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<channel>
<title>Hellobee Boards Tag: high fsh</title>
<link>https://boards.hellobee.com/</link>
<description>Pregnancy, Baby and Parenting blog, by Hellobee</description>
<language>en</language>
<pubDate>Sun, 26 Apr 2026 22:24:11 +0000</pubDate>

<item>
<title>CatchAFallingStar on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2735799</link>
<pubDate>Sun, 14 May 2017 18:05:16 +0000</pubDate>
<dc:creator>CatchAFallingStar</dc:creator>
<guid isPermaLink="false">2735799@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@Ajsmommy:  That's true. Thank you so much!  :heart: &#60;/p&#62;
&#60;p&#62;@Shantuck:  I just bought it on Audible and will be listening. Thank you!
&#60;/p&#62;</description>
</item>
<item>
<title>Shantuck on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2735572</link>
<pubDate>Sat, 13 May 2017 07:26:37 +0000</pubDate>
<dc:creator>Shantuck</dc:creator>
<guid isPermaLink="false">2735572@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@CatchAFallingStar:  in case it helps, I read It Starts With The Egg by Rebecca Fett for pointers on improving egg quality. I took ubiquinol and r lipoic acid in addition to a prenatal vitamins and fish oil while trying to conceive. Also, as mentioned above, I did acupuncture and made dietary changes - all with the goal of improving the quality of tbr eggs I had.
&#60;/p&#62;</description>
</item>
<item>
<title>Ajsmommy on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2735513</link>
<pubDate>Fri, 12 May 2017 18:03:12 +0000</pubDate>
<dc:creator>Ajsmommy</dc:creator>
<guid isPermaLink="false">2735513@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@CatchAFallingStar:  sorry to hear!! But keep your hope.  It's going to be tough and heart wrenching at times but you've got support if you need it!!  There are so many examples that prove the numbers aren't the end all
&#60;/p&#62;</description>
</item>
<item>
<title>Shantuck on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2735484</link>
<pubDate>Fri, 12 May 2017 16:19:06 +0000</pubDate>
<dc:creator>Shantuck</dc:creator>
<guid isPermaLink="false">2735484@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@CatchAFallingStar:  I'm sorry to hear that. I had a few antral follicle counts and the first showed 8 (August) on both ovaries and the second showed 12 (January).  The month of the second count was when I actually conceived naturally. Just know that number can vary from month to month. Try not to lose hope. Just focus on doing what you can to improve egg quality. You only need one good one.
&#60;/p&#62;</description>
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<item>
<title>pachamama on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2735280</link>
<pubDate>Fri, 12 May 2017 10:36:34 +0000</pubDate>
<dc:creator>pachamama</dc:creator>
<guid isPermaLink="false">2735280@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@CatchAFallingStar:  hope is essential! Other things I did, who knows if the efficacy of them but obv placebo effect is important here, is I took DHEA, Vitex, reduced dairy and did acupunture. And lots and lots of positive imagery of my one little egg meeting sperm :-)
&#60;/p&#62;</description>
</item>
<item>
<title>CatchAFallingStar on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2735218</link>
<pubDate>Fri, 12 May 2017 09:25:52 +0000</pubDate>
<dc:creator>CatchAFallingStar</dc:creator>
<guid isPermaLink="false">2735218@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@pachamama:  thank you so much! I still have hope. My RE recommended IUI with injectables. That's what we did 3 years ago to get pregnant with our daughter. So, that's probably what we'll do.
&#60;/p&#62;</description>
</item>
<item>
<title>pachamama on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2735086</link>
<pubDate>Fri, 12 May 2017 04:58:47 +0000</pubDate>
<dc:creator>pachamama</dc:creator>
<guid isPermaLink="false">2735086@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@CatchAFallingStar:  I know it seems impossible but I really want to say that the numbers are not the end all be all.  Mine were terrible, the RE literally would not proceed with treatment (&#34;it would be ineffective&#34;). The month I conceived I was kicked out, so to speak, of the clinic because I had a 33 FSH and I think 1 or 2 follicles. It might just take you longer but you CAN get pregnant. don't lost hope. Its too easy to.
