https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Tue, 30 Jun 2026 23:00:21 +0000 https://boards.hellobee.com/topic/a-cmv-loss-story/page/2#post-2717772 Wed, 29 Mar 2017 10:49:11 +0000 mfa_lady 2717772@https://boards.hellobee.com/ <p>I'm so, so very sorry for your loss. :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story/page/2#post-2717745 Wed, 29 Mar 2017 10:00:29 +0000 youboots 2717745@https://boards.hellobee.com/ <p>@Academicsocialite: you belong here. It does not matter how long you have been here. All of us were brand new at one point. I will forever be grateful to HB, I've made some great friends along the way.</p> <p>I am so sorry for your loss. </p> https://boards.hellobee.com/topic/a-cmv-loss-story/page/2#post-2717738 Wed, 29 Mar 2017 09:51:40 +0000 Academicsocialite 2717738@https://boards.hellobee.com/ <p>Wow. All I can say is wow. I am so heartened by such beautiful, considered, heartfelt thoughts from all of you. This is a really special community. I know I'm a recent poster, but thank you for the kindness extended to a virtual stranger. It really does help a lot.</p> <p>I should also say, I really don't feel brave. Most days I feel pretty banged up, heart-wise. His EDD is next week, as I mentioned, and I'm so angry and sad about what happened. I liken it to being hit by a car - the news came out of nowhere, and the results were devastating and permanent. There is no going back. I'll be ok, someday, but I'll never get over it. </p> https://boards.hellobee.com/topic/a-cmv-loss-story/page/2#post-2717483 Tue, 28 Mar 2017 14:14:36 +0000 shellio 2717483@https://boards.hellobee.com/ <p>I'm so sorry for your loss and for everything you've gone through. Thank you for sharing your story with us. </p> https://boards.hellobee.com/topic/a-cmv-loss-story/page/2#post-2717480 Tue, 28 Mar 2017 14:03:00 +0000 Ginabean3 2717480@https://boards.hellobee.com/ <p>I'm so sorry for your loss. :crying: :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story/page/2#post-2717447 Tue, 28 Mar 2017 13:07:22 +0000 Mrs.Pinecone316 2717447@https://boards.hellobee.com/ <p>I am so sorry for what your family had to go through :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story/page/2#post-2717410 Tue, 28 Mar 2017 11:58:21 +0000 tequiero21 2717410@https://boards.hellobee.com/ <p>:( so sorry for your loss. </p> https://boards.hellobee.com/topic/a-cmv-loss-story/page/2#post-2717367 Tue, 28 Mar 2017 10:50:53 +0000 LCTBQE 2717367@https://boards.hellobee.com/ <p>I'm terribly sorry you lost your sweet baby. Thank you for sharing this, like others have said, you are so very brave and I can't imagine the strength it must take to discuss it. I never understood why we hear so much about listeria and other infections from medical professionals, but nothing about CMV. </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717365 Tue, 28 Mar 2017 10:47:35 +0000 Bea 2717365@https://boards.hellobee.com/ <p>:heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717360 Tue, 28 Mar 2017 10:40:53 +0000 wrkbrk 2717360@https://boards.hellobee.com/ <p>@Academicsocialite: You have gone through every parent's worst nightmare and survived. No one will ever forget your little boy. Thank you for sharing your story. Sending you lots of love, support, and peace. </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717354 Tue, 28 Mar 2017 10:34:39 +0000 Anya 2717354@https://boards.hellobee.com/ <p>Thank you for sharing your story. You've written with such clarity, especially being only 9 weeks out from your loss. I'll be thinking of you through your edd next week and beyond. :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717346 Tue, 28 Mar 2017 10:24:06 +0000 catlady 2717346@https://boards.hellobee.com/ <p>I am so sorry for the loss of your son, and for the fact that you and your family had to go through this. You are incredibly brave. Thank you for sharing with us. :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717344 Tue, 28 Mar 2017 10:23:50 +0000 Mrs. Oreo 2717344@https://boards.hellobee.com/ <p>I'm so sorry for your loss :heart: Thank you for sharing. Sending you and your family loving thoughts of support. </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717339 Tue, 28 Mar 2017 10:20:44 +0000 MrsSCB 2717339@https://boards.hellobee.com/ <p>I'm so sorry for your loss. Thinking of you and your family and sending you love. Thank you for sharing, I know it's so hard but I hope it brings you healing. I think openness about stories like yours also helps to chip away at misconceptions, so it is very generous of you to share. :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717294 Tue, 28 Mar 2017 09:36:24 +0000 delight 2717294@https://boards.hellobee.com/ <p>@Academicsocialite: I am glad you have found support and solace in this board. I am also sorry that we are sisters in this respect but I have found it comforting to know that I am not alone. Thinking of you and your family... :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717281 Tue, 28 Mar 2017 09:16:32 +0000 winniebee 2717281@https://boards.hellobee.com/ <p>I'm so sorry for the loss of your son. I can't imagine not having had my husband with me when we delivered our sleeping son - or having to travel out of state to obtain the medical care that we wanted and needed. I'm sure that that complicates the trauma of your loss and has made it even more difficult to process. </p> <p>Reading your story brings me right back to where we were 10 months ago - thinking that we had a healthy baby and then suddenly blindsided with terrible news. I was very open with this community about our TFMR and received nothing but support. Like you