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<title>Hellobee Boards Topic: DDD Intake Appointment?</title>
<link>https://boards.hellobee.com/</link>
<description>Pregnancy, Baby and Parenting blog, by Hellobee</description>
<language>en</language>
<pubDate>Sun, 05 Apr 2026 10:36:38 +0000</pubDate>

<item>
<title>jhd on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2559042</link>
<pubDate>Mon, 30 May 2016 09:07:25 +0000</pubDate>
<dc:creator>jhd</dc:creator>
<guid isPermaLink="false">2559042@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@lemondrop:   great update! And awesome job, mama! I'm glad you are getting what you need to help your sweet boy!
&#60;/p&#62;</description>
</item>
<item>
<title>twodoghouse on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2559014</link>
<pubDate>Mon, 30 May 2016 06:37:46 +0000</pubDate>
<dc:creator>twodoghouse</dc:creator>
<guid isPermaLink="false">2559014@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@lemondrop:  I'm glad things have been going well! Cam is so lucky to have you as his mom!
&#60;/p&#62;</description>
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<item>
<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2559000</link>
<pubDate>Mon, 30 May 2016 02:47:05 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2559000@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;Cam got his diagnosis this last week- autism spectrum disorder.  His teachers have been running through various evaluations with him over the past month.  It was great to hear little bits here and there of him seeing occupational and physical therapies, that he was meeting with speech and the school psychologist outside of his regular speech times.   &#60;/p&#62;
&#60;p&#62;Almost exactly a year after his first teacher mentioned it to me at a school pickup and our path took a different direction from my original plans, hopes, and expectations. At that time I was so upset about what she said and still reeling from his speech delays, but we have been so lucky to have a great school, teachers, and therapists to work with.  My emotions about it still go up and down depending on the day, but for the most part I'm really good with where we are at right now.  He has made great strides just this month alone, his sentences are getting longer and he is requesting activities for us to do: car wash, legos, riding trains, butterfly garden, and my favorite- hockey game (I wish we could go to the Stanley Cup finals, lol, but we will settle for it on tv!).  &#60;/p&#62;
&#60;p&#62;The actual meetings were great, actually.  I love his teacher and Speech Language Pathologist, I know IEP and MET meetings are usually very high stress for everyone involved, but I get to hear so many details and great stories about him that I have really enjoyed it so far.  To prepare I watched a few workshop presentations on YouTube about successful IEP meetings, rights, and read several handouts our developmental nurse practitioner gave us, and all made me feel a bit apprehensive until we all sat down.  Maybe it's because he is still in preschool or at a special education school, but we don't have a lot of pressure just yet.  &#60;/p&#62;
&#60;p&#62;With his evaluation, he will qualify to see occupational therapy every week and physical therapy every other week when school starts up again.  Speech will still be weekly and his school psychologist will continue to check in on him.  So much of his evaluation showed his biggest challenge is related to a motor planning deficit.  So they gave us summer homework and I'm making activity plans for the summer and researching ideas. Pinterest has been very useful! &#60;/p&#62;
&#60;p&#62;A couple weeks ago I spent a day at a local workshop about a couple types of autism therapy- Floor time and RDI (Relationship Development Intervention).  It was great to hear about the different types of therapies available and to see what fits our family the best. Once we get our state benefits figured out, we will see what is covered and start making plans with a couple of the speakers I met there.  &#60;/p&#62;
&#60;p&#62;I didn't realize that I needed to apply to BOTH Dept of Developmental Disabilities AND Long Term Care.  So a couple days before his school meetings I tracked down Long Term Care for our state and got that rolling.  It took an hour to get through several disconnected numbers and find the right place.  We needed his diagnosis to get them to take us seriously.  We are still waiting for them to schedule his medical evaluation and we have had some interesting coaching from parents, doctors, therapists, and teachers about this one.  &#60;/p&#62;
&#60;p&#62;A few things that have helped me lately:&#60;br /&#62;
*A binder with everything in it.  I have school, pediatrician, developmental, psychologist, private speech, DDD, and Long Term Care, copies of insurance,Social Security card, birth certificate, vaccine records, age milestones, etc  &#60;/p&#62;
&#60;p&#62;*The 100 Day Packet from Autism Speaks &#60;a href=&#34;http://www.autismspeaks.org/docs/family_services_docs/100day2/100_Day_Kit_Version_2_0.pdf&#34; rel=&#34;nofollow&#34;&#62;http://www.autismspeaks.org/docs/family_services_docs/100day2/100_Day_Kit_Version_2_0.pdf&#60;/a&#62;&#60;/p&#62;
&#60;p&#62;*Local autism parent groups- while some have significantly different views over many, many things, it's really nice to have a group of local resources that are familiar with our state system and local doctors and therapists. &#60;/p&#62;
&#60;p&#62;Aside from all that, we are signing up for a few municipal summer activities and trying to have as much fun as we can this summer.
