifies for any school based services, as he ages out of early intervention soon.

  19. yellowbeach

    kiwi / 505 posts

    I want to follow this board but just don’t have the energy in me to type our whole EI story out tonight. Thanks for creating the thread though.

  20. hellobeeboston

    cantaloupe / 6771 posts

    @crazydoglady: Awesome update! Yeah, it's hard to compare, but its great that you're just looking at the incredible progress made in a short amount of time And the good news is getting these interventions early will totally catch him up in the long term.

    @tlynne: good update! We're aging out of EI this fall, and so they've contact the preschool to see if he will qualify for services through them at that point. So far, I haven't heard anything from them... We'll see. He would need to qualify in TWO areas to be able to attend. His speech is really catching up, but he's probably still behind. And his other area of concern (social) is VASTLY improved and (I think) not even an issue anymore, so we'll see.....

  21. magnolia

    clementine / 792 posts

    @hellobeeboston: thanks for reviving this thread! It’s good to read everyone’s updates

    My son is doing pretty well. He has aged out of EI and is attending a preschool where he receives speech and OT. We’re still doing some private pay therapy as well. His social skills have really bloomed, he has several close friends who he knows by name and asks to play with. His speech is really expanded too and I feel like. I have learned a lot through a few good books about the strengths of his particular diagnosis and functional level. So I have a new perspective on everything that doesn’t feel quite so negative. I am feeling daunted already about applying to kindergarten next year but trying to also take it one day at a time. I realized how nice it was to have the EI providers at home so I could reinforce what they were working on but I try to communicate with his providers at school and am trying hard to keep him engaged as much as possible when I am home with him after work. He loves music and singing so we are using a lot of songs to facilitate communication especially when he is frustrated or stuck on something. Also we are getting much closer to being toilet trained which is a big concerns of mine for him to be in a gen ed kindergarten program.

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