https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Thu, 04 Jun 2026 09:35:18 +0000 https://boards.hellobee.com/topic/hemangioma#post-2786638 Wed, 15 Nov 2017 15:18:07 +0000 Boopers 2786638@https://boards.hellobee.com/ <p>Thanks everyone for your replies!</p> <p>Update: We were referred to a plastic surgeon at the local children's hospital by our pedi. The plastic surgeon frequently sees patients with hemangiomas. His recommendation based on the location of his hemangioma is to start propranolol so we are starting that on Thanksgiving. He explained that if the hemangioma were somewhere on his trunk he would leave it alone without treatment but because it is on his face he wants to treat it. He said that the skin on your chin is thicker than the rest of your face and can cause scarring later in life. He said its hard to predict how it will look in a few years and that a laser may not be the best treatment to fully rid it later in life. He also said that oral hemangiomas can bleed so we have to be careful with the amount of bleeding if it occurs.</p> <p>We have to administer the meds 3x a day and he said we could possibly need to continue the meds up to a year. I'm not quite looking forward to giving meds that often and that long, but it is what it is. Their protocol is to start a low dose of meds for a week then return for an office visit to get vitals. If his vitals are good then we will double the dose for a week and return again to check vitals. After that we would double the dose again and return for monthly visits to check the hemangioma and how he is responding to the meds. </p> https://boards.hellobee.com/topic/hemangioma#post-2783433 Wed, 01 Nov 2017 11:09:00 +0000 megjay18 2783433@https://boards.hellobee.com/ <p>my son has two of them that we noticed when he was a few months old (he's almost 5 now). he has one on his back between his shoulder blades. they weren't worried about it and sometimes just check it to make sure it's not growing. he also had one on his nose - like on the bridge but slightly to the right. they were a little worried about it because they said it could be just the "tip of the iceberg" and could be growing inside the nose causing a breathing blockage. they checked it frequently, but it eventually stopped growing and now it's barely visible and no one ever talks about it anymore. </p> https://boards.hellobee.com/topic/hemangioma#post-2782809 Sat, 28 Oct 2017 23:08:09 +0000 Mrs. Pickle 2782809@https://boards.hellobee.com/ <p>@Boopers: it didn't show up until she was 2-3 weeks old, but I don't think it's grown since then. </p> https://boards.hellobee.com/topic/hemangioma#post-2782801 Sat, 28 Oct 2017 20:01:30 +0000 Mae 2782801@https://boards.hellobee.com/ <p>@Boopers: Somewhere between 1 and 2 weeks old. It started off as a cluster of tiny red dots, and then the dots got more red and grew together and now it's a heart shaped slightly raised red spot about 1/2 an inch in diameter at almost 5 weeks. It doesn't really seem to be getting bigger over all, just more red. </p> https://boards.hellobee.com/topic/hemangioma#post-2782697 Sat, 28 Oct 2017 00:40:03 +0000 BeachMama 2782697@https://boards.hellobee.com/ <p>My 2.5 year old has one on his arm, by his deltoid. I first noticed it when he was 3 months old and it's mostly gone now. </p> https://boards.hellobee.com/topic/hemangioma#post-2782634 Fri, 27 Oct 2017 13:36:57 +0000 sillymilly 2782634@https://boards.hellobee.com/ <p>@Boopers: Yes, we are treating it. At 9 months now I can barely see it, where it was once roughly the size of her bicep. </p> https://boards.hellobee.com/topic/hemangioma#post-2782616 Fri, 27 Oct 2017 12:44:19 +0000 Bluemasonjar 2782616@https://boards.hellobee.com/ <p>We noticed a hemangioma on my son's thigh a few weeks after birth. His pediatrician measured it and has continued to monitor it over the past 2 years and it has started to break up. I never did much research since she wasn't concerned so I had no idea about the cycle of growth so appreciate all of the info. </p> https://boards.hellobee.com/topic/hemangioma#post-2782528 Fri, 27 Oct 2017 09:52:57 +0000 Boopers 2782528@https://boards.hellobee.com/ <p>@Mrs. Pickle: I hope you don’t have to worry about surgery! Have you noticed it growing since it first appeared?