&#60;/p&#62;</description>
</item>
<item>
<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2541445</link>
<pubDate>Wed, 04 May 2016 18:16:14 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2541445@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;Today we had our first meeting with our Support Coordinator with the Dept of Developmental Disabilities, who will be helping us at least until he is 6. (In AZ, they are a branch of Dept of Economic Security and help coordinate the services that families receive- Physical Therapy, Occupational Therapy, Music Therapy, Hippotherapy (horse therapy), Respite Care (taking a break), Speech Therapy, and Habilitation B &#38;amp; M (ABA therapy for younger children with autism), (to my limited understanding so far, of course!)  If we qualify later on she will help us determine what we can use.  &#60;/p&#62;
&#60;p&#62;It went well and she was very helpful, surveying Cam's habits, asking lots of questions, and explaining the next steps in the process.  So far we have been thrilled with the help from the DDD, they have done each step within two weeks of completion of the previous step (our initial application was in February, and here we are at the beginning of May). Our next step is waiting on ALTCS (AZ Long Term Care System) who gives the funding for the services that DDD coordinates for.  Next we will have a financial phone interview asking about trust funds and other accounts in C's name.  Then we have a medical home interview where they will ask questions about him, such as &#34;Can he dress/feed/etc himself&#34; we've already been warned that what they want to know is can we give him directions and he will do it 100% of the time.  Yes, or No, with sometimes considered to be a yes.  &#60;/p&#62;
&#60;p&#62;This is where our school is worried because his Battelle was higher and they are worried this will disqualify us.  We are hoping that the diagnosis will help us qualify, and that they aren't in too big of a hurry so we can get that done first.  Another thing I learned is that the state will cover Autism, but not Asperger's or PDD-NOS.  Still many obstacles out there that could make things more difficult for us.  Fortunately our coordinator said that we can continue to reapply to Long Term and that many that don't qualify at 4 will qualify later at 6 years old.  &#60;/p&#62;
&#60;p&#62;It is always challenging to cover all of our concerns each time we meet someone new.  I realized that I need to make a master list of our concerns/his stereotypical tendencies so I have them at a glance instead of trying to come up with each little piece when asked a question.  I have learned so much from meeting with the developmental nurse practitioner and from meeting with our speech pathologist and school psychologist last week.  Each group helps me learn new things and sets me off for more research.  &#60;/p&#62;
&#60;p&#62;One big thing that was brought up at today's meeting was our end goal.  What are we doing all of this for?  There are so many reasons of course, we want him safe and able to communicate when out in the community, we want him to lead as normal of a life as possible and hopefully go on to higher education, but most of all I just want a happy kid.  I want him to smile and laugh more.  It was a big shock at the end of the meeting, he came over to the couch and gave me a giant hug.  Pretty awesome when I nearly always have to initiate that.
&#60;/p&#62;</description>
</item>
<item>
<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2536328</link>
<pubDate>Thu, 28 Apr 2016 17:48:22 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2536328@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@magnolia:  Thank you!  Every bit of personal experience is helpful!  &#60;/p&#62;
&#60;p&#62;Thankfully the school agreed, it just took some talking :)  He is 4 and 5 months, luckily we can slip this eval in before the end of the school year so both myself and the school are happy for our respective schedules.
