https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Sun, 31 May 2026 14:57:00 +0000 https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2091230 Mon, 02 Mar 2015 11:57:28 +0000 LuLu Mom 2091230@https://boards.hellobee.com/ <p>The cartilage behind my knee caps on both knees harden like bone, so they start to grind and cause pain. Every few years I've had to go and get them scoped out and smoothed down so it doesn't grind. I've had 4 surgeries in 10 years. Doctors can't explain it, says it's very rare. I'll most likely get my knees replaced in my 40s/50s to prevent this. </p> <p>I have to be careful in what exercises I do, lunges/squats are out of the question, and running just is comical. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2091074 Mon, 02 Mar 2015 10:45:53 +0000 .twist. 2091074@https://boards.hellobee.com/ <p>@travellingbee: I had a friend who was allergic to the cold!</p> <p>My weird one is that I'm allergic to the birth control pill. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2091068 Mon, 02 Mar 2015 10:43:47 +0000 MrsHoneyC 2091068@https://boards.hellobee.com/ <p>@MamaPhoenix: @sandy: @HappyBluebird: I created a thread in 'your health' titled Graves' disease if you ladies want to have a chat, went into detail a little more of my diagnosis and treatment. :happy: </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2090837 Mon, 02 Mar 2015 09:11:31 +0000 californiadreams 2090837@https://boards.hellobee.com/ <p>@travellingbee: i had a friend in elementary school who was allergic to cold (she would break out in hives too) and she also had to deal with people looking at her like she was crazy. And she was sometimes perceived as getting "special treatment" because she got to stay inside at recess and lunch in the winter as needed. Since I was her BFF though, I often got to stay inside with her to keep her company so I was happy :). I don't know if she still has it, but will ask her the next time we speak, i am curious now. I also have a patient at work who is allergic to the cold. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2090822 Mon, 02 Mar 2015 09:07:03 +0000 ValentineMommy 2090822@https://boards.hellobee.com/ <p>@photojane: I have this too. Mine used to only be on my upper arms, but since my first pregnancy, I have it on my upper legs too. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2090682 Mon, 02 Mar 2015 07:22:45 +0000 Emilia80 2090682@https://boards.hellobee.com/ <p>@ladybee: I think I have this too! Not diagnosed though. I have issues with body temp. And when I'm cold I turn blue. Or when I'm hot my hands turn red. I also have wrinkles on the tips of my fingers like they've been under water for so long but they weren't. It look disgusting and makes me feel so old. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2090681 Mon, 02 Mar 2015 07:20:14 +0000 Emilia80 2090681@https://boards.hellobee.com/ <p>I have FND ( functional neurological disorder) which is /was known as conversion disorder ! This is relatively knew to me as recently diagnosed. Was in a car accident in oct 2013 and developed anxiety/ severe panic attacks which led to FND. They say it's a psychogenic condition but I beg to differ. Symptoms are, paralysis through my whole body starting from my neck, essential tremors, loss of voice, weakness, I turn blue, I feel ice cold then few hours later will turn to burning like fire, heaviness, sometimes I feel like I'm stuck in my own body. Very hard to understand and explain. Am still learning to accept this condition. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2090680 Mon, 02 Mar 2015 07:16:12 +0000 HappyBluebird 2090680@https://boards.hellobee.com/ <p>@photojane: I believe I have this. I've never been to a Dr to confirm. I get it on my upper arms and thighs. I've heard from others that also haven't been able to get rid of it so I've dragged my feet going to the dermatologist. </p> <p>@MrsHoneyC: I'm 30 and no LOs yet for me, currently working on it. I was 24 or 25 when I was diagnosed. I'm not sure how many others there are besides us 4 but I'd join a Graves thread for people with questions </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2090676 Mon, 02 Mar 2015 07:03:08 +0000 travellingbee 2090676@https://boards.hellobee.com/ <p>@ladybee: my MIL has that. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2090671 Mon, 02 Mar 2015 06:48:34 +0000 ladybee 2090671@https://boards.hellobee.com/ <p>Raynaud's Syndrome. My understanding is that when I'm cool or cold my blood constricts to my core so my nose, fingers, toes, and lips turn purple and go numb. I feel like it makes my chest hurt but that could be in my head lol. Not life threatening. I'm in Ohio so winters are cold, I just need to bundle. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2090615 Sun, 01 Mar 2015 22:54:06 +0000 MrsHoneyC 2090615@https://boards.hellobee.com/ <p>@MamaPhoenix: @sandy: @HappyBluebird: Ih my goodness hello fellow Graves' disease ladies !!! I'm actually excited to have found you. How's everyone feeling these days ? My synthroid has been really off lately and hard to get into a good place so I've been so bone tired, especially after chasing around my 15 month old. </p> <p>Do you ladies have kids ?? How old. Haha I feel like we need a new thread I have so many questions ! I never ever meet anyone with graves. :heart: :shocked: </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2090564 Sun, 01 Mar 2015 22:04:03 +0000 photojane 2090564@https://boards.hellobee.com/ <p>I have keratosis pilaris. It's when your body makes excess keratin that clogs your pores, and results in little white/red bumps. Some people have it all over, but I only have it on my upper arms. "They" say it's treatable, but I've never been able to get rid of it. I used to be self-conscious about it, but it really doesn't bother me at all anymore. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2090518 Sun, 01 Mar 2015 21:14:16 +0000 Mae 2090518@https://boards.hellobee.com/ <p>I have ichthyosis vulgaris, which is a genetic skin disease. Basically my body doesn't shed dead skin cells on its own like most people's do, so dead skin builds up. There is no cure and no real treatment-- just lots of exfoliation and lotion. Mostly it just looks to people like I have dry skin and don't manage it terribly well (which is just somewhat annoying bc I DO... it would be far far worse if I didn't!). The worst part is that my hands and feet crack and bleed a lot. The best thing for me is getting professional pedicures as often as possible because it is really hard to stay on top of at home, but it's super annoying because literally every single time I go the nail tech is like "ummm you should try putting lotion on your feet" and I don't want to get into the whole thing of "ummm I do like three times per day but I have a genetic skin condition" because that's annoying so I just smile and nod. So yea. It's somewhat painful where my hands and feet are constantly cracked but otherwise just slightly embarrassing and annoying. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2090503 Sun, 01 Mar 2015 20:51:02 +0000 HappyBluebird 2090503@https://boards.hellobee.com/ <p>@MrsHoneyC: @MamaPhoenix: @sandy: I also have Graves disease. Luckily I was able to take methimazole to get it into remission. I'm always worried it will come back but it's been about 2 years now so I'm hoping it stays that way for awhile. </p> <p>I knew Missy Elliott had Graves but I didn't know about Sia </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2089919 Sun, 01 Mar 2015 00:46:22 +0000 sandy 2089919@https://boards.hellobee.com/ <p>@MrsHoneyC: @MamaPhoenix: another one with Graves Disease. Diagnosed when I was 24 and did thyroid ablation via 2 rounds of radioactive iodine </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2089906 Sat, 28 Feb 2015 23:54:37 +0000 MamaPhoenix 2089906@https://boards.hellobee.com/ <p>@MrsHoneyC: me too! I just had my total thyroidectomy back in Oct. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2089835 Sat, 28 Feb 2015 20:47:15 +0000 MrsHoneyC 2089835@https://boards.hellobee.com/ <p>I have had Graves' disease (and autoimmune disease) since I was 12 years old. I had a total thyroidectomy 5 years ago. It's usually a disease for people mostly women 30-50 years old.</p> <p>Fun fact : it's the same disease that singers SIA and missy Elliot have. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2089683 Sat, 28 Feb 2015 16:51:40 +0000 MrsMccarthy 2089683@https://boards.hellobee.com/ <p>Sebborhic dermatitis over here. Causes dry scaly patches usually on my scalp ears and eyebrows. I can control it really well usually but when I'm pregnant it's always a bit harder because I get it around my hairline in the front. It went away though a bit after birth last time so I'm hoping it will once again. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2089673 Sat, 28 Feb 2015 16:32:05 +0000 littlejoy 2089673@https://boards.hellobee.com/ <p>@jedeve: I have IC too. Mine is in remission after having my baby, but this morning I'm having symptoms. I feel it sneaking back in. :( I feel for you. It's so hard to explain to people, and whenever you say "bladder condition", I'm sure people think I just pee myself. I wish. The pain is horrible. :(</p> <p>Have you done any of the treatments with the catheter medication? I was due to start it the day I got my BFP, but the doctor decided to hold off.