&#60;/p&#62;</description>
</item>
<item>
<title>CatchAFallingStar on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2735060</link>
<pubDate>Fri, 12 May 2017 00:20:56 +0000</pubDate>
<dc:creator>CatchAFallingStar</dc:creator>
<guid isPermaLink="false">2735060@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@Ajsmommy:  @Shantuck:  I ended up having an AMH test and antral follicle count. Both were not good. AMH is .29 and I had 5 total follicles between both ovaries. I guess I'm not surprised, but I had hope that I'd have better numbers.
&#60;/p&#62;</description>
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<item>
<title>pachamama on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2729304</link>
<pubDate>Wed, 26 Apr 2017 10:04:53 +0000</pubDate>
<dc:creator>pachamama</dc:creator>
<guid isPermaLink="false">2729304@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@Shantuck:  That RE sounds like such a smart guy. WOw! I could not agree with him more. I wish I had never gone in for testing. It was borrowing trouble. I bet lots of women would have &#34;bad lab results&#34; but most women never get this stuff tested. It was terrible and looking back, unnecessary, and like you said, my body was just taking a little longer (I was old but not at my fertility prime).&#60;br /&#62;
There is so much more to getting pregnant that AMH and FSH etc.&#60;br /&#62;
I also did acupuncture and I really believe it helped, even if it was placebo. During the acupuncture, I did a lot of positive imagery and meditation which I think helped :-)
&#60;/p&#62;</description>
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<item>
<title>pachamama on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2729296</link>
<pubDate>Wed, 26 Apr 2017 10:02:44 +0000</pubDate>
<dc:creator>pachamama</dc:creator>
<guid isPermaLink="false">2729296@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@Ajsmommy:  oh my, you and I have such similar infertility journeys!&#60;br /&#62;
Here's my story:&#60;br /&#62;
TTC for 9 months, and because I am super type-A and obsessive, decided to to to a RE for testing. In hindsight, this was a terrible idea. My numbers were &#34;awful&#34;: AMH was .3, FSH between 23-33 (!), 2-4 follicles usually, low progesterone. I was 31. Periods were consistent but I was spotting (looking back now, due to stress). We had no male factor, both of us were perfectly healthy. But the RE made things sound very dire.&#60;br /&#62;
He was like OMG YOUR NUMBERS ARE TERRIBLE, we must be super aggressive! IVF asap! 1 failed IUI, one cycle break, then on cycle #13, I went in for my baseline testing and had a 33 FSH. 33!! IUI cycle was cancelled as there was &#34;no chance&#34; I could get pregnant. I was devastated. I gave up, so to speak, and came to terms that I'd never get pregnant.  However we did have more relaxed BD every other day &#34;just in case&#34;. I did also take progesterone suppositories.&#60;br /&#62;
And what do you know, a miracle... I was beyond shocked to see a strong BFP on CD 29. My numbers / &#34;science&#34; essentially said there was absolutely no way I could ever get pregnant and there I was, pregnant, naturally, with a 33 FSH.&#60;br /&#62;
My son is 15 months now. A perfectly fat little ball of love.
&#60;/p&#62;</description>
</item>
<item>
<title>Shantuck on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2729021</link>
<pubDate>Tue, 25 Apr 2017 17:09:14 +0000</pubDate>
<dc:creator>Shantuck</dc:creator>
<guid isPermaLink="false">2729021@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@CatchAFallingStar:  I go back and forth about whether it would have been better to not have known versus knowing and stressing about bad test results.  I think if you are considering doing fertility interventions, then it might save you a lot of time and heartbreak to just know why it isn't happening.  Like several of the others on this board, I also ended up pregnant naturally.  In some ways, knowing about my DOR was helpful because it helped explain my recurrent losses and with that diagnosis, my RE explained that for me it was going to be a perseverance game.  I'm actually seeing a different RE now in connection with a postpartum complication I've been dealing with and in determining my course of treatment, we've discussed whether I intend to have any more children.  When I mentioned to him that I have a DOR and that I struggled to get pregnant so I don't know that more kids are in the cards for me, he said that he doesn't &#34;buy into&#34; the DOR diagnosis and that at my age, it took me an appropriate amount of time to get pregnant and that I shouldn't have needed any interventions (this guy is the chief of reproductive endocrinology at Northwestern Univ.).  If what he is saying is true, then getting those test results caused me a fair amount of unnecessary stress when my body was working just as it should have.  However, it sounds like most REs wouldn't side with him (he claims that it is a diagnosis that REs make just to push IVF on you...).&#60;/p&#62;
&#60;p&#62;As for helping with egg quality, I'm a big believer in acupuncture.  I actually think it really helped me with my success story.
