https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Mon, 18 May 2026 15:26:39 +0000 https://boards.hellobee.com/topic/behcet-diseasesyndrome#post-1854671 Tue, 09 Sep 2014 11:19:36 +0000 Canoli 1854671@https://boards.hellobee.com/ <p>My niece has this and sees a rheumatologist. I don't think she takes any meds regularly but she does have ulcer outbreaks occasionally that she needs treatment for. I can ask her more questions if you would like. </p> https://boards.hellobee.com/topic/behcet-diseasesyndrome#post-1854193 Mon, 08 Sep 2014 23:34:08 +0000 Espion 1854193@https://boards.hellobee.com/ <p>My mother has this, and she put <i>soy sauce</i> in the butter chicken I made her when she visited me. "aka: about as far from Asian/Eurasian/Indian descent you can possibly get"</p> <p>It is an autoimmune disorder and she has to take steroids for flare-ups and get her eyes checked regularly. She also takes a daily immunosuppressant. The person you need to see is a rheumatologist or an immunologist. I would check your insurance, call them up to make sure this is something they have seen and treated before, and get a referral. My mother lives in the middle of nowhere and it took about a year and a half before someone crossed her path who knew what was going on with her. </p> https://boards.hellobee.com/topic/behcet-diseasesyndrome#post-1853323 Mon, 08 Sep 2014 12:09:24 +0000 mrs. eagle 1853323@https://boards.hellobee.com/ <p>My eye has been hurting the past week and worsened over the weekend. My eye doctor said it might be Behcet, I've never heard of it before and he mentioned it being of Asian descent - I don't think I have Asian descent at all in my bloodline - and I'm Native American. I have to have blood work done this week and have a checkup on Friday. My doctor said that this is common for Asians and is known more on the East Coast. Have you been diagnosed/have experiences with this syndrome? Have you heard of it, or know anyone diagnosed with it? How was it treated? I'm trying to be positive yet realistic. Any bees a medical doctor and know anything about it? </p>