https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Wed, 15 Apr 2026 13:52:00 +0000 https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34766 Thu, 15 Dec 2011 14:21:04 +0000 LAGS 34766@https://boards.hellobee.com/ <p>@winniebee: Thanks! :) </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34764 Thu, 15 Dec 2011 14:19:50 +0000 LAGS 34764@https://boards.hellobee.com/ <p>@Miss Adia: Good for you! I hope you don't have to deal with anything like it again. After the news we've gotten... and the enormous likelihood that its just a false positive, I honestly think for future pregnancies I'd do the same as you and opt-out of the testing/screening. </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34762 Thu, 15 Dec 2011 14:18:12 +0000 winniebee 34762@https://boards.hellobee.com/ <p>@LAGS: Good luck! I'm sure you will feel so much better after the ultrasound. </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34759 Thu, 15 Dec 2011 14:17:21 +0000 LAGS 34759@https://boards.hellobee.com/ <p>I just found out this morning that my level 2 u/s with a specialist is scheduled for Monday. I'm so glad they were able to schedule it before my original anatomy scan date (the 22nd) and before the holidays. </p> <p>So I just have to make it through the weekend and I should have a better idea of what's going on in there. </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34744 Thu, 15 Dec 2011 13:55:25 +0000 mediagirl 34744@https://boards.hellobee.com/ <p>When do you get your anatomy scan? That will really help narrow things down for you. </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34683 Thu, 15 Dec 2011 12:12:20 +0000 Miss Adia 34683@https://boards.hellobee.com/ <p>Oh, I did. when she came back I told her that I did not want to see the stand in doctor ever again. She was very condescending about me not wanting to waste the insurance time and my employers money paying for an ultrasound that wasn't medically necessary. </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34070 Wed, 14 Dec 2011 15:29:39 +0000 Mrsbells 34070@https://boards.hellobee.com/ <p>I would try not to worry about it. Even when they do tell you that your risk is low you still have a chance of having a down syndrome baby. I personally dont pay much attention to all the screening that they did. I did all the non-invasive tests they offered just so they would leave me alone. I dont think they are conclusive results by anymeans </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34058 Wed, 14 Dec 2011 15:18:24 +0000 LAGS 34058@https://boards.hellobee.com/ <p>Apparently they consider anything 1/150 or less to be normal. So I'm juuust outside of those limits.... I'm trying to stay positive and think of it as a freebie second anatomy scan, but the Momma in me can't help but worry. </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34054 Wed, 14 Dec 2011 15:13:32 +0000 winniebee 34054@https://boards.hellobee.com/ <p>@LAGS: I was just going to say that your overall risk sounds pretty low to me (1%)! Why are your numbers considered elevated? Wishing you all the best! </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34050 Wed, 14 Dec 2011 15:11:40 +0000 tequiero21 34050@https://boards.hellobee.com/ <p>i think i came out relatively low. but 1/130 sounds pretty low to me too. it's less than 1%. </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34048 Wed, 14 Dec 2011 15:09:38 +0000 LAGS 34048@https://boards.hellobee.com/ <p>@Miss Adia - Wow, that's awful! I hope you've been able to get some reassurance from your regular OB :(</p> <p>@Mediagirl - I'm 18w4d and had the blood work done at 17w6d. It just general blood work that's taken to test for four different hormones, hCG, Estriol, AFP and Inhibin-A. Its only a screening test for risk of various conditions, downs being one of them, and isn't a definitive diagnostic test. </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34043 Wed, 14 Dec 2011 15:04:14 +0000 mediagirl 34043@https://boards.hellobee.com/ <p>@LAGS: I'm not sure what all of the terminology is but did you have this during your first trimester? Once you get to second, they can do a second batch of blood work and an ultrasound to give you a more accurate analysis. Try not to worry too much until then. </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34042 Wed, 14 Dec 2011 15:02:46 +0000 mediagirl 34042@https://boards.hellobee.com/ <p>@Miss Adia: sounds like your appointment didn't go very well. Did you find another doctor to do a follow-up with? </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34039 Wed, 14 Dec 2011 15:01:25 +0000 Miss Adia 34039@https://boards.hellobee.com/ <p>My regular OB was on vacation when I had some testing and her partner said I was at a very high risk for having a baby for Downs. I told her that downs happens in a small percentage of african american babies. She stated that we needed to do a level 2 ultrasound and I told her that wasn't happening because my insurance didn't cover it. Then she yelled at me in the office that she knew best and I walked out. </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34038 Wed, 14 Dec 2011 14:59:52 +0000 LAGS 34038@https://boards.hellobee.com/ <p>No this was the quad screen blood work. I opted against the NT scan. </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34031 Wed, 14 Dec 2011 14:48:23 +0000 yoursilverlining 34031@https://boards.hellobee.com/ <p>Is this result from your NT scan? Did you have an NT scan? </p> https://boards.hellobee.com/topic/anyone-else-have-an-elevated-risk-for-downs-syndrome#post-34029 Wed, 14 Dec 2011 14:46:27 +0000 LAGS 34029@https://boards.hellobee.com/ <p>I just got off the phone with my OB. My blood work came back from my quad screen with a 1/130 risk of downs syndrome. </p> <p>We're scheduling a level two ultrasound with an office in a different city, but until then... I guess I'm just looking for a little reassurance. My OB (and my common sense) said this is all too common and there's often no problem at all, but I'm just wondering if anyone here has had their testing come back with an elevated risk, what if any further testing you decided to do and of course if the screen was accurate in the end? </p>