&#60;/p&#62;</description>
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<item>
<title>CatchAFallingStar on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2728672</link>
<pubDate>Tue, 25 Apr 2017 09:01:52 +0000</pubDate>
<dc:creator>CatchAFallingStar</dc:creator>
<guid isPermaLink="false">2728672@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@Ajsmommy:  I think you and I must be the same personality type. I was so fixated on all the numbers our first time around. I was convinced that they meant I would never be a mom. Here I am with a wonderful 27-month-old! I think that at least for now, my gut is saying not to have the tests. I mean, what good would it do? It's not like anything can be done to change those numbers or give me extra/better eggs! Thank you for your kind advice.   :heart:
&#60;/p&#62;</description>
</item>
<item>
<title>Ajsmommy on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2728614</link>
<pubDate>Tue, 25 Apr 2017 07:13:59 +0000</pubDate>
<dc:creator>Ajsmommy</dc:creator>
<guid isPermaLink="false">2728614@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@CatchAFallingStar:  honestly only you can make that call.  I 100 % believe that when dealing with infertility or the possibility of infertility only you can make the right decision.  It's so personal....and emotional.&#60;/p&#62;
&#60;p&#62;If I were to answer you for MYself, of course though knowing now what I know... I'd probably skip all the treatments.  And just not know and try naturally.  I think if we'd started trying when I originally wanted to (about 1 yr earlier) I also would have skipped the treatments I would have felt like we had given it plenty of time.  I feel like bc of our certain circumstances I felt pressured and up against a wall (due to my age).  That's why I think I was so open to do treatment and have all the tests done. &#60;/p&#62;
&#60;p&#62;For me knowing was a double edged sword.  It's all I thought about and I'd fret over it daily!!  It was a very stressful time for me.  I wouldn't wish that on anyone.  But that's my personality.&#60;br /&#62;
..I analyze and over analyze things.  So for me I kinda wish I'd never started...  I wish I'd never known what fsh even is........ But that's bc I know it ended up working out naturally
&#60;/p&#62;</description>
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<title>CatchAFallingStar on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2728602</link>
<pubDate>Tue, 25 Apr 2017 06:31:45 +0000</pubDate>
<dc:creator>CatchAFallingStar</dc:creator>
<guid isPermaLink="false">2728602@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@Ajsmommy:  Thank you for your post. I'm 38 and went through fertility treatments for our daughter at age 35. At the time my FSH was 8.58. I can't remember my AMH, but I think it was normal range. I wanted to ask your advice. We are just starting to try for our 2nd. My RE recommended Day 3 testing. However, I'm afraid that knowing the numbers might not do me any good. It would be good to be informed. But what if, like you, the numbers indicate diminished reserve and lead us down a road of possibly unsuccessful and stressful treatments? Would you recommend skipping the testing and just trying naturally? Or, were you glad that you knew what was going on with your body before you proceeded? Thank you so much and congratulations on your new baby!!
&#60;/p&#62;</description>
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<title>delight on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2714942</link>
<pubDate>Thu, 23 Mar 2017 11:44:31 +0000</pubDate>
<dc:creator>delight</dc:creator>
<guid isPermaLink="false">2714942@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@Kahya:  In December of 2015, my AMH was 0.33 and my FSH was 13. Our specialist, who we were seeing for recurrent losses after our DD, said we would likely have to do IVF or at least fertility drugs to have another successful pregnancy. We found out we were naturally pregnant in February 2016, the week before we were doing IVF orientation. I think we just lucked out but it took some time and losses to get here. I did take progesterone and low dose aspirin for the pregnancy and now have a healthy 5 month old.  Good luck to you.
