wanna commiserate?
You may have see in some of my other posts that my LO has chronic respiratory issues. In the last year we have been at the ER 6 times, urgent care a couple more times. the regular Dr's office too many times to count and we just got outta a week long hospital stay. We have been at the hospital 4 time since Thanksgiving. Ugh.
When she is not sick she is pretty healthy, lol. But she gets sick suddenly (think asthma attack) usually at night, which means we spend a lot of regular nights just checking her breathing or nursing her through a minor illness in hopes it doesn't turn major.

Here are the things that are hard right now:
*Feeling tired and lonely and a little bit cheated out of the 'typical' parenting experience
*The stress of chronically missing work (both husband and I). People are nice at first but eventually they just need me to show up. And we need the money.
*Constantly having to evaluate her health and try to make the right choice regarding socializing, daycare, activity levels, etc.
*Always being behind at work and home because of health crises putting everything else on the back burner.
* Making medication decisions for her little, vulnerable body
* Feeling like life outside of her medical care is more than I can handle

I have been in denial for a while and I am just now accepting that this is how things are and that we have to start making concessions instead of flying by the seat of our pants.

any other bees struggling with this stuff?