https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Sat, 02 May 2026 03:44:06 +0000 https://boards.hellobee.com/topic/prenatal-diagnosis-questions-to-be-asking-doctors#post-2924921 Tue, 14 Sep 2021 13:06:02 +0000 periwinklebee 2924921@https://boards.hellobee.com/ <p>Thanks so much for sharing and so happy to hear your LO is doing well!!! </p> https://boards.hellobee.com/topic/prenatal-diagnosis-questions-to-be-asking-doctors#post-2924916 Mon, 13 Sep 2021 20:00:19 +0000 Clementine12 2924916@https://boards.hellobee.com/ <p>Some of you might remember my son was diagnosed in-utero with Agenesis of Corpus Callosum - he is just shy of 3 months and is doing really well. I am clearing out some notes and came across my list of questions to ask at our meeting with the fetal health team that I thought might be worth sharing for people facing prenatal diagnoses. I am trying not to include anything too specific to his diagnosis,, but we did know there was a problem with his brain before the meeting (we thought hydrocephalus at the time). </p> <p>Feel free to chime in if you have anything to add.</p> <p>What can we expect labor/delivery to be like? Will he need intervention right after birth? Is a vaginal birth still advisable? Do you forsee NICU time? Are we ok to still deliver @ out hospital (what level of NICU?) w/ my current doctor?</p> <p>Is his condition currently stable? What followup care will I need during this pregnancy for this condition? Is there anything I should be on the lookout for? What would indicate a problem that needs reporting and who would I be reporting it to?</p> <p>What activities should I be doing or avoiding at this time? Is there a point in which it is safer for baby to come out than be in? Is there anything I need to avoid during labor (drugs, etc)?</p> <p>What treatment options are available? When would they begin? Does early diagnosis/treatment change outcome?</p> <p>What does the follow-up care look like? What tests will be done and when will they be done?</p> <p>What can we expect for his quality of life? What sort of appointment schedule will he be on? What doctors would he need to see regularly?</p> <p>What therapies/services do you anticipate he will need in childhood and beyond? What delays should we expect or be on the lookout for?</p> <p>What therapies/services do you anticipate he will need in childhood and beyond? What delays should we expect or be on the lookout for?</p> <p>Who will be coordinating his care among the multiple clinics he will be a patient of? </p>