&#60;/p&#62;</description>
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<title>Kahya on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2714468</link>
<pubDate>Wed, 22 Mar 2017 15:05:50 +0000</pubDate>
<dc:creator>Kahya</dc:creator>
<guid isPermaLink="false">2714468@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@MRSJD: thank you for sharing this. Congratulations for your DD  :happy: it is good that it didn't take you too long before getting pregnant.&#60;/p&#62;
&#60;p&#62;You are right, your AMH is higher than mine, but still low for this age. I really don't understand how the ovarian reserve can be near depletion so early, before 30. I haven't been diagnosed with PCOS like you have, but when i was off BC, i would develop cysts every few months (4-6cm). I get that us developing these cysts can accelerate OR depletion, but still...it couldn't be the sole cause.
&#60;/p&#62;</description>
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<title>mrsjd on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2711924</link>
<pubDate>Fri, 17 Mar 2017 09:28:52 +0000</pubDate>
<dc:creator>mrsjd</dc:creator>
<guid isPermaLink="false">2711924@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@Kahya:   I want to offer you another low AMH success story.  At 27 my AMH was 0.99, so not as low as yours, but still low for my age.  I ended up getting pregnant on the second cycle of Clomid and I have a six month old daughter.  I have PCOS and my husband has no issues.
&#60;/p&#62;</description>
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<title>Kahya on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2711849</link>
<pubDate>Fri, 17 Mar 2017 06:37:17 +0000</pubDate>
<dc:creator>Kahya</dc:creator>
<guid isPermaLink="false">2711849@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@Sweetiepie: Thank you very much for sharing this. I hope this third round will be the lucky one for you (3 usually is a lucky number  :happy: ) and that your story will be a happy one, looking forward to it.&#60;br /&#62;
For me this would be the first pregnancy, but even so, just like you, i don't think i could consider donor eggs (or maybe that's just me talking now, when i still see hope, who knows..). I know that maybe my post didn't have its place here on Secondary infertility, but when i read AJSMOMMY's happy story with an AMH as low as mine, i was really encouraged.&#60;br /&#62;
Now i'm just waiting (so impatiently) to do the test and see if a little miracle happened. If not we will have a few more tests done (sperm analysis &#38;amp; HSG- to see if my tubes work fine) before going the IVF route. &#60;/p&#62;
&#60;p&#62;@Banana330 - i'm so sorry that you went through 3 losses. But you finally got your precious 1st LO and soon you'll hold your second precious LO. Very glad for you!
&#60;/p&#62;</description>
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<title>SweetiePie on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2711162</link>
<pubDate>Wed, 15 Mar 2017 22:15:48 +0000</pubDate>
<dc:creator>SweetiePie</dc:creator>
<guid isPermaLink="false">2711162@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@Kahya:  I have low AMH (.495) as well and all of the other metrics are the same as yours (even the elevated prolactin, I'm on cabergoline). I have DOR, very poor egg quality and I'm currently doing IVF for my 2nd LO. I did it for my first as well but was newly 32 at the time. This time the 35 train hit me hard and it's been way harder this time around - first time took one round. Tested 7 eggs and 1 was normal. I'm on my 3rd round and not only have we had no normal embryos (PGD tested) my response is horrendous. And now I've had recurring premature follicles since January (which is something else pointing to premature ovarian failure). My doctor recommended donor eggs after my last round but I really am not interested since I already have an LO so we're giving it one more shot (literally and figuratively 😂)&#60;/p&#62;
&#60;p&#62;Anyway, I was given odds of 1/8 of my tested embryos to be normal. In 2 rounds we've tested 6 total. I'm hoping that if my body ever gets its act together we can do this third round and get another few to test and that's where our 1/8 will come from. Note that I have a chromosomal abnormality which is why they were able to give me odds - though I do think they may be worse than that considering my decline. &#60;/p&#62;
&#60;p&#62;Wanted to let you know you're not alone and hopefully I'll have a happy story to share with you soon. And if you go the IVF route the IVf thread is full of wonderful ladies.