&#60;/p&#62;</description>
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<item>
<title>magnolia on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2536305</link>
<pubDate>Thu, 28 Apr 2016 17:21:40 +0000</pubDate>
<dc:creator>magnolia</dc:creator>
<guid isPermaLink="false">2536305@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@lemondrop:  hey just catching  up on your thread. First off, so much love to you for advocating for your child. It is a tireless job. I am a school social worker and in my state and I believe nationally the school is required to do an evaluation at parents request. It is true that most evaluation for ASD happen during &#34;turning 5&#34; evaluations for students who Wil be entering kindergarten the next year. However. I agree with pp if you want it soon you should be able to get it.  How old is your child? Most children are diagnosed between 4-6 years old. I wish you all the best.
&#60;/p&#62;</description>
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<item>
<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2536280</link>
<pubDate>Thu, 28 Apr 2016 17:01:06 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2536280@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@MommySLP:   :heart: Thank you!  Just finished the school portion from today, thanks for keeping up with our story!
&#60;/p&#62;</description>
</item>
<item>
<title>MommySLP on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2536271</link>
<pubDate>Thu, 28 Apr 2016 16:46:14 +0000</pubDate>
<dc:creator>MommySLP</dc:creator>
<guid isPermaLink="false">2536271@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@lemondrop:  so glad things worked out &#38;amp; you're moving forward.  Hope it all goes smoothly &#38;amp; don't let the school district bully you!  I work for school districts, and no matter what, it's our jobs to do what is best for the kids and what they need.  Best of luck with it all.
&#60;/p&#62;</description>
</item>
<item>
<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2536269</link>
<pubDate>Thu, 28 Apr 2016 16:42:23 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2536269@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;I was super nervous about the meeting today, knotted stomach and all.  Luckily our school SLP was her usual bubbly self and the school psychologist is as awesome as everyone promised.  In hind sight I wish I'd made it a point to talk with her way sooner.  &#60;/p&#62;
&#60;p&#62;Initially they made it clear that there was no rush for a diagnosis and they would typically do an evaluation in one year prior to kindergarten since we still have one more year of preschool.  I explained that I felt that we needed more services NOW because of a long list of behavioral and communication concerns.  As well as our DDD home visit next week and making sure that we get his diagnosis by their required 5 years of age (~7 months away) so they can reevaluate him for kindergarten (by my very limited understanding!)  &#60;/p&#62;
&#60;p&#62;At that point they started playing with the calendar and throwing around dates and were on board!  We got it scheduled, his teacher brought him into the meeting since class was over and the psychologist started talking with him.  Upon meeting him, she really started to understand our concerns and agreed that this was the right decision.  And she's going to start meeting with him next week and have his full eval next month.  His SLP was great in that SHE wants to be the one to do his eval instead of passing it on to the summer evaluation group.  &#60;/p&#62;
&#60;p&#62;So now our only big concern is that our case will be thrown out by our state's long term care program if they go into our information before the evaluation.  His Battelle(?) scores are very high, which I guess can disqualify us.  So fingers crossed that they take their sweet time in getting to us.    &#60;/p&#62;
&#60;p&#62;Now to learn about the various acronyms and testing info the school sent me home with.  I definitely feel much better about our school now and really liked the psychologist.  She was very sweet to both of my boys and genuinely cares about our situation.  &#60;/p&#62;
&#60;p&#62;It definitely shows me how important advocating for him is.  He's very smart and very good in his class, which means he falls through the cracks sometimes since he doesn't usually cause any trouble.  There definitely hasn't been a clear path to this point, but I'm going to enjoy the victory today and hope that long term care doesn't get in touch with us soon!
