https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Thu, 30 Apr 2026 04:18:51 +0000 https://boards.hellobee.com/topic/laryngomalacia#post-2894292 Mon, 12 Aug 2019 10:06:30 +0000 Bluemasonjar 2894292@https://boards.hellobee.com/ <p>I don't have any first hand experience but a friend of mine from college has 2 children effected by it. She has found a lot of support from this Facebook group - Coping With Laryngomalacia, Inc.. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2894270 Mon, 12 Aug 2019 08:13:55 +0000 magnolia 2894270@https://boards.hellobee.com/ <p>@Jellyfish: sorry to hear about his latch. My girl has latched well since birth despite the tie. She’s gaining weight well too. So despite the reflux, we have not clipped it.</p> <p>This is a stretch but did anyone’s baby with LM have gross motor delays? My little lady’s head control is very poor at 3 months old. She hates tummy time and really only lifts her head up or pushes up when she is on my chest. She can kind of hold her head up when held upright. She basically only slept and ate for the first two months of life so maybe she just needs more time. I wonder if there is any association with LM? </p> https://boards.hellobee.com/topic/laryngomalacia#post-2894269 Mon, 12 Aug 2019 08:10:35 +0000 magnolia 2894269@https://boards.hellobee.com/ <p>@shabang: I definitely feel you on the anxiety. Her breathing is much less noisy in her sleep now at 3 months than it was when she was diagnosed thankfully but I’ll pop awake instantly when she makes any sound at night. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2894232 Sun, 11 Aug 2019 19:57:30 +0000 Jellyfish 2894232@https://boards.hellobee.com/ <p>@magnolia: hi! We did end up clipping his tongue tie but not because of the laryngomalacia. I was having a horrible time breastfeeding due to his latch. That improved after getting it clipped but the laryngomalacia remained until it kind of just resolved on its own. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2891558 Thu, 18 Jul 2019 14:56:56 +0000 shabang 2891558@https://boards.hellobee.com/ <p>My daughter has this. It was multiple times a night that she would wake up sounding like she was gasping as a newborn then cry hysterically, but she never turned blue, and her ped assured me she would grow out of it. She's now 1 and it's mostly gone, although it definitely is more prominent if she's congested. </p> <p>Apparently, she has a mild case, but I can tell you that I still haven't moved her out of our bedroom into her own like I did with the other babies much earlier. And, I still check that she's breathing all the time when she's asleep and have a ton of anxiety around it. Fun stuff. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2891550 Thu, 18 Jul 2019 14:13:38 +0000 agold 2891550@https://boards.hellobee.com/ <p>@magnolia: Both my girls have had some kind of lip tie and tongue tie. I took my big girl to the ENT when she was still tiny and they told me not to do anything about it since she was gaining weight. I didn't even both doing anything about my second's girl's ties for this reason. Also, both of their teeth seem to be coming in normally despite the crazy upper lip time. No speech impediments so far with the first girl, either. ETA: when we saw the ENT, the first thing he asked me is if my girl could open her mouth. :shocked: that made me realize that what I thought was a horrible tounge/lip tie really might just be mild, and so far it has been. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2891431 Wed, 17 Jul 2019 16:57:46 +0000 magnolia 2891431@https://boards.hellobee.com/ <p>@Jellyfish: thanks again for responding to me, I have so many questions still... did you have your little ones tongue tie clipped? I had hers checked out aT 3 weeks before the laryngomalacia was diagnosed, but decided not to get it clipped, because she was latching and gaining well. Now I’m wondering if having it clipped would help the reflux </p> https://boards.hellobee.com/topic/laryngomalacia#post-2891429 Wed, 17 Jul 2019 16:55:45 +0000 magnolia 2891429@https://boards.hellobee.com/ <p>@agold: pediatrician put her on meds for reflux and got us an appointment to see the ent again for a 2nd scope. He wanting to rule out any kind of obstruction/growth since the previous scope</p> <p>Both the ER staff and the ENT told me to go to the ER if she turns blue... I was like... duh. I’m so glad your little never got there. I am very hopeful this is also a benign case that will improve with time. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2890662 Thu, 11 Jul 2019 12:29:40 +0000 agold 2890662@https://boards.hellobee.com/ <p>@magnolia: No, my girl did not have reflux issues. Please let me know what her doctor says. It is good to have the pediatrician on board. I recall them telling me that as long as she was gaining weight, then she was okay. And to go to the ER if she started turning blue. :shocked: She never got to the point. Now, at 14 months, I hear the stridor often, but it doesn't seem to be an issue anymore beyond that. It still bothers me because I know what is causing the sound so I hold my breath until its over. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2890631 Thu, 11 Jul 2019 09:22:16 +0000 magnolia 2890631@https://boards.hellobee.com/ <p>Also, I discovered rocking and shushing her in a cradle hold helps a lot when she is having the gasping breaths </p> https://boards.hellobee.com/topic/laryngomalacia#post-2890630 Thu, 11 Jul 2019 09:20:46 +0000 magnolia 2890630@https://boards.hellobee.com/ <p>@Jellyfish: they must all be interrelated somehow, My little one has a tongue tie also</p> <p>She hasn’t spit up in the past two days but I’ve been more vigilant about burping her really well and keeping her upright</p> <p>It seems she mostly spits up when she coughs, so maybe it’s more of a gag reflex issue and not reflux </p> <p>Going to the pediatrician tomorrow for two month check up. It’ll be my first chance to discuss the LM diagnosis </p> https://boards.hellobee.com/topic/laryngomalacia#post-2890117 Fri, 05 Jul 2019 10:58:55 +0000 Jellyfish 2890117@https://boards.hellobee.com/ <p>@magnolia: sorry didn’t get to reply earlier. Interesting, DS did have reflux too. This is terrible but I don’t exactly remember when it presented...I want to say maybe around 3 months? Between being a preemie, tongue tie, laryngomalacia, and reflux he was a terrible eater and it’s all a blur! He did get better later on but the first few months were tough. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2889811 Tue, 02 Jul 2019 16:38:23 +0000 magnolia 2889811@https://boards.hellobee.com/ <p>@Jellyfish: @agold: wondering if your littles had reflux in addition to the laryngomalacia and if so, when did it present? </p> <p>Thanks! </p> https://boards.hellobee.com/topic/laryngomalacia#post-2889499 Sun, 30 Jun 2019 01:19:01 +0000 DesertDreams88 2889499@https://boards.hellobee.com/ <p>My friend's baby had this a grew out of it by 4 months. Scary-sounding but benign in her case. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2889464 Sat, 29 Jun 2019 09:15:32 +0000 magnolia 2889464@https://boards.hellobee.com/ <p>@MrsRcCar: thank you! I’m sorry to hear about your son’s surgery. I hope it goes well. I have tons of questions so I’ll wall you a message? </p> <p>Baby girl has been coughing and choking on when feeding a lot in the past 24 hours or so. I hope this isn’t signs of reflux? </p> https://boards.hellobee.com/topic/laryngomalacia#post-2889413 Fri, 28 Jun 2019 19:22:21 +0000 MrsRcCar 2889413@https://boards.hellobee.com/ <p>@agold: Pulmonary decided it best to do a scope when he was around 7-8 months. We found out about the LM/TM/cleft and enlarged adenoids all at the same time. In March we had the adenoids removed and hoped we wouldn’t have to move forward with the cleft repair. Unfortunately he needs the cleft repair to stop aspiration of fluid. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2889406 Fri, 28 Jun 2019 16:56:13 +0000 agold 2889406@https://boards.hellobee.com/ <p>@MrsRcCar: how was the TM and cleft discovered or diagnosed. I am so sorry and hope the surgery goes as smoothly as possible for all. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2889305 Thu, 27 Jun 2019 22:02:02 +0000 MrsRcCar 2889305@https://boards.hellobee.com/ <p>@magnolia: hey there! My youngest boy has both TM and LM. He was also found to a cleft in his larynx. He is having his cleft repaired next week. My little guy is 2 years 8 months. As an infant he had several scary episodes but he has mostly been healthy. Please message me if you have any questions I am happy to answer them. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2888501 Fri, 21 Jun 2019 20:07:21 +0000 magnolia 2888501@https://boards.hellobee.com/ <p>@agold: thank you for sharing... I have been putting her on her belly. Half the time it helps and then she will usually fall asleep, and the other half of the time she gets mad she’s on her stomach! The breathing episodes don’t really seem to bother her, except sometimes she coughs after she eats and seems to pause in her breathing which of course scares the crap out of me. It’s tough in the middle of the night too because I’ll sit straight up in bed as soon as she starts to make any kind of noises. Thank you again for the resources, I feel a bit more calm today... </p> https://boards.hellobee.com/topic/laryngomalacia#post-2888500 Fri, 21 Jun 2019 20:03:10 +0000 magnolia 2888500@https://boards.hellobee.com/ <p>@lady baltimore: so glad to hear that she turned out healthy and strong. It’s super scary at this age. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2888498 Fri, 21 Jun 2019 20:02:34 +0000 magnolia 2888498@https://boards.hellobee.com/ <p>@Jellyfish: I’m glad your baby outgrew it! That gives me a lot of hope as well...I was induced a few weeks early And I suspect a lot of her respiratory issues are because she was a bit early. She’s definitely been a slow eater since birth. The strange thing is she usually starts making the sound when I lift her to my chest to burp her (as well as when I lay her down to sleep). </p> https://boards.hellobee.com/topic/laryngomalacia#post-2888325 Thu, 20 Jun 2019 16:01:19 +0000 agold 2888325@https://boards.hellobee.com/ <p>@magnolia: My second baby had this. It has turned out to be a mild case, but had to be watched for a little while. If her breathing got bad, I would turn her onto her stomach so that gravity could help get the flappy piece back where it should go. I was so scared, but realized that a lot of kids have much more severe cases. I was able to lay her flat to change her diaper without much of an issue. She is 13 months now and still has the breathing issues. I hear it multiple times a day, but it doesn't seem to bother her. It makes me pause and wait and watch, though. Please check out "flynnpluscrew" on instagram. She has two babies with LM and has been an amazing resource and truly a sweet girl to chat with. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2888140 Wed, 19 Jun 2019 11:56:26 +0000 lady baltimore 2888140@https://boards.hellobee.com/ <p>My cousin's daughter had this. I don't know a ton of details, but I know that it was a rough first year for them, with a lot of trips to the hospital, but once she outgrew it (somewhere around a year), she has been a super healthy and strong kiddo (now around 9). </p> https://boards.hellobee.com/topic/laryngomalacia#post-2888124 Wed, 19 Jun 2019 10:29:22 +0000 Jellyfish 2888124@https://boards.hellobee.com/ <p>@magnolia: DS had this as a newborn and it was scary but he also outgrew it. He was a 36 weeker and Dr said it was cuz his resp system was I guess not fully mature. Try to keep upright and let her eat slowly. Hopefully she'll outgrow it with time. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2888111 Wed, 19 Jun 2019 08:37:01 +0000 magnolia 2888111@https://boards.hellobee.com/ <p>@CatchAFallingStar: she’s five weeks old. I’m glad to hear your daughter grew out of it. At first we thought it was just noisy newborn breathing but it kept getting worse.</p> <p>The pediatrician sent us to the ER Monday after I brought her In with concerns (she was loudly gasping for air) and then the ER had her evaluated by the ENT. The ent said she may grow out of it by 6-12 months. But if it gets worse she may need surgery. </p> <p>This poor kid has been through enough already with a nicu stay at birth so I hope it doesn’t get worse. </p> https://boards.hellobee.com/topic/laryngomalacia#post-2888092 Tue, 18 Jun 2019 21:26:02 +0000 CatchAFallingStar 2888092@https://boards.hellobee.com/ <p>@magnolia: how old is she? My daughter had very floppy, loud breathing when she was newborn to about 3 months. I didn’t know there was a name for it. She outgrew it </p> https://boards.hellobee.com/topic/laryngomalacia#post-2888089 Tue, 18 Jun 2019 20:33:13 +0000 magnolia 2888089@https://boards.hellobee.com/ <p>Does any one have experience with this? </p> <p>My little one was just diagnosed with it after a stressful few days between the ER and the ENT</p> <p>Any advice on how to cope with this and especially with making her more<br /> Comfortable when she is having breathing difficulty would be much appreciated </p>