&#60;/p&#62;</description>
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<title>Banana330 on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2710571</link>
<pubDate>Wed, 15 Mar 2017 08:02:11 +0000</pubDate>
<dc:creator>Banana330</dc:creator>
<guid isPermaLink="false">2710571@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;When trying for our first I got pregnant 3 times in 6 months! fast forward to trying for #2... 5 months and nothing.  We went through the battery of testing and ended up getting pregnant that cycle.  I don't think our timing was any better but for whatever reason that was it.
&#60;/p&#62;</description>
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<item>
<title>Kahya on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2710555</link>
<pubDate>Wed, 15 Mar 2017 07:34:42 +0000</pubDate>
<dc:creator>Kahya</dc:creator>
<guid isPermaLink="false">2710555@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;Hey there. Your story gives me hope. I am 26, just found out last month that i'd be entering menopause earlier (much earlier), with an AMH of 0.03, which is so so low for my age. My FSH level is normal, my AFC was 3-4, my prolactin is slightly elevated at 71 (has been like this for a few years now, it is a macroprolactinemia though), but i am ovulating this month so my fingers are crossed.&#60;br /&#62;
We are actively TTC now but if i don't get pregnant this first time, my doc says i have to try IVF (maybe freeze some eggs...). I'm really afraid of entering menopause before getting pregnant. &#60;/p&#62;
&#60;p&#62;Anyone else with such low AMH levels?  :bummed:
&#60;/p&#62;</description>
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<title>Shantuck on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2590723</link>
<pubDate>Fri, 22 Jul 2016 14:46:44 +0000</pubDate>
<dc:creator>Shantuck</dc:creator>
<guid isPermaLink="false">2590723@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;That's great that you took the time to write that out and provide others with encouragement.  I'm another hopeful DOR success story.  I'm 25 weeks pregnant after being diagnosed with DOR at 35 (AMH of 0.79 and FSH of 12.7).  I tried for 14 months and had two miscarriages in there.  According to the RE I saw, my rate of miscarriage was much higher than the norm due to the DOR but he told me he was confident there were some good eggs left and my job was to stick with it and persevere until we caught one.  I was doing acupuncture and a special diet from my acupuncturist.  I was about to start Clomid the month we conceived but told that I still had hcg from my loss the month before so I figured I'd try one last time on my own and got pregnant that month naturally.  Hoping others find some hope despite similar diagnoses...
&#60;/p&#62;</description>
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<title>Ajsmommy on "AMA, high FSH (12.3), Low AMH(.02), DOR (very long and as detailed as possible)"</title>
<link>https://boards.hellobee.com/topic/ama-high-fsh-123-low-amh02-dor-very-long-and-as-detailed-as-possible#post-2590702</link>
<pubDate>Fri, 22 Jul 2016 14:09:02 +0000</pubDate>
<dc:creator>Ajsmommy</dc:creator>
<guid isPermaLink="false">2590702@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;I'm not sure if this belongs here or under TTC, if it should be moved please do so.&#60;/p&#62;
&#60;p&#62;When we first started trying for #2 we had been delayed by some health issues with DH so we were about 6-8 months later than we had planned.  I knew that with my AMA (38 about to be 39) that if we had any issues that we’d be referred pretty quickly to a specialist.  I always heard to wait 6 months if you are older and TTC doesn’t work and 12 months if you are of younger age.  Well, I had my yearly visit with the lady dr and I mentioned we’d been trying for a  few months with no luck.  She asked how long it had taken for LO#1 and I told it was the first month.. (wow, looking back what a lucky deal that was!!!)  Anyway, at my yearly we had been trying for 5 months.  Dr immediately referred me to the local, well known fertility specialists.  I was nervous and discussed it with DH and he was on board bc I was worried.  I remember crying to him on the phone after I left the Dr and saying I was soo worried I wouldn’t be having another baby ever, so I made the appointment.&#60;/p&#62;
