https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Mon, 27 Apr 2026 15:55:12 +0000 https://boards.hellobee.com/topic/bfp-amp-possible-lupus-or-hashimotos#post-2911224 Fri, 06 Mar 2020 05:51:14 +0000 DamnedSpot 2911224@https://boards.hellobee.com/ <p>@MoonMoon: thank you! :heart: </p> https://boards.hellobee.com/topic/bfp-amp-possible-lupus-or-hashimotos#post-2911223 Fri, 06 Mar 2020 05:49:46 +0000 DamnedSpot 2911223@https://boards.hellobee.com/ <p>@Baby Boy Mom: thank you for these suggestions, I saw a few things connecting diet with my problems. I'd love it if you would share that link! </p> https://boards.hellobee.com/topic/bfp-amp-possible-lupus-or-hashimotos#post-2911213 Thu, 05 Mar 2020 19:21:27 +0000 MoonMoon 2911213@https://boards.hellobee.com/ <p>@DamnedSpot: I just want to say congratulations on your bfp!</p> <p>I understand your stress and your concerns, especially with your previous pregnancy. I know how it feels as a patient to have a Dr or practice that doesn't seem concerned at all. I think finding the right Dr is more important than their specialty, having that trust that they understand your worry, understand your condition, and know how to address both. I wish you luck! </p> https://boards.hellobee.com/topic/bfp-amp-possible-lupus-or-hashimotos#post-2911212 Thu, 05 Mar 2020 18:47:34 +0000 Baby Boy Mom 2911212@https://boards.hellobee.com/ <p>First of all, I am not a doctor, but I did want to say that since all the conditions you mentioned are autoimmune, you may want to look into a gut healing protocol. A functional medicine practice may be a good place to get an overview- ours has an OB as part of the practice. I can wall you a link if that's helpful. Otherwise, you might want to check out the Weston A Price pregnancy diet. I found I felt best when I was following it, and it gives you something to "do", if you know what I mean. good luck! </p> https://boards.hellobee.com/topic/bfp-amp-possible-lupus-or-hashimotos#post-2911205 Thu, 05 Mar 2020 16:29:46 +0000 DamnedSpot 2911205@https://boards.hellobee.com/ <p>@MrsJBeeG: @Sams Mom: thank you both for this feedback, it's helping me get a better picture of what this all can mean during pregnancy.</p> <p>I think I'll take that advice, @MrsJBeeG, and push a bit more in the short term, the rheumatologist was already willing to add a few tests to find out more. Then I'll hope that things settle out :goodluck: </p> <p>And at your suggestion, @Sam's Mom, I've reached out to my PCP, I like her and trust her, and will be able to see her more easily than any of my other options! </p> <p>So glad to have this community to turn to :heart: </p> https://boards.hellobee.com/topic/bfp-amp-possible-lupus-or-hashimotos#post-2911192 Thu, 05 Mar 2020 13:16:03 +0000 MrsJBeeG 2911192@https://boards.hellobee.com/ <p>I have hypothyroidism and am 24 weeks pregnant. They discovered my thyroid levels were off during my second pregnancy - it was a blighted ovum ending in miscarriage. They got my levels straightened out with a lot of lab work in the beginning and now I just get tested every trimester for it. I will say my doctor told me this pregnancy that my levels have been under control for a year and so she wasn’t worried about my impact on the pregnancy. </p> <p>So I guess I’m saying be aggressive about testing here in the short run until they get your levels in the normal range and staying in the normal range. Then you can be a little less aggressive with repeat labs and just move into the normal monitoring that I and others have. </p> <p>Congrats on the BFP!!!! :heart: </p> https://boards.hellobee.com/topic/bfp-amp-possible-lupus-or-hashimotos#post-2911190 Thu, 05 Mar 2020 13:13:21 +0000 Sams Mom 2911190@https://boards.hellobee.com/ <p>@DamnedSpot: yes, I was diagnosed with hashimotos (previously hypothyroidism DX 2014) a couple months after my son was born in 2016. I have seen an endocrinologist on and off in this time but generally default to my PCP. During pregnancy my OB manages my thyroid just to streamline everything (but he knows the ideal ranges per trimester, I've heard some doctor's don't really address that). </p> <p>If they can start getting your TSH down sooner than later I would think you'll be ok. High TSH can cause issues with pregnancy, but I also know that I conceived my first with a TSH of 3.1. </p> <p>I've never seen a MFM in either pregnancy. My thyroid antibodies are pretty high too. Like my thyroid peroxidase levels are &gt;600 and thyroglobulin is 224. </p> https://boards.hellobee.com/topic/bfp-amp-possible-lupus-or-hashimotos#post-2911186 Thu, 05 Mar 2020 11:59:05 +0000 DamnedSpot 2911186@https://boards.hellobee.com/ <p>I saw that you delivered your baby, congrats! Thanks for this help, here are a few more specific questions..</p> <p>were you already being treated for it before the pregnancy? My concern is that I'm just starting to figure this out, if my thyroid is doing abnormal things and I'm not yet on meds, is this pregnancy at a really high risk of miscarriage.</p> <p>Did you see an endocrinologist throughout the pregnancy? Or does Ob-Gyn deal with monitoring? Or MFM? </p> https://boards.hellobee.com/topic/bfp-amp-possible-lupus-or-hashimotos#post-2911184 Thu, 05 Mar 2020 11:38:56 +0000 Sams Mom 2911184@https://boards.hellobee.com/ <p>I have hashimotos, and just had a baby 10 days ago. As long as they stay on top of your thyroid meds there isn't anything to worry about in pregnancy. They should be doing blood work in each trimester to check levels and reevaluate your dosage. Feel free to ask any questions at all, because I don't even know where to start. </p> https://boards.hellobee.com/topic/bfp-amp-possible-lupus-or-hashimotos#post-2911178 Thu, 05 Mar 2020 10:31:17 +0000 DamnedSpot 2911178@https://boards.hellobee.com/ <p>This morning, I had a faint positive on a FRER. A week and a half ago, my PCP referred me to a rheumatologist, suspecting lupus (I had an elevated ANA titer). Two days ago, the rheumatologist didn't think it was lupus and ordered a ton of blood work. Yesterday, I got a Thyroid Peroxidase test back with my level at a 25 (9 and below is normal), and an anti-DNA double stranded test back that was negative.</p> <p>In December, at 14 weeks, our NIPT came back positive for Trisomy 21, and at the follow up ultrasound the baby was dead. That event, on top of all these recent results, are creating a perfect storm of stress for me. I am trying to figure out what I should be doing and who I should be talking to.</p> <p>I have a message in at the Ob-Gyn and the Rheumatologist. Last week, Ob-Gyn said to call them with a BFP, they would start to coordinate care with MFM. Two days ago, rheumatologist was very unconcerned about my possible pregnancy concerns, very much blew off those questions, didn't see any cause for concern (in her defense, we were talking before the thyroid test came back).</p> <p>Does anyone have other ideas for what I should be doing? I know not all test results have come back, but I want to be proactive, and I am not a normally pushy person. But this is a baby, and if I have to be pushy to get more of what I need, I will be.</p> <p>But can anyone help me with what I need? Or who I should be pushing harder to help me? Do I need to pursue an appointment with anyone else?</p> <p>Thanks :heart: </p>