</p> <p>@Mae: our LOs are the same age- when did you notice hers? We went back to look at photos and it started showing up when he was around 2 weeks old. I hope your pedi gives you some answers!</p> <p>@agold: thank you for sharing! Hopefully it’s growth has stopped and it starts to go away!</p> <p>@sillymilly: this is all so helpful, thank you! Our pedi mentioned beta blockers as a possible treatment, but that’s without a a derm’s input. Has your LO received treatment? </p> https://boards.hellobee.com/topic/hemangioma#post-2782366 Thu, 26 Oct 2017 15:50:02 +0000 sillymilly 2782366@https://boards.hellobee.com/ <p>A pediatric dermatologist should be able to identify pretty quickly if it is a hemangioma. My daughter has a deep hemangioma on her rib cage (and we actually just got back from the dermatologist to check on it). Here are all the details that our pediatric derm has explained to us. Hemangiomas typically have a growth phase of about a year, and then they start to shrink. There are two ways they are typically treated. The first like @gotkimchi: mentioned is applying timolol drops directly to the hemangioma. This works most effectively for superficial hemangiomas. If the hemangioma continues to grow, an oral medicine propanolol hydrochloride (hemangeol is the brand name) can be used. It's a beta blocker and is quite effective, but usually requires an EKG and/or an echocardiogram prior to treatment. Usually the first doses would be administered in office under supervision, or under hospital admission. Our dermatologist explains this is done more so out of an abundance of caution, and that rarely do babies have issues with the treatment. Hope this helps! </p> https://boards.hellobee.com/topic/hemangioma#post-2782365 Thu, 26 Oct 2017 15:46:30 +0000 agold 2782365@https://boards.hellobee.com/ <p>My daughter has one right near her little butt hole. I noticed it shortly after her birth. The doctor said it would get bigger and then go away. It did start to get bigger. When she was a few months old, it bled a little bit one time. She's now 14 months old and I don't notice it getting any bitter. Its like the size of a finger tip and looks like a smashed raspberry. Her doctor has zero concerns about it. I'm just hoping it goes away. </p> https://boards.hellobee.com/topic/hemangioma#post-2782337 Thu, 26 Oct 2017 14:44:31 +0000 Mae 2782337@https://boards.hellobee.com/ <p>commenting so I can find the thread later! My LO is 4 weeks and has what I believe is a hemangioma on her upper stomach. She has a doctor's appt next week so I'm going to ask then but it looks just like all the photos I've seen. I'm hoping due to location we don't have to do anything, but it is still growing so we'll probably at least have to keep an eye on it. </p> https://boards.hellobee.com/topic/hemangioma#post-2782316 Thu, 26 Oct 2017 14:02:07 +0000 Mrs. Pickle 2782316@https://boards.hellobee.com/ <p>DD2 has one over her right eyebrow. For now her pediatrician is keeping an eye on it. It is grows she'll refer us to a dermatologist because it could obstruct her vision. My boss's son had one in the same spot and it did grow so much that he had surgery. </p> [attach=1198/17/oyg27j.600x504.IMG_0302.PNG] https://boards.hellobee.com/topic/hemangioma#post-2782303 Thu, 26 Oct 2017 13:42:10 +0000 sauerkraut 2782303@https://boards.hellobee.com/ <p>@boopers: in my sister's case, I don't think she had any visible, external signs of the hemangioma. I was too young to remember directly, but my mom said first she started making a funny noise while nursing (she must have been having trouble swallowing), then her breathing got snuffly. My mom took her to the doc, who though it was a cold and sent her home. Then a few days later, the breathing was worse and not better, and my mom brought her back in to the doctor, and the doctor took one look and sent her to the hospital because her breathing was so obstructed. It sounds like it happened pretty fast, and was pretty scary at the time, but once they identified the problem, they were able to treat it and it didn't cause any more issues.