&#60;p&#62;In November we met with our RE specialist.  He explained that nothing could really be done or discussed until we had the initial battery of tests that most everyone who walks into an RE office has.. Blood work for both myself and DH, HSG for myself and ultrasound for me.   Nov 17, my ultrasound showed endo thickness of 4.5 and 9 follicles over 10 mm (23.2, 17.7, 14.4 on the left and 28.5, 19.9 and 11.5 on the right).  I was told this was good and sent on my way.  Of course I checked dr google and I was somewhat pleasantly happy with the 9 follicles, not too bad but also not the greatest either.  Nov 23, I arrived for my HSG.  My blood pressure was sky high (I have chronic borderline high bp and take daily meds) and they almost didn’t do the procedure but I did some deep breathing and was able to get my bp down enough for them to do it.  It was very similar to a pap, I felt some pressure from the fluid they pump into your uterus and then they showed me the fluid as it spread through my uterus and into my tubes and out to me ovaries.  All was clear, no blockages and then it was over.  Took approximately 2-3 mins.  I was sent home.  My blood work had also been drawn back on Nov 17.  I got the phone call that my labs all looked normal, except my FSH was slightly high, but the nurse said all was a go for beginning treatment.  Like a dummy I didn’t even ask what my FSH was.  I had to call back and she told me it was 12.3, they like it to be below 9.  She never mentioned my low AMH or anything else but I have since found out my AMH was .021, which is very low.  It should be .42 - 8.34 for woman ages 36-40.  DH’s sperm analysis came back normal.&#60;/p&#62;
&#60;p&#62;We had a meeting with the RE where he told us our results.  He suggested we do a few rounds of Timed Intercourse (TI) with clomid and a trigger shot.  I was cd4 at that apt so he asked when we wanted to start.  DH and I said asap and that meant THAT DAY!!!  We probably should have taken a month to think it over but we jumped right in.  We went from the RE to the nurse and went over our instructions and how I could pick up my meds for that night at CVS but that I had to order the rest from the freedom pharmacy and they’d deliver them to me.  I got instruction videos on how to inject myself (what?!?!?!).  I took clomid cd4-cd8.  I took 150 injection of gonal f on cd7 and again on cd9.  I had a monitoring apt on cd11, endo was 6.5 mm, and I had 2 follicles, 16.5 and 12.7.  I was told to trigger that night, so I gave myself the ovidrel shot and TI that night cd11 and then again in the am of cd13.  After we had our TI I had to start inserting progesterone suppositories vaginally until my beta.  I waited the TWW and went for my beta, naively excited, it was negative.&#60;/p&#62;
&#60;p&#62;Cycle 2 same protocol.  Clomid cd3-cd7.  Gonal F cd7, cd 9.  Monitor on cd11 and I had 5 follicles.  (12.2, 6.5 on lft and 11.5, 11.1 and 7.3 on the right).  I was instructed to do another shot of gonal f that night cd11 and monitor again on cd12.  On cd12 they measured 3 follicles (? Not sure what happened to the other 2, guess they fell short) 12.2 on lft and 14.5 and 12.9 on right ovary.  I was instructed to do another injection of gonal f on cd13 and monitor on cd15.  Cd15 I had 8 measurable follicles (?—these records seem confusing) but only 4 were measured….. left ovary had 18.8 and 11.4 and right 12.5 and 22.4, endo was 8.2mm.  I triggered that night with TI cd15 and cd17.  My tracking app also gave me cross hairs on cd18 and I was excited bc I thought we had timed this cycle perfectly!!  As before I started the progesterone suppositories.  Beta on Feb 11, negative.&#60;/p&#62;