&#60;/p&#62;</description>
</item>
<item>
<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2536267</link>
<pubDate>Thu, 28 Apr 2016 16:41:23 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2536267@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;Great update today :)  Really grateful for my hive support, it's been very helpful on so many levels! We got the school to agree to testing today!  Onward with the novella- &#60;/p&#62;
&#60;p&#62;I left a phone message at school on Monday afternoon asking for more information and dropped off the letter on Tuesday when I took Cam in to school.  I had been hoping to run into our SLP and give her a heads up, but both she and my son's teacher were in meetings that morning.  Our school SLP then gave me a call that afternoon, it was really cryptic and confusing, basically she just asked that we meet up with the psychologist about a half hour before pick up today.  She's very bubbly and cheerful and her call had me really on edge because she wasn't herself and she was obviously holding something back which made me extremely nervous about this meeting.  &#60;/p&#62;
&#60;p&#62;We had our independent speech therapy on Wednesday, and they were super helpful in finding interpretations of DDD's requirements for the evaluation (an IQ test and other evals from a LICENSED psychologist, psychiatrist, or developmental pediatrician) so we got on the state psychology boards and looked up our school psychologist.  &#60;/p&#62;
&#60;p&#62;I was just in a huge funk from taking in the evaluation meeting Monday, the phone call, and feeling stressed about getting everything done by the end of the school year at the potential of being in limbo all summer long and paying full price for our speech therapy another 3 months.  I usually work some evenings, but had this week off, so I just had to get out of the house and take a break.  Luckily my husband understood, so I went out to eat my weight in fish tacos and have a beer and did lesson planning for my real job (coordinating all of this really is a part-time job!).  I just had to get away from all things autism for a few hours as it tends to follow me around day in and day out while I research the crap out of everything.  That's just how I function.  :)
&#60;/p&#62;</description>
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<item>
<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2536247</link>
<pubDate>Thu, 28 Apr 2016 16:21:52 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2536247@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@MommySLP:  This was perfect, thank you!  It really made me look like I had my ducks in a row ;)
&#60;/p&#62;</description>
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<item>
<title>MommySLP on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2533872</link>
<pubDate>Mon, 25 Apr 2016 19:33:49 +0000</pubDate>
<dc:creator>MommySLP</dc:creator>
<guid isPermaLink="false">2533872@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@lemondrop:  I'm glad you are getting some answers and moving forward.  If you would like a psych eval, the school district absolutely has to honor that.  Put it in writing.  Once they have it, they have 15 days to contact you to schedule an assessment and 60 days to conduct the assessment.  Don't let them tell you no---it is absolutely your right.  I hope they don't try to fight you on this!  Here is a copy of AZ special education parental rights.  It's a lot to take in, but it does outline procedures for you.  Hope you continue to get the help &#38;amp; services your son needs &#38;amp; deserves!&#60;/p&#62;
&#60;p&#62;&#60;a href=&#34;http://www.azed.gov/special-education/files/2014/12/procedural-safeguards-rev.-1-2015.pdf&#34; rel=&#34;nofollow&#34;&#62;http://www.azed.gov/special-education/files/2014/12/procedural-safeguards-rev.-1-2015.pdf&#60;/a&#62;
&#60;/p&#62;</description>
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<item>
<title>Mrs Green Grass on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2533831</link>
<pubDate>Mon, 25 Apr 2016 18:40:45 +0000</pubDate>
<dc:creator>Mrs Green Grass</dc:creator>
<guid isPermaLink="false">2533831@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;Big hugs! Glad you have some answers and are on track for getting services...
&#60;/p&#62;</description>
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<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2533820</link>
<pubDate>Mon, 25 Apr 2016 18:16:11 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2533820@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;Another UPDATE:&#60;br /&#62;
Last week we were assigned a coordinator with our state's DDD.  We are still waiting for a couple evaluations through ALTCS (long term care) which is financial and medical evaluations apparently.  The DDD coordinator has set up a home visit with us for next month.  &#60;/p&#62;
&#60;p&#62;Today we had our long awaited Developmental Nurse Practitioner appointment at our pediatrician's office.  We scheduled this back in early Feb, she was booked out until now!  This appointment I was pretty ambivalent about- it felt like a complete waste of time since she couldn't give an official diagnosis and was making us wait so long and our pediatrician couldn't even give us an &#34;at risk&#34; designation, nor were they particularly interested in my concerns about him possibly being on the spectrum. &#60;/p&#62;
