https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Mon, 02 Nov 2026 11:00:04 +0000 https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-852666 Wed, 12 Jun 2013 19:41:54 +0000 anbanan15 852666@https://boards.hellobee.com/ <p>@umlo: there is no clinical test or bloodwork etc that can be done specifically for FPIES. Those thing may be done in order to rule out other possible diagnoses but an FPIES diagnosis is based symptomatically so getting a complete history on your LO was the doctors best and only tool available for diagnosis. If you still want a second opinion I would seek a doctor who specializes in FPIES and see what they had to say/offer. </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-852602 Wed, 12 Jun 2013 19:17:47 +0000 umlo 852602@https://boards.hellobee.com/ <p>Thanks all for your comments. I'm sorry for the late reply but wanted to get through our consult with the allergist and she is calling it FPIES, even though she said she thinks its not? I'm very confused and on top of it, the consult was a background on history, diagnosis without an exam/bloodwork/testing and giving me tons of papers and a Rx of miralax for LO constipation. </p> <p>@anbanan15: did you have the same experience? Is it just the nature of FPIES and the difficulty to diagnose? I am thinking about getting a second opinion. </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-824198 Sat, 01 Jun 2013 16:11:46 +0000 sunny 824198@https://boards.hellobee.com/ <p>I met another mom who told me of similar symptoms after rice cereal and her baby was diagnosed with FPIES as well. I hope your LO feels better. </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-823934 Sat, 01 Jun 2013 11:38:45 +0000 Boogs 823934@https://boards.hellobee.com/ <p>@umlo: No constipation, but yes eczema. I don't think it was related to the rice cereal, though. At 2 he's fine eating all foods, but still has occasional eczema flare-ups more because he seems to have sensitive skin, which is apparently pretty common and for us easily controllable with unscented lotions, soaps, certain sunscreens, oatmeal baths, and hydrocortisone cream. </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-823491 Sat, 01 Jun 2013 05:46:16 +0000 anbanan15 823491@https://boards.hellobee.com/ <p>I hope your daughter feels better soon!</p> <p>My son has chronic constipation and eczema flares with fails as well. Each kid is SO different though which makes diagnosis even harder. </p> <p>You could try to eliminate foods from your diet and see if that helps with symptoms. I had to go on a total elimination diet (TED) and was down to 3 foods for awhile. It is so hard, especially to keep your own nutrition up, but for us it was our only option. Once DS self weaned I have been able to eat a normal diet again, but I am struggling with some vitamin deficiencies from how extreme my diet was and from being completely vegan without good protein replacements other than quinoa. </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-823489 Sat, 01 Jun 2013 05:43:37 +0000 anbanan15 823489@https://boards.hellobee.com/ <p>@umlo: Sorry for all the typos. I was posting on my phone but I hope you got what I was saying :) I just wanted to add that the good news is with FPIES your LO should outgrow it at some point!! Literature states 2-3 years, but from parents I've talked to it's more like 4-5 years. Also many kids only have one or two triggers so rice might be your LO's only trigger and reacting via breastmilk like my son did is more rare. Some mom's find they have to eliminate their LO's triggers from their diet, some find they only have to eliminate after their LO started reacting and some find they don't need to at all. With an EBF baby FPIES diagnosis is usually not made until they start solids, around 6 months, because of the low rate of reactions from breastmilk. My son had a ton of suspected food allergy diagnosis's before starting solids with FPIES in the back of our GI's mind. Once he reacted to rice cereal our GI agreed with an FPIES diagnosis. I wrote a guest blog post on HB a few months ago with a little about our experience that you can read here: <a href="http://www.hellobee.com/2013/04/05/what-is-your-son-allergic-to/" rel="nofollow">http://www.hellobee.com/2013/04/05/what-is-your-son-allergic-to/</a> </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-823485 Sat, 01 Jun 2013 05:35:02 +0000 anbanan15 823485@https://boards.hellobee.com/ <p>@umlo: Not to scare you, but I would look into Food Protein Induced Entercolitis Syndrome (FPIES). some good places to start are the International Association for Food Protein Entercolitis (IAFFPE) and the FPIES Foundation websites (I will list links). What you described is CLASSIC FPIES!!! Delayed vomiting post ingestion, usually around the 2 hour mark has FPIES written all over it and rice is one of the most common triggers along with dairy. I would avoid rice cereal at also oat at this point since there is a 50/50 chance your LO would also react to that. Reaction could get worse and the vomiting could lead to shock and lethargy due to dehydration. Has your LO had any blood in his stools or mucous?</p> <p>I would also stop all solid for a little to allow your LO to have some gut rest before trying any other tin increase the likelyhood of finding a pass. Peas and sweet potatoes are also common trigger foods for FPIES kiddo's. </p> <p>Just to warn you getting an FPIES diagnosis can be difficult because it is a rather new condition within the medical community and many doctors have not even heard of it before. Others don't regonize it as a proper diagnosis since it is based on symptoms and excluding other possibilities and there are currently no clinical tests for it. You have to fight for your LO on this one! When you talk to your pedi about it come armed with a list of your LO's symptoms, a timeline of what happened, foods he has reacted to, and tons of research papers from the sites mentioned above with the information that pertains to your LO highlighted. What are are you from? Myself or someone else in an FPIES group can help you locate a doctor with FPIES experience in your area. </p> <p>We have been dealing with our official diagnosis since DS was 6 mo, but looking back we know now je started reacting to foods via my milk at birth. He is now 25 mo. It's been a long road, but we are getting there are we understand better and are under the care of some great allergists and GI specialists within the FPIES community. Feel free to ask me any questions!!!</p> <p>Here are links to the websites I mentioned and I will also try to link some FPIES groups from FB and BBC for you to check out and ask the mama's on there their opinion about what you described. Collectively these women have years of experience with this disease:</p> <p><a href="http://iaffpe.org/" rel="nofollow">http://iaffpe.org/</a></p> <p><a href="http://fpiesfoundation.org/" rel="nofollow">http://fpiesfoundation.org/</a></p> <p><a href="http://community.babycenter.com/groups/a4859345/fpies_food_protein_induced_enterocolitis_syndrome" rel="nofollow">http://community.babycenter.com/groups/a4859345/fpies_food_protein_induced_enterocolitis_syndrome</a></p> <p><a href="https://m.facebook.com/home.php?ref=m_notif&#038;notif_t=feed_comment_reply&#038;__user=24301616#" rel="nofollow">https://m.facebook.com/home.php?ref=m_notif&#038;notif_t=feed_comment_reply&#038;__user=24301616#</a>!/home.php?ref=m_notif&amp;notif_t=feed_comment_reply&amp;__user=24301616&amp;soft=side-area</p> <p><a href="https://m.facebook.com/home.php?ref=m_notif&#038;notif_t=feed_comment_reply&#038;__user=24301616#" rel="nofollow">https://m.facebook.com/home.php?ref=m_notif&#038;notif_t=feed_comment_reply&#038;__user=24301616#</a>!/home.php?ref=m_notif&amp;notif_t=feed_comment_reply&amp;__user=24301616&amp;soft=side-area</p> <p>There are also specific FPIES support groups depending on the area of the country you are in, but the two groups above are the most active. </p> <p>To answer your first question FPIES is an allergy. It's a food allergy of the gastrointestinal tract that unlike traditional IgE allergies that can cause hives and anaphylaxis, it can cause profuse vomiting with delayed on set, diarrhea, bloody stools, lethargy, and shock among some other more mild symptoms likes sleep disturbances and reflux flares. </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-823457 Sat, 01 Jun 2013 02:26:58 +0000 umlo 823457@https://boards.hellobee.com/ <p>@Boogs: that's so great to hear he has been able to tolerate it. When he initially had the vomitting did you also notice any constipation, as if he was super backed up? As well as any eczema? I know each kid is different but just curious since mine has those symptoms as well. </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-822538 Fri, 31 May 2013 15:28:20 +0000 Boogs 822538@https://boards.hellobee.com/ <p>@umlo: I