&#60;p&#62;Cycle 3.  Clomid cd3-cd7. Gonal F cd7, cd9.  Monitor cd11 and I again had 5 follicles, Left ovary 16.4, 13.4 and 12.2 and right ovary 21.3 and 15.4 but my endo was only 5.0, not so good.  Clomid can cause your lining to suffer.  I was told to start estrace vaginally twice a day to help my lining, gonal F cd11, monitor cd12.  On cd12 my endo had gone up to 7.3mm! That was great news.  My follicles were left 19.8, 12.8, 13.6 and 11.3 and right 24.4 and 17.6.  I triggered that night with my shot of ovidrel and TI that night cd12 and cd14 in the am.  Again my tracking app gave me cross hairs on cd14 so I was again very hopeful bc we had again had great timing.  Progesterone suppositories.  I took a pregnancy test on cd27 (13 dpo) and I saw a faint line!  I texted my two friends who had been my support system and they both saw it too!! I was cautiously optimistic.  I decided to test again in the morning with a first response.  And… it was stark white.  Beta on cd30 was also negative.     Not sure what that line was, maybe an evap or maybe a chemical??  Not sure.&#60;br /&#62;
We were told to meet with the RE at this point to go over future treatment.  He printed out my percentages of success with IVF and gave us the costs.  It was very dismal.  The percentage was less than 10% success rate for one round I think it went up to about 35% with three rounds of IVF.  My projected egg retrieval was about 1-2 eggs per cycle.  The RE did however say he thought I’d do better than that bc thus far I had been responding well with an average of at least 5 good follicles each time.  But the cost he quoted us was what sealed the deal.  He said for one round it would be $14k-$17k plus about $6k for meds.  That’s $20k for a 10% success rate???  Wow, we couldn’t wrap our heads around it.  He did offer a two round IVF package for $18k plus meds for each cycle ($12k) or approx. $30k for two rounds.  We were not offered any type of refund program, like if it didn’t work we’d get a percentage back or other options.  He said we could continue on though and try IUI.  However, with no male factor it really wasn’t too much different than TI. Although it would cut out a few things such as the sperm having to navigate through the cervical mucus and it would guarantee the spermies were there to meet the egg.  But if there was some issue with fertilization or something IUI won’t help with that.&#60;/p&#62;
&#60;p&#62;Because I hadn’t been able to accept us quitting we moved on to IUI.  RE suggested 3 rounds at most and then revisit.&#60;/p&#62;
&#60;p&#62;Cycle 4.  Clomid cd3-cd7.  Gonal F cd5, cd7, cd9 monitor cd11.  I had 5 follicles, left 15.5, 12.5, 9.5 and 9.0, right 5.8, endo was 5.7mm.  I was instructed to do another shot of gonal F that night cd11 and monitor on cd13.  On cd13 my endo was 6.7mm and 5 follicles on the left (not sure what happened to the one on the right).. 16.5, 21.8, 11.9, 10.9 and 10.7.  Took gonal F that night again and started estrace vaginally twice a day again to help with my lining.  Monitored again on cd14 and my follicles had grown to 18.6, 24.3, 11.6, 13.7 and 14.4.  My lining was only 6mm though. I triggered on cd14 and my IUI was set for cd16 (my birthday!! Has to be lucky right??).  That morning DH collected his sperm sample and I dropped it off to be washed. My IUI was set for 1.5 hours later.  I was feeling sick so I went to the store and got some meds.  The IUI process was quick and painless.  Took about 2 mins and then I was told to lay there until the clock dinged (5 mins).  I went home and napped the rest of the day bc of my being sick. Progesterone suppositories. Beta on April 15 was negative.&#60;/p&#62;
&#60;p&#62;Cycle 5.  Clomid cd3-cd7. Gonal F cd5, cd7, cd9, monitor on cd11.  I had 4 follicles only one measurable (it seems to be getting worse, not better for me).  My follicle was on my left ovary and was 12.6mm, endo was 3mm  I was told to do gonal F cd11, cd12 and monitor cd13.  On cd13 I had 3 follicles, left 15.7 and 8.2 and right 8.9.  My endo was 5.1.  Monitor on cd14, follicles 8.8 and 16.6, endo 4.6mm.  Monitor on cd15 follicles were 18.2 and 9.7 endo was only 3.8mm.  I was told to trigger that night.  I was worried my lining wasn’t thick enough, I was pretty over this cycle.  I had been to the dr 3 out of the 4 past days and I was over it.   IUI was done on cd17.  Same as before, no pain, very quick.  The nurse commented on how great DH’s sperm count was.  And I replied that I knew, the issue is with me not him…. Smh.  Progesterone and estrace suppositories.  Beta on May 17 was negative.&#60;/p&#62;
