https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Fri, 10 Apr 2026 03:47:55 +0000 https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2041284 Mon, 26 Jan 2015 20:58:20 +0000 Mrs. Tiger 2041284@https://boards.hellobee.com/ <p>@jhd: yay! one spoon at a time... no weight loss is awesome! pat yourself on the back :)</p> <p> @lizzywiz: glad they are getting less severe. sorry you're missing work, I know it's tough. I'm part time (ever since I came back from maternity leave with D) and can tell I'm getting mommy-tracked, but what can I do. D also will be on a ton of meds forever - ugh! Poor little guys/girls. </p> <p>I'm still riding the "D is walking in a normal frametime" high. I am concerned that he's duckfooted (sorry, can't remember the technical tern!) on one side (which we've noticed since he started cruising at 11ish months) and am hopeful it's just a new walker thing and that he won't need corrective shoes (or worst case, surgery). </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2040857 Mon, 26 Jan 2015 15:16:49 +0000 lizzywiz 2040857@https://boards.hellobee.com/ <p>@jhd: you should be proud. Seriously. You made it happen spoonful by spoonful! </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2040756 Mon, 26 Jan 2015 14:33:27 +0000 jhd 2040756@https://boards.hellobee.com/ <p>@lizzywiz: That sounds so tough. I hope for some very uneventful weeks ahead for you! </p> <p>I'm feeling pretty positive. Recovery was a lot tougher than we expected but he's really doing well this week. Our pediatrician was super happy with his progress this am which makes me feel good. And no weight loss so I am really proud of that! </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2040208 Mon, 26 Jan 2015 10:19:44 +0000 lizzywiz 2040208@https://boards.hellobee.com/ <p>@jhd: yay for the good recovery! You sound so upbeat- I hope you keep feeling the good vibes :wink: Here is to a stellar follow-up!</p> <p>We are doing ok. Still lots of respiratory illnesses but in my perception they are less severe than what we have gone through in the past. She also had a bout with strep that complicated things because it made her tonsils balloon to roughly the size of the Goodyear blimp, which further restricted her breathing, but we didn't have to go inpatient, which was great!<br /> My struggles right now are 1) still missing SO much work. 3-4 days a month minimum. Ugh. 2) She has been on steroids, antibiotics, etc. most of the last 3 months- looking forward to a time when she won't be so medicated. </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2039397 Sun, 25 Jan 2015 09:44:31 +0000 jhd 2039397@https://boards.hellobee.com/ <p>@lizzywiz: so much better!! thanks for asking! He has his 9 month well visit tomorrow and a follow up with the surgeon on Thurs so they will be able to tell more but I think he's healing well. He still can't handle eating from a bottle so I'm feeding him everything from a spoon, but hey whatever works!! ;) How is your LO doing? </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2039367 Sun, 25 Jan 2015 08:38:32 +0000 lizzywiz 2039367@https://boards.hellobee.com/ <p>@jhd: just saw this. How's it going? </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2029382 Sun, 18 Jan 2015 13:27:02 +0000 jhd 2029382@https://boards.hellobee.com/ <p>@Mrs. Tiger: and wow I forget I live in a small town until I hear about pharmacies that deliver...we don't have much delivery around here besides pizza lol but my parents are close and they deliver! </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2029336 Sun, 18 Jan 2015 12:51:13 +0000 jhd 2029336@https://boards.hellobee.com/ <p>@Mrs. Tiger: he's not allowed to use a straw until his mouth heals some. Hopefully once he gets better he will be able to learn to use one though. I'm not sure if he will ever want his bottle again. </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2029329 Sun, 18 Jan 2015 12:45:54 +0000 Mrs. Tiger 2029329@https://boards.hellobee.com/ <p>@jhd: yay for home! Ugh I remember those panic moments as you transition back to home... Hope you have a pharmacy that delivers, that's been crucial for us! Have you tried straw cups? D skipped bottles totally but got the hang of a straw pretty quick. </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2029217 Sun, 18 Jan 2015 11:15:39 +0000 jhd 2029217@https://boards.hellobee.com/ <p>@Mrs Green Grass: you have mentioned before that you added extra calories to your LO's formula. How did you do that? We may not need to do this but I just worry and want to know what all my options are! </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2028964 Sat, 17 Jan 2015 23:25:22 +0000 jhd 2028964@https://boards.hellobee.com/ <p>we made it home! a few drama filled moments when we realized they didn't give us our prescriptions at discharge...that took about 10 phone calls and lots of stress to resolve. eating is a real challenge and he just won't take a bottle. it probably hurts too much. so we are feeding with spoons, cups, and whatever works. we had several good feedings today and a few wet diapers so we will call that a victory and hope for another good day tomorrow! :) </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2027916 Fri, 16 Jan 2015 18:37:27 +0000 spaniellove 2027916@https://boards.hellobee.com/ <p>@jhd: Hooray for being discharged! </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2027909 Fri, 16 Jan 2015 18:26:46 +0000 jhd 2027909@https://boards.hellobee.com/ <p>@Mrs. Tiger: first follow up is in two weeks. Yay for home! </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2027901 Fri, 16 Jan 2015 18:08:51 +0000 Mrs. Tiger 2027901@https://boards.hellobee.com/ <p>@jhd: so glad you guys are going home! Home is always the most comfortable :) When do you