&#60;p&#62;Turns out this appointment was worth the wait, there's a good reason she books out 2 months at a time!  Nurse D gave us so much information, explained a lot, and assigned us some goals to complete until we see her again in a couple months.  The boys survived a 2.5 hour appointment in a small room without too much destruction.  Only a few wooden blocks thrown at my head :P &#60;/p&#62;
&#60;p&#62;I had filled out an extensive milestone survey a month ago, so she asked questions about some of those items.  She asked questions from an evaluation for autism spectrum disorders about his typical behaviors.  It was hard!  Some of it is realizing red flags I had missed, but also trying to recall items she was asking about.  Questions about how he typically plays with toys or other children, foods he prefers, etc.&#60;/p&#62;
&#60;p&#62;Upon reviewing the questions, she says he hits the spectrum in multiple areas and that we should proceed with getting a formal diagnosis now rather than waiting until he is older.  She was surprised/not surprised that the school hadn't done an evaluation yet.  She recommended calling and putting a request in writing to have it done before the school year is out and gave me some example letters.  It would be nice to get the school to do it, because our insurance will pay half to none of this depending on where we go.  The cheapest I'm finding is $900, which we can swing if I can cash in some of my vacation time.   :bummed:   &#60;/p&#62;
&#60;p&#62;If the school proves to be difficult, we also have an appointment set up next month with a developmental psychologist that was a referral from another referral that the school recommended. Yeah, confusing.  I will probably keep this appointment even if we get testing through the school because I'm seeing that the more information we have from different sources, the better! &#60;/p&#62;
&#60;p&#62;So a mixed day today- good that our concerns are justified, but not good that they are justified.  I just have to keep reminding myself that autism comes in so many different forms, it's not anywhere near the end of the world.  &#60;/p&#62;
&#60;p&#62;Inspirational quotes have been my gravy lately.  To quote a book I'm currently reading:&#60;br /&#62;
&#34;I'm blessed to have been a part of raising him and my - the big point in this book is that he's not my idealized son. He's not the one I dreamed of, but dear God he's my ideal son.&#34;&#60;br /&#62;
-Ron Fournier, Love That Boy&#60;/p&#62;
&#60;p&#62;&#60;a href=&#34;http://www.npr.org/2016/04/16/474485668/political-columnist-ron-fournier-talks-new-book-love-that-boy&#34; rel=&#34;nofollow&#34;&#62;http://www.npr.org/2016/04/16/474485668/political-columnist-ron-fournier-talks-new-book-love-that-boy&#60;/a&#62;&#60;br /&#62;
*Warning, this story had me driving in tears.  I had to pull over the car because I started balling!  I stopped by the bookstore on my way home.
&#60;/p&#62;</description>
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<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2533812</link>
<pubDate>Mon, 25 Apr 2016 18:01:02 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2533812@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@macintosh:  Super  confusing!  In Arizona, there are three ways you can get a diagnosis- a psychologist, a psychiatrist, and a developmental pediatrician.  A developmental nurse practitioner (who we saw today) can give an &#34;at risk&#34; designation which seems to be needed for state services, further diagnostics in some instances, insurance, and referrals.&#60;/p&#62;
&#60;p&#62;I'm sure as you know from your experiences, you learn a lot as you go and have to advocate for your family's needs!  I'm still not completely clear why we are doing certain steps here, but we go with each recommendation that fits!
&#60;/p&#62;</description>
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<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2533810</link>
<pubDate>Mon, 25 Apr 2016 17:56:57 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2533810@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@MommySLP:  That's actually our next step, great recommendation!  :)  The school has never really made a move or offer towards evaluating him for autism, even though both his teacher and SLP recommend it.  The appointment today with our developmental nurse practitioner gave us a good reminder that we have to push and advocate for everything with the school and state.  &#60;/p&#62;
&#60;p&#62;When I talked with DDD at the previous appointment, they said the school psychologist may not have the appropriate licensing to do a diagnosis.  She gave us information to find out through our state's board of psychology, and our school's psychologist is in fact qualified for this.
&#60;/p&#62;</description>
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<title>jhd on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2519581</link>
<pubDate>Fri, 08 Apr 2016 09:51:37 +0000</pubDate>
<dc:creator>jhd</dc:creator>
<guid isPermaLink="false">2519581@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@lemondrop:  glad your appointment energy well. i hope you continue to get the support you need!
