DS wakes up shrieking from naps sometimes from spit up in his throat and it just breaks my heart!! 
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Is he on Zantac/Prilosec? Are you on an elimination diet or using a hypoallergenic formula?
My LO had some pretty rough spit up issues due to food intolerance. We were able to solve the issues by me going on a super strict diet (no dairy, soy, wheat, eggs, fish, or nuts), exclusively breastfeeding her, and having her sleep at an incline (rock n play first, then inclined mattress in her crib). She still spit up, but wasn't in pain, and we didn't have to use medicine.
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@MamaMoose: Not yet. We need 2 more stool samples to rule out Dairy. He only goes once a day though so we probably won't know anything until Monday. I read a comment of yours about your Ped not giving meds if they are gaining. Im assuming that is what our Ped will say as well since DS is gaining and growing very well (10 weeks old and has gained over 4 lbs and 4 inches since birth.) Im hoping we wont need meds. If the stool sample is negative for blood, we will try a sensitive formula first. If that doesn't work...we may try a hypoallergenic formula. We tried to BF, but my supply never increased!
We tried everything for many weeks, ugh. He is sleeping at an incline now, and we brought the RnP back out just in case.
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@citymouse: I would think your ped would do something if the reflux is painful and it's not just a simple spit up. I'd demand meds! The acid can really hurt his esophagus if it goes on too long.
*hugs*
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@citymouse: My ped's rule was if baby is gaining and not miserable, no meds. But if your LO really seems to be in pain all the time that definitely needs to be adressed. My LO was a pretty happy baby despite her issues. And just for the record, despite multiple stool sample tests my LO NEVER showed blood in her stool, just tons of mucus, but she definitely had food intolerances and eliminating all the offending foods from my diet made a huge difference in our lives. So I wouldn't necessarily go with the assumption that no blood = no allergy.
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We had such a rough time!
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@MamaMoose: What constitutes pain all the time? He definitely has pain during naps when he spits up, he sometimes will refuse the bottle and cry/arch back, but during the day he spits up and is fine usually. He in general is a pretty happy baby. Doesn't cry a lot. Its just so hard to know what is normal and what is not!
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@Greentea: Boo! Is it getting better as they age??
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@citymouse: If he's only fussing really when eating or having a spit up incident then I would not jump to meds yet. I would try a hypoallergenic formula like nutramigen or allimentum.
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@citymouse: I think meds would make such a difference! N is on Axid right now and it has completely changed him. Prior to his second week on Axid, he would cry nonstop if he wasn't eating or sleeping because he'd be in such pain. He still spits up but the volume is less and he doesn't mind it as much. He doesn't cry as much any more either and just generally seems happier!
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My boys never had reflux, but my oldest did spit up way more than his little brother as a newborn. I agree that even if you can't see blood in the stool it doesn't mean it's not in there b/c my oldest tested positive for blood even when I stopped seeing it. He did, however, test negative for both blood and skin prick test for dairy and soy, but yet when I eliminated both from my diet his eczema got significantly better. With my second, he tested for peanut and dog allergies at 12 weeks old. Both had crazy eczema within the first three months. Hope they figure it out soon so your LO can feel better soon.
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Meds would make a difference but if it is a food intolerance they mask the issue. My son gained weight wonderfully until around 4 month and by 6 months was failure to thrive. That was with Prilosec and an elimination diet. Are you absolutely against changing the formula? Are you already on the most sensetive over the counter formula? If you aren't I think nutragimin (or the similar equivalent) would be a good thing to try.
Once we stopped dairy and soy for a month he became much happier. Now we have an extreme case of a kid who screamed for 12-15 hours straight. Also if it is a dairy issue, the dtap (pertussis) vaccine has dairy in it. I wish I had known because the first shots where the only ones we had an issue with.
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@brownie: Really??? (about the DTaP vaccine having dairy) My son is EXTREMELY allergic to dairy and he's had all 4 of these shots without any issue...
ETA: I wonder if this means he could have dairy in baked goods, we just have to avoid the fresh stuff like milk, yogurt, cheese...
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@citymouse: Our boys ended up on meds even though they were gaining weight because they were crying and clearly in pain from the reflux during feedings. They were "happy" babies over all, but had some really rough moments/days until their meds were perfected. Honestly, based on what you described, I would talk to your ped about trying meds. The arching the back & crying is a big warning sign of pain to me. We started on Zantac, and that was enough for E, but F had to be put on prevacid eventually. For both boys, the meds made a HUGE difference. I didn't realize how much happier they would be when they weren't hurting all the time. We were also able to wean off the meds at 7 months without any problems.
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@Adira: yes my sister with a dairy allergic child just told me about it. And of course hindsight is 20/20 but I could see the reaction of the first shot when he still had some dairy in his system. I never looked or thought about it. And I would do it again because pertussis is so scary.
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@citymouse: we had to switch to a hypoallergenic formula bc LO is very sensitive to lactose. She was having a lot of tummy trouble which cleared up instantly when we switched. But, the hypoallergenic formula is much thinner than her original formula, and in turn, caused some reflux issues. One the advice of her ped, we thickened her bottles with a bit of rice cereal until she adjusted to the thinner consistency. I was not thrilled with putting rice cereal in her bottle, but it was only temporary for us (a few weeks I think) and she was old enough that I wasn't worried about her choking.
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@brownie: I wonder if ALL versions of the vaccine have dairy or just some of them. Maybe the version that was given to Xander doesn't? Or maybe he actually can have casein (or whatever it is that's in the vaccine)?