&#60;p&#62;That week we traveled out of town for a funeral and I really started to do some soul searching and praying.  I realized how blessed I am to have LO#1 and that maybe I was trying to control this issue too much and I just needed to let it go.  But I couldn’t.  I asked DH if he was ok with me to get a second opinion and he said whatever I needed to do.  So I sought out some recommendations and found a great place nearby my work.  I set up the apt and requested my records from my RE.  The apt came and I went in. I explained my situation and the dr was great.  She listened and she basically told me it was up to us how far we wanted to pursue this and what we would be comfortable doing.  She didn’t push me in a certain direction and she gave me their options.  At their clinic I could do a mini IVF for only $8k plus meds which would be about $3k.  This was way more affordable and I’ll be honest when I walked out I was pretty sure we’d do it!  They also had other packages and I could do any of them.  There were no money back packages though.  Well I left that apt and then days past.  Yes, days before I really talked to DH about it.  I don’t know why or how it happened but for some reason I think I was still working through accepting we were done with only one child.  I finally brought it up to DH and we talked about it.  And as before he was willing to do whatever I wanted.  He was fine being done and was happy with LO#1 and our family as is but if it was important to me then he’d be ok with it.  I of course ended up in tears telling him how hard it was to give up that “plan” of two kids.  I finally started to tell friends that it looked like we were done.  And it happened while talking to one of my coworkers/friends who is very pro more than 1 kid in a family. I told her our struggles and she flat blank told me to stop treatments and be happy with what we had.  For some reason it was like a light went off and suddenly I just felt ok.  Maybe it was bc all my other friends and family who were aware were “supportive” of the treatments (my mom even went so far as to offer to pay for treatment) and this friend said exactly what I needed to hear.&#60;/p&#62;
&#60;p&#62;That weekend I went to the beach with a friend and she inquired about us having more kids and I told her we were done and when I told her I felt good about it, like no remorse or sadness!  I ordered a book from amazon about having and being an only child.  I told DH I was good with our happy family of three.  We were done treating.  After five cycles and thousands of dollars, injections, blood work and meds we were done.&#60;/p&#62;
&#60;p&#62;The very next cycle I expected to be wonky bc I’d been medicating myself for 5- 6 months.  So I just waited for AF to arrive.  On cd34 right before I went to bed I decided to poas.. just bc I had plenty of cheapies left over and well bc it was cd34.  I fully expected it to be negative and that I was just having a really long cycle… holy moly!  It was positive right away!  I started shaking and I swear almost passed out.  I took another one in the morning and I called the RE to have blood work taken.  That afternoon at 130 pm it was confirmed I was pregnant!!  I am currently 9w1d.  We have a long way to go but here we are.&#60;/p&#62;
&#60;p&#62;I wanted to write this long drawn out post because when I got my results, the high FSH and low AMH I searched and searched for people like me and their stories.  It was very few and far between that they actually turned out happy.  I found maybe 3-4 happy endings with numbers like mine.  It was hard to find people with similar numbers so just in case someone out there is looking I wanted to share this!  It is possible. Even with my bad “numbers” I still did respond fairly well to treatment.  And somehow got pregnant 100% naturally so even if you have DOR there could be a few good eggs in there still!  I want everyone to know that this is in no way a pro “stop treatment” post.  I believe that everyone has to do what they feel is necessary.&#60;/p&#62;
&#60;p&#62;This whole experience has opened my eyes to so many things about infertility.  I give my hugest kudos to those who have dealt with, are dealing with it or will deal with it in the future.  It’s an emotional, physical and financial roller coaster.  All my best.
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