just stayed away from the rice cereal all together and later slowing introduced breads and other grains slowly so I could watch for any reactions, but he thankfully never had any. </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-822374 Fri, 31 May 2013 14:38:51 +0000 umlo 822374@https://boards.hellobee.com/ <p>@regberadaisy: sorry, I meant with the rice cereal, I mixed it with breastmilk. The first time, it was rice cereal mixed with breastmilk and gave her peas, sweet potatoes as well. The second time it was rice cereal mixed with breastmilk only. </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-822345 Fri, 31 May 2013 14:26:23 +0000 regberadaisy 822345@https://boards.hellobee.com/ <p>@umlo: I thought you wrote that you also gave peas, sweet potatoes, etc? </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-822291 Fri, 31 May 2013 14:07:27 +0000 umlo 822291@https://boards.hellobee.com/ <p>@Rubies: that's comforting to know! I have been researching cutting out dairy in my diet but will try to see if that is truly the culprit. </p> <p>@regberadaisy: the only thing I mixed with it was breastmilk. :/</p> <p>@Boogs: this is encouraging! Did you try giving your LO rice again later or just stayed away from grains? </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-822027 Fri, 31 May 2013 12:23:18 +0000 Boogs 822027@https://boards.hellobee.com/ <p>I was you about a year and a half ago! The same thing happened to LO and his pediatrician said to just skip the rice cereal, continue BFing, and we could just try other solids. After that we never had a problem with LO getting sick like that again and I didn't need to change my diet either. </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-822022 Fri, 31 May 2013 12:21:39 +0000 regberadaisy 822022@https://boards.hellobee.com/ <p>@umlo: could it be a reaction to the other things you mixed into the rice cereal? </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-822021 Fri, 31 May 2013 12:20:53 +0000 Rubies 822021@https://boards.hellobee.com/ <p>@umlo: I did EBF my LO but didn't have to cut anything out of my diet. </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-822016 Fri, 31 May 2013 12:19:44 +0000 umlo 822016@https://boards.hellobee.com/ <p>Thanks @T.H.O.U.: I will try to make something and see if its the preservatives. Fingers crossed! </p> <p>@Rubies: I wondered this as well since I had a milk allergy as an infant but grew out of it (broke out in hives/rashes). Did you EBF your LO? If so, did you have to cut out dairy as well? </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-821965 Fri, 31 May 2013 12:01:25 +0000 Rubies 821965@https://boards.hellobee.com/ <p>Rice cereal is how we found out that LO has a milk allergy (skim milk powder is the second ingredient) but she never vomited - she broke out into hives.</p> <p>I would try just doing one item per meal just to see if you can narrow it down. </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-821958 Fri, 31 May 2013 11:58:56 +0000 T.H.O.U. 821958@https://boards.hellobee.com/ <p>I would try something you make at home that is a fresh veggie and very bland. Like maybe a banana?? </p> https://boards.hellobee.com/topic/allergic-to-rice-cereal#post-821938 Fri, 31 May 2013 11:52:04 +0000 umlo 821938@https://boards.hellobee.com/ <p>Any mamas deal with their LOs projectile vomiting after eating rice cereal? Is this normal? Or a sign of allergy?</p> <p>We started solids when LO turned 6 months old and she was fussy eating it but ingested it well without any reaction. Fast forward a week later, she ate rice cereal along with peas, sweet potatoes, etc and 2 hours later, BAM. It was so heartbreaking to see her go through the vomit session but once she was done she was back to normal. At that point I just stopped all solids trying to figure it out. </p> <p>We talked to our Peds and he said some kids do that and the variables are too great to figure out why but encouraged us to put her back on solids again.</p> <p>We tried again, only giving her less than 1/2 tablespoon and 1 hr later, the vomit sessions began again.</p> <p>I'm doing my best to figure this out but I am at a loss trying to know where to begin. I know we need to try different foods to see what she can tolerate but I hate knowing that it may possibly make her sick. Rice cereal is a no go anymore but I am wondering if I need to change my diet (I've been EBF but she has had no problem with my milk). </p>