</p> <p>I also have chilblains/pernio, which is essentially like spots of frost bite on my feet. It's a circulation issue. I had vasospasms in my nipples after baby was born, and I think this is all related. Blah. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2089656 Sat, 28 Feb 2015 16:11:19 +0000 Torchwood 2089656@https://boards.hellobee.com/ <p>@jedeve: I have IC too, but it's milder than yours sounds like. I didn't know that about pregnancy/breastfeeding. Might explain why i haven't had any flair ups for so long, since I've been pregnant more than not for 2 years now! </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2089533 Sat, 28 Feb 2015 12:51:54 +0000 Mrs. Microscope 2089533@https://boards.hellobee.com/ <p>@travellingbee: I swear by 10mg Zyrtec. I actually buy the generic at Costco, where 300 tablets costs the same as 15 of the name brand. Claritin doesn't do much for me. And Zyrtec is safe for pregnancy and breastfeeding! I will rarely still get hives if I get SUPER COLD, usually on my knuckles and elbows, sometimes my neck, but they subside quickly if I warm up. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues/page/2#post-2089424 Sat, 28 Feb 2015 09:34:52 +0000 brownie 2089424@https://boards.hellobee.com/ <p>@Charm54: @lamariniere: I swear by tissue tees which I used to buy at target. I also found a nice pair of light wetsuit pants and booties for things like the beach and water parks. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues#post-2089377 Sat, 28 Feb 2015 08:30:11 +0000 travellingbee 2089377@https://boards.hellobee.com/ <p>@Cherrybee: ugh! Poor thing!! </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues#post-2089319 Sat, 28 Feb 2015 01:57:02 +0000 Cherrybee 2089319@https://boards.hellobee.com/ <p>My tongue swells and blisters when I get stressed. Bouts can last months at a time, with new blisters appearing as others heal. Its super painful. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues#post-2089317 Sat, 28 Feb 2015 01:47:29 +0000 lamariniere 2089317@https://boards.hellobee.com/ <p>@brownie: @Charm54: I have PLE too! I have to be extremely cautious at the beginning of summer and keep my arms covered since I get it on my elbows and upper arms. I haven't gotten it in the last two years though, so I think my precautions are paying off. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues#post-2089305 Sat, 28 Feb 2015 01:02:14 +0000 blackbird 2089305@https://boards.hellobee.com/ <p>More unattractive than weird, but I have a rare skin disease called Gougerot-Carteaud syndrome. My dermatologist has only seen a couple cases in his career. I can't treat it while pregnant or breastfeeding, unfortunately! But it doesn't bother me much, but it does cause weird patterns on my body! </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues#post-2089264 Fri, 27 Feb 2015 22:28:43 +0000 travellingbee 2089264@https://boards.hellobee.com/ <p>@PinkElephant: yay we can all be in a sideshow together ;) that's great it went away! I hope it doesn't come back for you like mine has. Grrrr! </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues#post-2089256 Fri, 27 Feb 2015 22:18:45 +0000 PinkElephant 2089256@https://boards.hellobee.com/ <p>@travellingbee: @mrbee: @mrs. Microscope: wow! I've never met anyone else allergic to the cold like me! Until I was about 20. I got horrible hives all over my body when I was a child exposed to even a slight temperature drop, like getting out of a pool. I felt like an absolute circus sideshow. As a teen it tapered down to hives on my joints (knuckles, knees, elbows, wrists) when exposed to very cold air or water, and now in my early 30s I don't get them at all. I thought that they might come back in pregnancy, but they didn't. Though to be fair I lived in a really warm place while pregnant with both girls.</p> <p>Oddly, in her 40s my older sister has started to get them. She was never allergic to the cold before this. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues#post-2089237 Fri, 27 Feb 2015 21:58:33 +0000 KT326 2089237@https://boards.hellobee.com/ <p>Most people get cold sores on their mouth, I get them on my cornea! Thankfully I've only had it three times but it has caused scarring on my cornea and could potentially lead to major eye problems later in life. My opthamalogist has me on an anti viral for the foreseeable future to hopefully prevent any more outbreaks. </p> https://boards.hellobee.com/topic/do-you-have-any-weird-medical-conditionsissues#post-2089234 Fri, 27 Feb 2015 21:53:33 +0000 Smurfette 2089234@https://boards.hellobee.com/ <p>@travellingbee: I haven't ever talked to a doctor about it but my hands and ears itch too. So weird! And my DH wonders why I have no desire to go skiing. </p>