have to trek back for follow ups? </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2027877 Fri, 16 Jan 2015 17:42:28 +0000 jhd 2027877@https://boards.hellobee.com/ <p>We are just waiting on discharge paperwork! :) </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2026328 Thu, 15 Jan 2015 19:03:34 +0000 jhd 2026328@https://boards.hellobee.com/ <p>@spaniellove: he's had a really rough day completely refusing to eat BUT one of our SLP friends from the NICU days completely saved the day. She had some great tricks to get him eating. So here's hoping the good eating continues. Thanks for checking in on us! </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2026144 Thu, 15 Jan 2015 17:27:19 +0000 spaniellove 2026144@https://boards.hellobee.com/ <p>@jhd: How is he doing today? </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2022854 Tue, 13 Jan 2015 21:37:58 +0000 jhd 2022854@https://boards.hellobee.com/ <p>@Mrs. Tiger: yes they didn't have any peds rooms available so he was in recovery for about 3 hours. :bummed: his nurses are great and the surgeon has been by to check on him but he's in a lot of pain. hoping tomorrow goes better! And good luck to you for that GI appt tomorrow! </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2022820 Tue, 13 Jan 2015 21:10:16 +0000 Mrs. Tiger 2022820@https://boards.hellobee.com/ <p>@jhd: so glad the surgery went well! I've heard good things about the McDonald houses, I'm glad it's a comfort to you guys. It sucks you could only see him one at a time! Was it because he was still in the recovery area? </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2022137 Tue, 13 Jan 2015 13:33:38 +0000 jhd 2022137@https://boards.hellobee.com/ <p>@spaniellove: thank you!<br /> Surgery was long and he's stuck in recovery until they find an available room and we can only see him one at a time. It's been one crazy thing after another today! But surgery itself went very well. </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2022004 Tue, 13 Jan 2015 12:40:45 +0000 spaniellove 2022004@https://boards.hellobee.com/ <p>@jhd: I missed this thread until now - I hope everything is going well for you guys! Keeping you and your LO in my thoughts today that surgery is going well. :heart: </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2021235 Mon, 12 Jan 2015 22:17:50 +0000 jhd 2021235@https://boards.hellobee.com/ <p>We are here and settled in at the Ronald McDonald house. I seriously don't know what we would do without this place. Pre-op stuff took forever but went well and surgery is scheduled for bright and early tomorrow morning. </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2019225 Sun, 11 Jan 2015 12:55:01 +0000 jhd 2019225@https://boards.hellobee.com/ <p>@Applesandbananas: thanks! :)</p> <p>@Mrs. Tiger: thank you! Yes he will most likely have two nights in the hospital after. I hope the GI appt goes well this week!! :goodluck: </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2019193 Sun, 11 Jan 2015 12:30:04 +0000 Mrs. Tiger 2019193@https://boards.hellobee.com/ <p>@jhd: fingers crossed for you guys! Hope it goes seamlessly. Will he have to be admitted afterwards?</p> <p>We're doing good, no complaints. We a GI appt on Wednesday, the first since I got my butt handed to me for not following their directions and him not gaining, I hope it goes well! D also finally saw a pulmonary doc who has him on two different nebulizer meds (pulmocort and atrovan) to try to get rid of that congested sound. So far the jury's still out, but it's been less than a week... </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2019174 Sun, 11 Jan 2015 12:15:20 +0000 Applesandbananas 2019174@https://boards.hellobee.com/ <p>@jhd: I'll keep your LO in my prayers--and you and DH! &lt;3 </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-2019127 Sun, 11 Jan 2015 11:09:16 +0000 jhd 2019127@https://boards.hellobee.com/ <p>Did everyone have healthy and happy holidays? I sure hope so!! :) My husband was able to take some time off work and we really enjoyed our time together as a little family and with extended family and friends.</p> <p>We are traveling today. Pre-op appointments are tomorrow and surgery is Tuesday. I'm anxious, but at the same time ready to get it all behind us.</p> <p>I hope everyone is doing well! </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-1980939 Thu, 11 Dec 2014 17:27:55 +0000 Mrs. Tiger 1980939@https://boards.hellobee.com/ <p>@jhd: that's great! Please remind us when it's coming up so we can throw some good vibes your way. I like the surgeon who did D's gtube, intestinal takedown &amp; reconnection too, he seems like such a sweet man and I feel at piece knowing he's caring for D (or in reality, overseeing a resident). I hope it's the same Zen feeling for your surgeon! </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-1980923 Thu, 11 Dec 2014 17:18:03 +0000 Mrs. Twine 1980923@https://boards.hellobee.com/ <p>@jhd: That's wonderful. I'm sure it's nice to already be familiar with the place and have positive feelings about the doctors and specialists who will be involved. I hope it goes perfectly. </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-1980921 Thu, 11 Dec 2014 17:15:46 +0000 jhd 1980921@https://boards.hellobee.com/ <p>@Mrs. Twine: It is 3.5 hours away. The same surgeon who did his jaw surgeries &amp; we like him. There's an awesome Ronald McDonald House that has become a second home! </p> https://boards.hellobee.com/topic/parents-of-los-who-have-chronic-health-issues/page/7#post-1980916 Thu, 11 Dec 2014 17:11:08 +0000 Mrs. Twine 1980916@https://boards.hellobee.com/ <p>@jhd: Yay! That's a win!! And being able to save more anesthesia is a really good thing. Do you have to travel very far to get the surgery done? </p>