https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Fri, 08 May 2026 22:36:29 +0000 https://boards.hellobee.com/topic/high-prolactin#post-2609358 Tue, 23 Aug 2016 16:15:20 +0000 SweetiePie 2609358@https://boards.hellobee.com/ <p>Reviving this old thread.<br /> @raintreebee: what ended up happening for you?</p> <p>I just got a call from my REs office (I'm about 2 weeks out from a new IVF cycle) that both TSH and Prolactin are elevated. My prolactin is 33, not sure where that falls on the scale.<br /> I'm going in again tomorrow after a fast to test again. If it's still elevated he'll call me with next steps.<br /> They actually called first about TSH and to get me on synthroid, and then a few mins later to say that prolactin also just came in and is elevated. TSH she was like "no big deal" but the prolactin she was a bit more vague about and hesitant to say much. She just told me not to google, so of course as soon as we hung up I googled.<br /> I guess I'm just concerned because 3 years ago neither of these were an issue for me. Interested in hearing about others experiences. </p> https://boards.hellobee.com/topic/high-prolactin#post-792753 Sat, 18 May 2013 10:04:39 +0000 autumnlove 792753@https://boards.hellobee.com/ <p>I had issues with elevated prolactin levels about 16 years ago. I had a tumor that required a lot of meds (I don't remember the names) to shrink it down. My levels were always in the 50s prior to treatment.<br /> I had lots of follow up tests, visits and MRIs but it was controlled pretty quickly.</p> <p>Good luck!!! </p> https://boards.hellobee.com/topic/high-prolactin#post-792726 Sat, 18 May 2013 09:35:12 +0000 mrs. 64 792726@https://boards.hellobee.com/ <p>I was diagnosed with a tumor 7 years ago. My initial symptom was galactorrhea. My tumor is very small and I don't remember what my prolactin levels were back then (sorry!). I was on the medicine cabergoline for years and it maintained the tumor. I have MRIs every 1-2 years. This winter I switched to bromocriptine because it is safe while TTC. They did an MRI after I had been on bromocriptine for a month or so and my tumor had grown from 4 mm to 5 mm so they increased my dose of bromocriptine. At the same time my prolactin levels were 29, which is at the top of normal for non-pregnant women. If I am not pregnant before then, they are going to test my prolactin again in late June. Hopefully they have gone down since being on the higher dose of the bromocriptine. I don't know if this has affected fertility since I'm only on my 2nd cycle TTC. </p> <p>If you are in the middle of an IVF cycle, I'm not sure that there would be anything you could do right now. I guess following your doctor's plan sounds best. FX for a successful IVF!!</p> <p>Let me know if you have any other questions. :) </p> https://boards.hellobee.com/topic/high-prolactin#post-792362 Fri, 17 May 2013 20:43:00 +0000 raintreebee 792362@https://boards.hellobee.com/ <p>Thank you ladies! </p> https://boards.hellobee.com/topic/high-prolactin#post-791353 Fri, 17 May 2013 12:41:38 +0000 Revel 791353@https://boards.hellobee.com/ <p>I tested with high prolactin once on a hormone panel they were doing for my long cycles. It came back slightly elevated (I want to say 24 or 26 where the lab wanted 20, or something like that). I was retested and it came back normal. If not, I was supposed to be referred to an RE for further testing and to investigate a possible tumor.</p> <p>The little research that I did indicated that levels can fluctuate dramatically based on stress, exercise etc., and that a tumor typically would give very high levels. I also understand that the tumors are typically very easily treated.</p> <p>Fingers crossed for your IVF cycle! </p> https://boards.hellobee.com/topic/high-prolactin#post-791311 Fri, 17 May 2013 12:29:12 +0000 dagret 791311@https://boards.hellobee.com/ <p>@raintreebee: no personal experience, but I had a friend whose prolactin levels were through the roof and she had a tumor. She went on Meds to shrink it and got pregnant on her cycle after her levels got back to normal.</p> <p>Good luck! </p> https://boards.hellobee.com/topic/high-prolactin#post-791235 Fri, 17 May 2013 12:10:54 +0000 raintreebee 791235@https://boards.hellobee.com/ <p>Hi Ladies,</p> <p>So I've had my prolactin levels tested several times during the last two months and they appear to be elevated (53, 35, 32). My original fertility workup showed a normal level of 18 a year ago so that is why I was never treated for it. At first, my doctor thought they were from stress or IVF hormones, but the last test was at the beginning of a cycle with a week of no meds. I am currently undergoing an IVF cycle and my doctor thinks we shouldn't bother to look into it further--that the levels are low enough as to not suggest a tumor and that I shouldn't take the meds to treat prolactin anyways during a pregnancy. He thought that if this IVF cycle fails, we would re-test, do an MRI, and possibly medicate. Anyway, I was just wondering if anyone had any experience with high prolactin levels, how high were they, what problems they've caused, and how you have been treated. Thank you! </p>