https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Mon, 27 Apr 2026 07:03:09 +0000 https://boards.hellobee.com/topic/hypertonic-baby#post-2017368 Fri, 09 Jan 2015 16:52:00 +0000 Ms.Badger 2017368@https://boards.hellobee.com/ <p>Given this new diagnosis of hypertonia I would definitely ask your geneticist if there are any syndromes or testing that could now be implicated. </p> https://boards.hellobee.com/topic/hypertonic-baby#post-2017305 Fri, 09 Jan 2015 16:08:57 +0000 jedeve 2017305@https://boards.hellobee.com/ <p>No experience in hypertonia but my little guy is in PT for torticollis. I think sometimes it sounds so severe, because when we were growing up you would only get PT for something major. But I think now they just realize how much easier it is to prevent problems if they intervene EARLY. so try not to stress! </p> https://boards.hellobee.com/topic/hypertonic-baby#post-2017299 Fri, 09 Jan 2015 16:05:23 +0000 bamblm 2017299@https://boards.hellobee.com/ <p>Thank you everybody! I am a little calmer about it now, I think I was having some momentary catastrophic thinking. </p> <p>@Mrs. Tiger: Thank you! I actually just went back and read your littlest's journey, which has helped me feel a lot better about this process. </p> <p> @Ms.Badger: The NICU asked us to see a geneticist when we were discharged. The doctor didn't order any testing or give us hints of a diagnosis at the initial visit, but she is the one who put us in touch with the evaluation program and who noticed the hypertonia. Should I ask her any specific questions at the follow up? I guess I was lulled into thinking nothing was wrong and everything checked out when she said she didn't see a need to test for anything at that time. </p> https://boards.hellobee.com/topic/hypertonic-baby#post-2017167 Fri, 09 Jan 2015 15:14:20 +0000 spaniellove 2017167@https://boards.hellobee.com/ <p>@bamblm: Usually families in EI do have slightly older babies, but it just means you're getting a head start. Our LO's referral was put in when he was 8 weeks due to his hearing loss being officially diagnosed at 5 weeks though he's also getting EI for mixed muscle tone/motor skills issues. One side is always more clenched. </p> <p>EI therapy can be helpful, and I've also learned not to let a pediatrician say you're in EI now so they should be handling all your questions. When that happened to us we switched doctors. </p> <p>Mrs. Tiger is a great resource! </p> https://boards.hellobee.com/topic/hypertonic-baby#post-2017047 Fri, 09 Jan 2015 14:30:40 +0000 MrsRcCar 2017047@https://boards.hellobee.com/ <p>@bamblm: big hugs momma! Feel free to join us on the facebook group or on the EI board here. </p> https://boards.hellobee.com/topic/hypertonic-baby#post-2016998 Fri, 09 Jan 2015 14:05:31 +0000 Mrs Green Grass 2016998@https://boards.hellobee.com/ <p>I was worried about CP for my son for awhile. He was a little hypertonic and we did PT from birth since he was a micropreemie. I think some of the biggest signs are uneven use of different sides of the body and the crossing off the legs when you pick them up.</p> <p>If it is CP, you are doing everything that you can possibly do by going to EI now. And if it's not, you'll probably know within the next year or so. Usually a diagnosis isn't made until age 3, but EI will have a strong suspicion. </p> <p>Mrs. Tiger's son has CP; she'd probably be a great resource.</p> <p>I'm sure it's all very overwhelming at the moment, but you really don't know that he had anything beyond the hypertonia, so just work on that for now. Good luck! </p> https://boards.hellobee.com/topic/hypertonic-baby#post-2016997 Fri, 09 Jan 2015 14:05:29 +0000 Ms.Badger 2016997@https://boards.hellobee.com/ <p>I do not have personal experience with this but if I were in your shoes I would ask for a referral to a geneticist. I work in clinical genetics and many genetic conditions (including many very minor things) can present with neonatal hypertonia and a consult with a geneticist could start you down a road toward a diagnosis and appropriate care going forward. Hugs and good luck to you and your baby! </p> https://boards.hellobee.com/topic/hypertonic-baby#post-2016995 Fri, 09 Jan 2015 14:03:23 +0000 Mrs. Tiger 2016995@https://boards.hellobee.com/ <p>My LO has cerebral palsy. We did PT for about 6 months and we're recently discharged since he's caught up. He used to hold his hands in tight fists, keep his back stiff, and favor one arm/leg. OT will help a lot! Wall me if I can be helpful or reassuring, best of luck to you guys :) </p> https://boards.hellobee.com/topic/hypertonic-baby#post-2016986 Fri, 09 Jan 2015 13:54:56 +0000 bamblm 2016986@https://boards.hellobee.com/ <p>Thank you! I haven't heard of many other infants this young qualifying for EI services. I guess that also freaks me out. </p> https://boards.hellobee.com/topic/hypertonic-baby#post-2016463 Fri, 09 Jan 2015 08:55:53 +0000 MamaBehr 2016463@https://boards.hellobee.com/ <p>I don't have an experience, but I hope she gets the help she needs through therapy and this will all be forgotten in a few years. :) </p> https://boards.hellobee.com/topic/hypertonic-baby#post-2016441 Fri, 09 Jan 2015 08:35:01 +0000 bamblm 2016441@https://boards.hellobee.com/ <p>My 16 week old just qualified for EI and occupational therapy for hypertonia. :sad: Mainly in the arms and trunk, and she likes to keep her hands closed in a fist with the thumb tucked. The evaluator gave me the impression that the therapy will prevent further delays and thinks it will help with things like rolling over (she curls her torso and keeps her arms straight which prevents her from rolling even though she is trying) and later on with things like sitting up and crawling. </p> <p>I'm freaking OUT because I googled it and all that comes up is cerebral palsy. (I knew I shouldn't have googled it) I don't even know what questions to ask my doctor about this. She has had a bunch of really small issues throughout pregnancy and the first couple of months which all seemed to work out, so I guess I wasn't really expecting this. Anyone else have experience with a hypertonic baby? </p>