Hellobee Boards Topic: Confession: Despite family history I opted out of the Cystic fibrosis screening.

Hellobee Boards Topic: Confession: Despite family history I opted out of the Cystic fibrosis screening. https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Sun, 26 Apr 2026 06:07:37 +0000 mrs. bird on "Confession: Despite family history I opted out of the Cystic fibrosis screening." https://boards.hellobee.com/topic/confession-despite-family-history-i-opted-out-of-the-cystic-fibrosis-screening#post-265036 Mon, 20 Aug 2012 18:35:19 +0000 mrs. bird 265036@https://boards.hellobee.com/ Not exactly the same, but there is a strong possibility that I have a disorder for which there is no cure (not directly life threatening, but still degenerative), only treatment of symptoms. I've elected not to allow testing for the diagnosis because I don't want to know. DH was aware of the possibility before we were married because I think that is only fair, but otherwise it won't change the plan I have for my life, it will only stress me out to know what's ahead of me. Should there come a time where symptoms interfere with my life to a point that is too much for me to handle, then I will go for testing and look into options for managing them. But if there is nothing that can be done to curb it, so it doesn't seem like a strange choice to me. As long as you're aware of what the possible outcomes, and you are willing to accept whatever cards you are dealt, then sometimes choosing just to live with them is easier than trying to fight them or control them. MsMini on "Confession: Despite family history I opted out of the Cystic fibrosis screening." https://boards.hellobee.com/topic/confession-despite-family-history-i-opted-out-of-the-cystic-fibrosis-screening#post-265004 Mon, 20 Aug 2012 17:57:04 +0000 MsMini 265004@https://boards.hellobee.com/ So, I don't know exactly why I feel the need to confess this, but I think there might be other people who feel like I did/do, so I wanted to put it out there. My cousin had Cystic fibrosis, and passed away from complications following a heart/double lung transplant several years ago. I watched her struggle for her entire life from the breathing difficulties, tiredness and constant illness that pulmonary CF brings. I am an RN, and I work in NICU. Between my education, and my family experience, I am more than aware of what having a CF child entails. When it came time to TTC, me and DH discussed it and decided not to pre-screen for our CF genetic status. We did to the first trimester screening (ultrasound and bloodwork), but that doesn't indicate CF status. I was a little stressed waiting for the metabolic screen results, which were not indicative of CF once Sawyer was born. We decided that regardless of how our genes lined up, we would want to try to conceive our baby naturally, and we wouldn't change our family plans. We thought that in our case not knowing was better, because we would love our baby once it was born regardless of wether or not they had CF. We thought that had we found out we were both carriers, it would be extremely stressful on our relationship, and lead to more stress during pregnancy. I can honestly say that I think we made the best choice. I hope that this helps someone else who might be making the decision to do genetic screening pre TTC.