https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Sat, 25 Apr 2026 01:22:10 +0000 https://boards.hellobee.com/topic/hypermobility-stories-support#post-2699096 Thu, 16 Feb 2017 21:36:19 +0000 catomd00 2699096@https://boards.hellobee.com/ <p>@Littlebit7: thank you! </p> https://boards.hellobee.com/topic/hypermobility-stories-support#post-2698922 Thu, 16 Feb 2017 14:24:11 +0000 Littlebit7 2698922@https://boards.hellobee.com/ <p>ah gotcha!! So yes, barre, or maybe mat-based pilates would be good! </p> https://boards.hellobee.com/topic/hypermobility-stories-support#post-2698921 Thu, 16 Feb 2017 14:22:36 +0000 catomd00 2698921@https://boards.hellobee.com/ <p>@Littlebit7: I was in PT for 6 months postpartum until she felt she could no longer help me, but did recommend continuing to strengthen. She referred me to another PT but I just haven't had the time to start up again with my work schedule and I'm prioritizing doctor appointments for other issues first before I circle back. I know I need to do something low impact, I just don't want to hurt myself more and want to start ASAP if we decide to TTC this fall I need to be in the best shape possible. </p> https://boards.hellobee.com/topic/hypermobility-stories-support#post-2698696 Thu, 16 Feb 2017 10:17:38 +0000 Littlebit7 2698696@https://boards.hellobee.com/ <p>@catomd00: i would strongly reccomend a short course of PT. It wouldn't need to be more than 4-6 sessions. You'd be able to figure out your most vulnerable joints and regions, identify any imbalances,, and also the most efficient stabilization exercises/home program that are specific to YOU. I think barre would be good once you develop a good baseline. </p> https://boards.hellobee.com/topic/hypermobility-stories-support#post-2698679 Thu, 16 Feb 2017 09:56:33 +0000 catomd00 2698679@https://boards.hellobee.com/ <p>@charlotte: I don't actually know if I did that young or not. I didn't have low tone of any delayed milestones. I did have a hernia and heart murmur as a baby though and a lot of stomach issues from a very young age and was "accident prone." Always tripping or falling or getting hurt, but most of my injuries were always "sprains" that took a long time to heal. </p> https://boards.hellobee.com/topic/hypermobility-stories-support#post-2698676 Thu, 16 Feb 2017 09:52:34 +0000 catomd00 2698676@https://boards.hellobee.com/ <p>@Littlebit7: yes I have so many issues now since I am so weak now. I need to start strengthening. I'm considering barre (being careful of not hyoerextending) or melt method. Do you have any opinions on either of these. I need something that's pretty short and can be done at home. </p> https://boards.hellobee.com/topic/hypermobility-stories-support#post-2697340 Mon, 13 Feb 2017 21:40:54 +0000 Littlebit7 2697340@https://boards.hellobee.com/ <p>@catomd00: as a PT I've diagnosed three girls with EDS during my career. Correction, three women. I wish they had been diagnosed as young girls! All excelled in yoga or gymnastics. They were the most "flexy" in the classes, which was actually do their detriment. With EDS, as you know, you have all of this hypermobility in all of your joints but if you don't have the strength or stability to control the motion you can end up having a lot of musculoskeletal problems. </p> https://boards.hellobee.com/topic/hypermobility-stories-support#post-2697300 Mon, 13 Feb 2017 19:54:30 +0000 charlotte 2697300@https://boards.hellobee.com/ <p>@Mrs. Sketchbook: thanks for chiming in :happy: What kind of shoes are they? I've been thinking of doing high tops for DD before she can get her orthotics (again- insurance issues, grrrr). </p> https://boards.hellobee.com/topic/hypermobility-stories-support#post-2697157 Mon, 13 Feb 2017 15:35:58 +0000 Mrs. Sketchbook 2697157@https://boards.hellobee.com/ <p>I've never heard my son described as hypermobile, but he is low tone. He walked at 18 months. He's been in PT since he was 1. We do high top shoes but not orthotics. </p> https://boards.hellobee.com/topic/hypermobility-stories-support#post-2697103 Mon, 13 Feb 2017 14:32:10 +0000 charlotte 2697103@https://boards.hellobee.com/ <p>@catomd00: thanks so much for sharing. If it's too personal then please ignore it just curious if you showed signs at 1 - 3 years old, including hypermobility or more, or if it took longer to show up? We want to have answers too..though a tiny part of me wishes I could hide from the possibility of comorbid conditions. Waiting a bit on following up more because of insurance issues unfortunately. We are on an individual insurance plan for a bit and it covers NOTHING. Thanks again for sharing your experience!! </p> https://boards.hellobee.com/topic/hypermobility-stories-support#post-2696750 Sun, 12 Feb 2017 23:01:16 +0000 catomd00 2696750@https://boards.hellobee.com/ <p>I was just diagnosed with EDS a few weeks ago, but have had symptoms my entire life. I wish someone had pieced it together for me earlier, so I could have protected my joints more. I was a gymnast and had I known I had EDS, I would not have done it. There are also a lot of comorbid conditions that can come along with EDS, so I think it's wise to know exactly what's going on. Knowledge is power. It was also important for me personally to get dx, as it may help with a dx for my daughters in the future and now we know this is in our gene pool, so we can make wise decisions about the activities they do. My geneticist did say that they won't diagnose kids until around 7, but I still think it's wise to see a physician about it. </p> https://boards.hellobee.com/topic/hypermobility-stories-support#post-2696581 Sun, 12 Feb 2017 16:44:09 +0000 charlotte 2696581@https://boards.hellobee.com/ <p>After a quick search it appears there are at least a few parents of hypermobile (very flexible) LOs here. I would love to hear your stories of what your LO's motor skill development was like, how they are doing now, and if you pursued a diagnosis or suspected any underlying genetic issues?</p> <p>Our experience - my son had low muscle tone, very flexible ankles, wore orthotics and walked at 17m. He's cautious but "caught up" in gross motor skills now. We are keeping an eye on hand strength and fine motor skills now.<br /> -our daughter just turned 17 months and will barely stand. She really hates it. She is even more flexible than DS and has taken longer to master crawling without getting into the splits. We aren't sure when she will walk but are working to help her build strength everyday. </p> <p>I'm worried about the mid- term implications (things like the hand strength for writing, keeping up with kids at school during PE etc). Also worried about a potential genetic disorder, ie our PT suggested Ehlers-Danlos, which is a little scary to google. We have not sought a diagnosis at this point. </p> <p>Any experiences are appreciated :heart: </p>