https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Tue, 12 May 2026 02:53:04 +0000 https://boards.hellobee.com/topic/feeding-tube#post-2852379 Sat, 20 Oct 2018 19:53:59 +0000 Ms. RV 2852379@https://boards.hellobee.com/ <p>@anonysquire: Do they have a vent bag on him? That should be handling most of the gas. Hopefully he has a quick recovery! </p> https://boards.hellobee.com/topic/feeding-tube#post-2852347 Sat, 20 Oct 2018 11:40:36 +0000 Mrs. Tiger 2852347@https://boards.hellobee.com/ <p>Hi there! Hope recovery from surgery goes well. My son D has had a g tube for 5 years, I blogged a lot about it in the first 2 years. Please feel free to ask me any specific questions and I'll try to help. Don't feel guilty, you are making the best choices you can!</p> <p><a href="http://www.hellobee.com/2015/02/09/happy-feeding-tube-awareness-week/" rel="nofollow">http://www.hellobee.com/2015/02/09/happy-feeding-tube-awareness-week/</a> </p> https://boards.hellobee.com/topic/feeding-tube#post-2852299 Fri, 19 Oct 2018 21:36:25 +0000 jhd 2852299@https://boards.hellobee.com/ <p>@anonysquire: I hope he feels better very soon. You are an amazing mama. ❤️❤️ </p> https://boards.hellobee.com/topic/feeding-tube#post-2852298 Fri, 19 Oct 2018 21:33:41 +0000 SugarMaple 2852298@https://boards.hellobee.com/ <p>@anonysquire: It's so hard when to see our kids miserable. He looks so sweet, hoping he feels better soon. Sending all the good thoughts to your family!!! </p> https://boards.hellobee.com/topic/feeding-tube#post-2852291 Fri, 19 Oct 2018 20:17:00 +0000 anonysquire 2852291@https://boards.hellobee.com/ <p>Rocky got his gtube today. He’s miserable. I’m going to try and get him up in a little bit for a walk to help with some of the trapped gas. </p> [attach=1857/18/pgvi8c.450x600.2946EE38-34B8-402D-9CB4-533D8134D99E.jpeg] https://boards.hellobee.com/topic/feeding-tube#post-2852083 Thu, 18 Oct 2018 14:29:51 +0000 Ms. RV 2852083@https://boards.hellobee.com/ <p>@anonysquire: I would definitely advocate for a solid food test. You don't want him to become sensitive to taking things in by mouth. </p> https://boards.hellobee.com/topic/feeding-tube#post-2851535 Tue, 16 Oct 2018 11:29:31 +0000 anonysquire 2851535@https://boards.hellobee.com/ <p>@snowjewelz: hi! Thank you!!! Life got busy after my 3rd was born :) And then 10 months after that we added our foster daughter so it’s just been crazy haha! </p> https://boards.hellobee.com/topic/feeding-tube#post-2851533 Tue, 16 Oct 2018 11:28:44 +0000 anonysquire 2851533@https://boards.hellobee.com/ <p>@Ms. RV: awesome info!! Rocky is 20 months so maybe they will do a solid food test at the hospital? He is a great eater and I did tell them that I am concerned that his eating will drop off and I want to avoid that! He’s 13 pounds now so I will make sure to keep an eye on his weight for a new button. My 3.5yr old got his August 10th and hasn’t gained weight yet, so who knows if Rocky will be the same haha. </p> https://boards.hellobee.com/topic/feeding-tube#post-2851519 Tue, 16 Oct 2018 11:06:00 +0000 Ms. RV 2851519@https://boards.hellobee.com/ <p>@anonysquire: At our hospital it is ENT that tries to determine the reason for aspiration so I guess that would be the same? Did they do a solid food swallow test or just liquids? If he fails for solids and liquids he will probably just be on formula but if he passes the cookie test then probably either water or formula for hydration/supplemental nutrition. G is only four months so we haven't gotten to cookies yet, but I asked speech therapy a million questions when he was being seen by them. So it might be completely different in your neck of the woods.</p> <p>Infinity pumps are awesome. So nice and little. </p> <p>Oh.. and one thing that they didn't tell me until yesterday... DS went from 7lbs to 15lbs since he got his Mic-Key and apparently every 5lbs you should get a new size when they are little. I would imagine your youngest would fall into a similar thing where if he gets big enough he would need a new size. </p> https://boards.hellobee.com/topic/feeding-tube#post-2851513 Tue, 16 Oct 2018 10:53:30 +0000 snowjewelz 2851513@https://boards.hellobee.com/ <p>Just wanted to say hi, haven't seen you around here in a while! Sending you all the love :heart: He is so cute and you are a great mom :heart: </p> https://boards.hellobee.com/topic/feeding-tube#post-2851502 Tue, 16 Oct 2018 09:59:08 +0000 anonysquire 2851502@https://boards.hellobee.com/ <p>@LAZB: thank you! I feel like I’m failing haha. </p> https://boards.hellobee.com/topic/feeding-tube#post-2851501 Tue, 16 Oct 2018 09:58:49 +0000 anonysquire 2851501@https://boards.hellobee.com/ <p>@Ms. RV: While they out the tube in they are doing a couple of scopes to see if they can find a reason. He had his first swallow study in July and failed that. So he has a aerodigestive team, ENT, Pulmonology and GI, and they are all following him for this issue. But pulmonology recently bowed out. No idea why. So I guess ENT will try and find the reason for the aspiration? I’m pretty frustrated with his pulmo, after my sons sleep study where he found out he has central sleep apnea he told us, “see you in a year” and offered no solution to the sleep apnea. Actually a different doctor had to order oxygen and cpap for him. Anyways, good times. We have the infinity pump for my older son. One thing I was wondering though, if it’s just for aspiration will he still be in formula? Or won’t I just give him water through the tube when he’s thirsty and with meals and such? </p> https://boards.hellobee.com/topic/feeding-tube#post-2851453 Tue, 16 Oct 2018 05:49:59 +0000 Mrsbells 2851453@https://boards.hellobee.com/ <p>:heart: </p> https://boards.hellobee.com/topic/feeding-tube#post-2851445 Tue, 16 Oct 2018 04:42:35 +0000 Ms. RV 2851445@https://boards.hellobee.com/ <p>@anonysquire: DS has a g tube for aspiration. He had it placed twelve weeks ago just changed the button yesterday. </p> <p>Do they know the cause of your DS's aspiration? G has vocal cord paralysis as his cause but last swallow study suggested maybe it is now more of a poor suck-swallow-breathe coordination (though his left cord is still paralyzed).</p> <p>We are hopefully getting a new swallow study next week but I am less than optimistic it will go well.</p> <p>Do you have an Enteralite or a Kangaroo Joey pump? We had an Enteralite in the hospital but have a Joey at home and I hope you have an Enteralite. I can't imagine a 20 month old dealing with the behemoth Joey on their back. </p> https://boards.hellobee.com/topic/feeding-tube#post-2851438 Tue, 16 Oct 2018 00:07:16 +0000 LAZB 2851438@https://boards.hellobee.com/ <p>Oh man, that would be stressful, but you aren’t failing, you’re doing great getting things done that need to happen. Big hugs mama! </p> https://boards.hellobee.com/topic/feeding-tube#post-2851432 Mon, 15 Oct 2018 22:34:16 +0000 anonysquire 2851432@https://boards.hellobee.com/ <p>@ALV91711: thank you!!! </p> https://boards.hellobee.com/topic/feeding-tube#post-2851428 Mon, 15 Oct 2018 21:46:49 +0000 ALV91711 2851428@https://boards.hellobee.com/ <p>No advice or experience, just wanted to send some hugs and love your way. He sure is a cutie! </p> https://boards.hellobee.com/topic/feeding-tube#post-2851423 Mon, 15 Oct 2018 21:16:26 +0000 anonysquire 2851423@https://boards.hellobee.com/ <p>@Sams Mom: haha! Ya, I’m there too :) Thanks!! My little guy has dwarfism and some other medical issues so I joined that thread :) </p> https://boards.hellobee.com/topic/feeding-tube#post-2851422 Mon, 15 Oct 2018 21:14:09 +0000 Sams Mom 2851422@https://boards.hellobee.com/ <p>Oops, looks like you already know about it. Hope everything goes well with the surgery. </p> https://boards.hellobee.com/topic/feeding-tube#post-2851421 Mon, 15 Oct 2018 21:11:58 +0000 Sams Mom 2851421@https://boards.hellobee.com/ <p>I have no experience with it, but I've seen g tubes mentioned frequently on this thread</p> <p><a href="http://boards.hellobee.com/topic/chronic-roll-call" rel="nofollow">http://boards.hellobee.com/topic/chronic-roll-call</a> </p> https://boards.hellobee.com/topic/feeding-tube#post-2851419 Mon, 15 Oct 2018 21:06:12 +0000 anonysquire 2851419@https://boards.hellobee.com/ <p>My 2nd son is having surgery this week to get a gtube placed in his belly. Even though we were told that he would need a feeding tube in the future, at birth, it feels like a big old fail. My oldest son has a feeding tube for a completely different reason (eating disorder related) and this son is getting one because he aspirates every time he drinks. Anyways I just feel like a crappy mom. For sure our little life could be so much harder!! But I do feel kind of worn out lately, haggard haha. </p> <p>Any mamas have kids with feeding tubes? And does anyone have one just for aspiration issues? </p> [attach=1857/18/pgo5uc.472x600.DCBABF9D-29FD-42E7-9D89-BB5AEEF682A7.jpeg]