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@MamaMoose: I think we are going to try Parent's Choice Sensitivity first, just to see if that works. If it doesn't we are totally open, and obviously willing to do whatever it takes, to try a hypoallergenic formula. The cost is just makes my skin crawl!!
@MrsKoala: See, DS doesn't cry all the time. It totally random to when he doesn't feel well, except when he is spitting up at nap time. He cries when he is hungry or overly tired, and then when the spit up wakes him up from a nap, but other than that he is quiet and calm. I don't get it!!
@erwoo: Yeah, we have never seen blood or mucous in his stool, so that's why we are testing it. He has a strong family history of lactose intolerance on his Dad's side. So much so that its a joke within the family..."It a (our last name) thing!"
@brownie: Definitely not against changing formula at all!! We will anyway, depending on his stool sample test results. If its positive, we will immediately start on a hypoallergenic formula. If they are negative, we are still switching to a sensitive one. We are going to try Parent's Choice Sensitivity first. We are not on a sensitive one right now. We currently use Natures One Baby's Only Organic Dairy. So, its just regular but organic. Our Ped told us to wait to change formula until we get test results back so we can be certain. It's so interesting that you mention the shots thing because we feel like thats when all of this started, after his 2 month shots. He was spitting up before, but after he had his shots it seemed like things went downhill pretty fast. He vomited the next two mornings, and then the next 5-7 days would not take full feedings and we were struggling to make sure he was getting at least 20 oz a day. Diarrhea. We went to the Ped twice about it. I looked online but didn't find any similar stories so I thought it was coincidence? We mentioned it at each appt but they never said anything about it?
@Mrs. Blue: Like, how often was it rough? The past two days DS has been what I would call his "normal" for feeding at least. He is taking his bottles pretty well, and only arching/fussing when I burp him. He normally spits up when he burps. He did spit up a lot during one nap, but wasn't crying about it. Just awake.
@Madison43: Yeah, the Ped mentioned adding rice starch to the formula, depending on his stool test results. Im not opposed as long as he feels better! Did the spitting up slow down after you did that?
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@citymouse: she was a silent refluxer, so we've never had a problem with spitting, but yeah - her other symptoms definitely subsided.
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@citymouse: I would demand the meds if he's in pain, even with the sensitive formulathat won't always work. My daughter had esophagus issues due to us letting it go on too long, we ended up needing a couple procedures and lots of tests + more medicine! Even just a little medicine can help calm his stomach!
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@LuLu Mom: Was your LO in pain all the time? With DS its not all the time. I never really know when he is going to be upset/in pain from it. Some bottles he guzzles down and does just fine, others he might refuse and arch. I would say 75% of the time he is fine, 25% he will have some kind of issue: arching, or crying, or refusing bottle, or etc...
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@Adira: I'm not sure. And I know there are many different formulations.
@citymouse: I remember your other thread now. I didn't comment on that one because you wanted organic. And the more hypoallergenic you get the very much less organic you get. So it is a catch 22. My son NEVER had blood in his stool BUT it was very evident after the elimination (and before) that it was a food intolerance.
They can do a test for reflux. They have him drink a thing and then watch (through x-ray) if he has mechanical reflux (the flap isn't working right). My son did not have mechanical reflux and we did put him on reflux meds. I think that for him they did more harm than good. But again looking back he didn't have what they where medicating him for.
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@citymouse: Is his more uncomfortable at a certain time such as in the evening?
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Um, it sucked really really bad until we got her on Zantac. I'm still kicking myself for not getting her on medication earlier. She screamed so much. But it was weird, she'd have one awful day with long crying/screaming jags, then the next day she would be fine. Then the next day, she'd go crazy again. Zantac fixed it all.
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@citymouse: Meds made such a difference for us! If it's bad, the acid can cause problems in the throat...
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@brownie: wow that is eye opening about the vaccine. Now I'm wondering if that's why LO had such a bad reaction.
To OP I can't help much because I ended up on an elimination diet (dairy, soy, chocolate, nuts). If I remember correctly reflux meds only work in a relatively small percentage (maybe 50 percent, i don't remember) that's why doctors may be reluctant to prescribe it.
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@citymouse: No, she actually slept through the night from 5 weeks on. She became increasingly uncomfortable from about 8 weeks on and would cry hard after bottles, no matter what we did. By the time she was 4-5 months we could actually hear the gurgle of acid reflux + she was spitting up constantly, like 4-5 outfit changes a day. At 6 months we decided to see the GI because it turned into projectile vomit which is when we discovered her esophagus issues that were in part due to the extreme reflux she was dealing with. She still vomited with the Prilosec but she wasn't in pain anymore, she would just do it and go back to playing.
I do understand that her case was pretty extreme and very uncommon with the EE but reflux is no joke.
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@citymouse: Well, hopefully it's just a reflux thing and that he can be put on medication to help him feel better. I have friends whose kids were on it as infants but outgrew it eventually. Do I want to ask what your last name is?
Hee hee! JK!!
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It sucked something terrible until we got her on Zantac!
She would wake up screaming, would have hiccups constantly, cough for no 'real' reason. Was just over all fussy.
I told the Pedi all of those things and we immediately switched to Similac Sensitive RTF formula and gave her 1ml of Zantac a day and she was a totally different baby.
Now at 12 months we no longer take the Zantac and she is on regular milk and table food with no issues.
Good luck! -
Update: We had three different stools tested and all 3 came back negative. Good news! Now we are going to try a sensitive formula, and the Ped said we could give a teaspoon of Maalox before feeding to coat his throat. Anyone else done this?
We tried everything for many weeks, ugh. He is sleeping at an incline now, and we brought the RnP back out just in case.
Hee hee! JK!!
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