pointed out, I know there are members who probably disagreed with our choice, but they respected our decision and held empathy for me when I needed it most. I think you know that at first I was very closed off to the idea of trying again for another child, but with time, came around to the idea, and am now 26 weeks along in my subsequent pregnancy. I am hopeful that we will have a happy ending. </p> <p>The time surrounding my due date was really hard. It coincided with Pregnancy and Infant Loss Support month and stories of loss were everywhere as a constant reminder of what we went through and what we did not have. I found myself raw in my grief again and had days of crying randomly and all day. I did find some peace in getting past my due date. It started to feel like my loss was more a piece of my history than the ongoing story that I was living every day. It's been just about 10 months since I delivered Dylan James. I think about him every single day, many times a day. I still cry for him. Though I am resolute in our decision, I wish so deeply that he had not been so sick and that he could be sitting here in my lap, a happy and smiling healthy 5 month old. Your baby boy will never be forgotten. I certainly remember the babies of all of the TFMR moms here. You are not alone. </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717278 Tue, 28 Mar 2017 09:13:44 +0000 snowjewelz 2717278@https://boards.hellobee.com/ <p>Thank you so much for sharing your story. I am so sorry for your loss; I'm crying at work for your family. I am even more sorry that you're almost scared to talk about it b/c of all the "controversy" surrounding this, even though you made the best decision you could for your family. Nobody should have to make that kind of decision and then be judged for it. Sending much love to you :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717265 Tue, 28 Mar 2017 08:55:02 +0000 babypugs 2717265@https://boards.hellobee.com/ <p>@Academicsocialite: I can't begin to imagine how tough it was to go through that. My heart goes out to you. :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717256 Tue, 28 Mar 2017 08:40:29 +0000 Mrs. Blue 2717256@https://boards.hellobee.com/ <p>I'm so very sorry for the loss of your son. You and your family will be in my prayers. </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717253 Tue, 28 Mar 2017 08:38:40 +0000 Academicsocialite 2717253@https://boards.hellobee.com/ <p>Thank you everyone. I have been a lurker on the board for a l-o-n-g time and I know what a supportive community it is. To be able to publicly talk about something so personal but also so politically charged right now is a bit of a scary proposition, but I knew even if there were people here who disagreed with me, they would also try to find empathy for our situation and our choice. At the same time, when we first got the diagnosis, it was hard to find anyone who had gone through the same thing after a CMV infection, but I did find solace in the women here who had had a TFMR, like winniebee, torchwood, and @delight. And @coffee-lover too - I'm so sorry we are sisters in this. So it seemed important to share my story as well, to bring it out of the shadows a bit more, and try to end the silence and fear around it. </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717250 Tue, 28 Mar 2017 08:37:31 +0000 erinbaderin 2717250@https://boards.hellobee.com/ <p>I am so sorry for your loss and for having to go through this. Your son was lucky to have parents who would put his interests ahead of their own and make the hardest decision I can imagine so as to spare him pain and suffering. You are incredibly brave. </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717232 Tue, 28 Mar 2017 08:15:04 +0000 psw27 2717232@https://boards.hellobee.com/ <p>I am so sorry for your loss. Thank you for sharing your story. :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717226 Tue, 28 Mar 2017 08:09:51 +0000 LulaBee 2717226@https://boards.hellobee.com/ <p>I am so very sorry for the loss of your sweet boy. I lost my son at 23 weeks due to an infection, if you ever want to talk I'm here for you. :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717224 Tue, 28 Mar 2017 08:05:54 +0000 Littlebit7 2717224@https://boards.hellobee.com/ <p>So sorry for your loss. It was brave to post here, and I can only hope that putting the words down helps you continue to heal. That all sounds terribly traumatic. :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717197 Tue, 28 Mar 2017 07:12:41 +0000 periwinklebee 2717197@https://boards.hellobee.com/ <p>:heart: I am so, so sorry. Thinking of you and your family :heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717184 Tue, 28 Mar 2017 06:35:44 +0000 oliviaoblivia 2717184@https://boards.hellobee.com/ <p>I'm so sorry for your loss. </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717174 Tue, 28 Mar 2017 04:57:56 +0000 AprilFool 2717174@https://boards.hellobee.com/ <p>I am so sorry for your tremendous loss. </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717171 Tue, 28 Mar 2017 04:25:11 +0000 MrsB2012 2717171@https://boards.hellobee.com/ <p>:heart: </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717166 Tue, 28 Mar 2017 01:37:01 +0000 Pumuckl 2717166@https://boards.hellobee.com/ <p>@Academicsocialite: what a heartshattering story. So so sorry for your loss and thank you for being brave enough to tell your story. </p> https://boards.hellobee.com/topic/a-cmv-loss-story#post-2717165 Mon, 27 Mar 2017 23:42:54 +0000 ALV91711 2717165@https://boards.hellobee.com/ <p>I'm so sorry you had to go through this. Thank you for sharing your story. </p>