&#60;/p&#62;</description>
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<title>macintosh on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2516639</link>
<pubDate>Tue, 05 Apr 2016 23:13:49 +0000</pubDate>
<dc:creator>macintosh</dc:creator>
<guid isPermaLink="false">2516639@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@lemondrop:  I'm not an expert in the subject but my mom is a practicing clinical psychologist and she does diagnostic testing for autism.  I would think you could get that diagnosis directly from a psychologist, is that not the case?  Sounds so confusing   :heart:
&#60;/p&#62;</description>
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<title>MommySLP on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2516598</link>
<pubDate>Tue, 05 Apr 2016 22:02:18 +0000</pubDate>
<dc:creator>MommySLP</dc:creator>
<guid isPermaLink="false">2516598@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@lemondrop:  glad you are getting good support and the meeting went well. While I know the actual diagnosis needs to come from a professional outside the school, does your speech therapist (I'm assuming he's getting speech services through your local school?) think a school psychologist can be of help/complete an assessment?  Although it wouldn't be a &#34;diagnosis&#34; they can give him an eligibility of autism at school, which may help with extra support/services in the future.  Sorry if you've done all this, etc, I wasn't sure!  I'm a speech therapist &#38;amp; we work closely with our school psychologists.
&#60;/p&#62;</description>
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<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2516507</link>
<pubDate>Tue, 05 Apr 2016 20:00:20 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2516507@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;UPDATE:&#60;br /&#62;
The intake appointment went well and was really simple.  Really just signing papers, answering questions, copying his birth certificate, and showing that there is an actual child involved.  &#60;/p&#62;
&#60;p&#62;We still aren't officially &#34;in&#34; yet, but because he's four, he's qualified for an &#34;at risk&#34; designation, which means they have to give him an evaluation.  &#60;/p&#62;
&#60;p&#62;Now we are waiting for two additional interviews, one financial, and one home visit.  The lady was amazing, such a help in answering questions about things that still don't make complete sense to me.  She was very supportive, offered sound advice that echoed what our school speech therapist recommended, which I'll go into later after more research.  She had even called to set up this appointment at 5:30pm on Good Friday, she said she tries to catch people when she can actually talk with them.  Just amazing!  &#60;/p&#62;
&#60;p&#62;Now to think out loud about my plan for now...&#60;br /&#62;
Our next step is to wait for these two interviews, whenever that may be, from a different branch- Arizona Long Term Care Systems ;) I did learn that we will need to get a formal diagnosis completed by 5 years since they do re-determination of needs at 6.  &#60;/p&#62;
&#60;p&#62;This process is so confusing, there are so many ways to go about diagnostics.  Our school and pediatrician don't offer it, so we need to look outside of them. Pretty much everyone I've talked with have gone through developmental pediatricians for diagnostics.  I am pursuing both a psychologist and developmental pediatrician at the moment.  We were referred to a developmental psychiatrist by our school, but he was booked and referred us to a developmental psychologist since we aren't looking for drugs at this point.  We will need to have an IQ test from a psychologist submitted to the state, and our pediatrician, after MUCH nagging finally referred us to their developmental nurse practitioner (then had a 10 week waitlist for an appointment at the end of this month) for an &#34;at risk designation&#34; (which we apparently already got from the DDD) who will most likely THEN refer us to a developmental pediatrician for an actual diagnosis.  I'm still pretty stunned that our state benefits has been going smoother (knock on wood) than working with our actual pediatrician.
&#60;/p&#62;</description>
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<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2511595</link>
<pubDate>Thu, 31 Mar 2016 12:45:42 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2511595@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@Mrs. Tiger:  Great idea, thank you!  I'll definitely make a list of concerns so I don't forget and kick myself later.  I have a big binder of his records from school, speech therapy, his pediatrician, etc.  I've been collecting videos of some of those behaviors that make it more obvious if he decides to be extra good and shy on Tuesday.  I don't like seeing them, but they may be key to get the response we need. &#60;/p&#62;
&#60;p&#62;My family was worried about overdiagnosis, and it is overwhelming at the thought of having a diagnosis follow him when he's older, but where we are at now I think it's the right decision to pursue to get more help.  &#60;/p&#62;
&#60;p&#62;Also a HUGE thanks to mamapink for her blog posts and instagram &#38;lt;3 and Mrs. Twine for her blog posts and amazing friendship.  I'm a lucky mama!