<br /> Sounds like they're looking out for any possible complications in advance with your son, so hopefully you won't have to go through anything so stressful! </p> https://boards.hellobee.com/topic/hemangioma#post-2782287 Thu, 26 Oct 2017 13:08:34 +0000 Boopers 2782287@https://boards.hellobee.com/ <p>@sauerkraut: wow thank you for sharing your experience with me! Did your sister have a hemangioma that was visible anywhere else on her body? Did you sister have difficulty breathing before they realized she had an obstruction in her throat? That’s great that your daughter’s is starting to go away. That must have been stressful dealing with the bleeding! Our pedi did mention that beta blockers are often used for treatment so I’m curious to see if we will need to use them at all.</p> <p>@gotkimchi: that’s good info to know about the various phases. We plan to watch it closely to see if it continues to grow. </p> https://boards.hellobee.com/topic/hemangioma#post-2782277 Thu, 26 Oct 2017 12:58:49 +0000 gotkimchi 2782277@https://boards.hellobee.com/ <p>@Boopers: hers didn’t but she was a year old by then. So the doctor said there’s an active phase where it grows, a plateau phase we’re it does nothing, and then involution where it gets smaller. They said hers was at a plateau so eventually it will go away, approx 10% of kids go away per year so by 10 years old typically everyone’s are gone </p> https://boards.hellobee.com/topic/hemangioma#post-2782273 Thu, 26 Oct 2017 12:53:38 +0000 sauerkraut 2782273@https://boards.hellobee.com/ <p>My sister had a hemangioma in her throat as an infant that obstructed her breathing. I don't believe it was visible externally. She was around 3 months old when it became a problem, and it required a minor surgery to remove the obstruction, then daily steroids (this was about 34 years ago, so treatments may differ today), to prevent further growth. The hemangioma resolved (shrunk) by the time she was 1 and has never been a problem since.</p> <p>I am up on all this because my DD now has a hemangioma on her labia of all places, so I've talked a lot with my mom about our family history. In DD's case, it swelled up and became very prominent around 2 or 3 months of age. Right after her first birthday, the delicate skin got irritated and would bleed periodically. It resolved once I started protecting the skin with a thick layer of vaseline, and now, at 16 months, the hamgioma is starting to look smaller and less prominent. I was told that if she exhibited any more issues, they'd do an ultrasound or dopplar scan to investigate the internal aspect and possibly prescribe beta blockers to prevent it from growing. I was also told that they often go away entirely during the first two years. </p> https://boards.hellobee.com/topic/hemangioma#post-2782256 Thu, 26 Oct 2017 12:41:16 +0000 Boopers 2782256@https://boards.hellobee.com/ <p>@gotkimchi: thanks for the info! I was curious about how they might check the spot out. Did they determine if her spot had active blood flow? </p> https://boards.hellobee.com/topic/hemangioma#post-2782247 Thu, 26 Oct 2017 12:34:17 +0000 gotkimchi 2782247@https://boards.hellobee.com/ <p>My niece has a mixed hemangioma however it’s on her back so it doesn’t interfere with anything. I went to her dermatologist appt and they scanned it with a Doppler to see if it has active blood flow and they also said they could use timolol eye drop topically on it to reduce the red strawberry part - they said it wouldn’t do anything for the deep part. I hope you get good news! </p> https://boards.hellobee.com/topic/hemangioma#post-2782244 Thu, 26 Oct 2017 12:30:01 +0000 Boopers 2782244@https://boards.hellobee.com/ <p>I searched the boards for this topic but most threads were a few years old so I’m hoping for some new/updated replies.</p> <p>DS2 is one month old. We went to his one month check up today and his pediatrician said the spot on his chin is more than likely a hemangioma. It’s also growing on the inside of his lower lip and on his lower gum line. She is referring us to a pediatric dermatologist to get it checked out. She said because it’s on the midline of his body that they can sometimes grow internally like in the throat and eventually cause an obstruction. I obviously won’t know more until we go to the dermatologist, but does anyone else have experience with this? </p> <p>Here is a picture of what it looks like right now on his chin. I don’t have pictures of the inside of his mouth right now. </p> [attach=1843/17/oyfxy1.450x600.99FC3182-50F3-4EA2-9566-E2432E70C0CC.jpeg]