https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Thu, 09 Apr 2026 06:46:04 +0000 https://boards.hellobee.com/topic/chiari-1-malformation#post-2924013 Tue, 08 Jun 2021 08:31:59 +0000 MrsSCB 2924013@https://boards.hellobee.com/ <p>I’m sorry, I know this must be stressful! My friend had surgery for this close to a decade ago, and she’s done great since then. Let me know if you’d like me to ask her for resources, or her contact info for you. </p> https://boards.hellobee.com/topic/chiari-1-malformation#post-2923998 Mon, 07 Jun 2021 21:00:22 +0000 Sams Mom 2923998@https://boards.hellobee.com/ <p>Long time no post, life is just crazy in general drastically more so than usual and I hate that I'm coming back under these circumstances... </p> <p>BUT, does anyone have personal experience with a Chiari 1 (adults)? I was very recently diagnosed with a 13 mm herniation, and am very impatiently awaiting my neuro Appointment. I know there is a good chance that I will be referred for decompression surgery. I should NOT have watched that surgery online today. </p> <p>Hazel picture for tax </p> [attach=8928/21/qud3cr.600x450.PXL_20210523_175026719.jpg]