&#60;/p&#62;</description>
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<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2511581</link>
<pubDate>Thu, 31 Mar 2016 12:35:52 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2511581@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@jhd:   @twodoghouse:  @twodoghouse:  @mrsjyw:  @autumnlove:  Thank you!   :heart: &#60;/p&#62;
&#60;p&#62;Sounds like this may be a good guest blog post eventually.  I'm learning that there are so many routes you can take!  One day at a time....
&#60;/p&#62;</description>
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<title>autumnlove on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2510974</link>
<pubDate>Wed, 30 Mar 2016 22:26:04 +0000</pubDate>
<dc:creator>autumnlove</dc:creator>
<guid isPermaLink="false">2510974@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;Hugs. Hope everything goes well.
&#60;/p&#62;</description>
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<title>mrsjyw on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2510965</link>
<pubDate>Wed, 30 Mar 2016 22:08:02 +0000</pubDate>
<dc:creator>mrsjyw</dc:creator>
<guid isPermaLink="false">2510965@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;Hugs!! Hope it all goes smoothly!
&#60;/p&#62;</description>
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<title>twodoghouse on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2510958</link>
<pubDate>Wed, 30 Mar 2016 21:41:49 +0000</pubDate>
<dc:creator>twodoghouse</dc:creator>
<guid isPermaLink="false">2510958@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;Hugs, friend. I hope the appointment goes well.  :heart:
&#60;/p&#62;</description>
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<title>Mrs. Tiger on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2510925</link>
<pubDate>Wed, 30 Mar 2016 20:48:26 +0000</pubDate>
<dc:creator>Mrs. Tiger</dc:creator>
<guid isPermaLink="false">2510925@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;Also no advice but good luck! I find it helpful to jot down things you want to be sure to mention ahead of time. I think docs are often understanding about getting a diagnosis to get services - I think D was diagnosed with CP primarily to get the needed PT.  :goodluck:
&#60;/p&#62;</description>
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<title>jhd on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2510919</link>
<pubDate>Wed, 30 Mar 2016 20:38:45 +0000</pubDate>
<dc:creator>jhd</dc:creator>
<guid isPermaLink="false">2510919@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@lemondrop:  No advice, but I hope you get what you need for your LO!  :heart:
&#60;/p&#62;</description>
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<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2510898</link>
<pubDate>Wed, 30 Mar 2016 20:15:02 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2510898@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;@LovelyPlum:  Thanks love!  In a way it would be great to get a diagnosis, in other ways it's of course very hard too.  The paperwork has been a beast for all of this!  &#60;/p&#62;
&#60;p&#62;I'm worried he won't qualify to a level that they will help, so I feel lucky that we got the last appointment of the day, so he won't be at his best by that time of day.  He's so good that he can be tricky to express the behaviors we are concerned about.  &#60;/p&#62;
&#60;p&#62;Mainly I need diagnostics and I need insurance to cover this so we can broaden the therapies he's getting, so fingers crossed!
&#60;/p&#62;</description>
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<item>
<title>LovelyPlum on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2510890</link>
<pubDate>Wed, 30 Mar 2016 20:05:09 +0000</pubDate>
<dc:creator>LovelyPlum</dc:creator>
<guid isPermaLink="false">2510890@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;Nothing to add, other than :heart:
&#60;/p&#62;</description>
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<title>lemondrop on "DDD Intake Appointment?"</title>
<link>https://boards.hellobee.com/topic/ddd-intake-appointment#post-2510881</link>
<pubDate>Wed, 30 Mar 2016 19:53:06 +0000</pubDate>
<dc:creator>lemondrop</dc:creator>
<guid isPermaLink="false">2510881@https://boards.hellobee.com/</guid>
<description>&#60;p&#62;We are in the middle of setting up autism testing/diagnostics for Cameron.  I just found out that we qualified for an intake appointment with the Department of Developmental Disabilities next week.  I know this varies quite a bit from state to state, but I haven't found many details online about what to expect.  Does anyone have any personal experiences to share about the process?  HB has a great blog entry about it, but I'd love to hear more experiences from those regarding autism or chronic health.
&#60;/p&#62;</description>
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