https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Wed, 13 May 2026 16:51:30 +0000 https://boards.hellobee.com/topic/we-might-finally-have-an-answer#post-2228521 Tue, 07 Jul 2015 09:06:55 +0000 BabyBoecksMom 2228521@https://boards.hellobee.com/ <p>She is so precious! Glad she's doing well and that you have some answers. Snuggle her and I hope you get to be home soon. </p> https://boards.hellobee.com/topic/we-might-finally-have-an-answer#post-2228514 Tue, 07 Jul 2015 09:04:51 +0000 delight 2228514@https://boards.hellobee.com/ <p>She's so lovely. I'm glad you might have some answers. I'm so happy tar you are holding that sweet baby girl and get to go home soon. :heart: </p> https://boards.hellobee.com/topic/we-might-finally-have-an-answer#post-2228428 Tue, 07 Jul 2015 07:43:09 +0000 T.H.O.U. 2228428@https://boards.hellobee.com/ <p>Big hugs! Glad to see you both doing well! </p> https://boards.hellobee.com/topic/we-might-finally-have-an-answer#post-2228343 Mon, 06 Jul 2015 23:56:02 +0000 coopsmama 2228343@https://boards.hellobee.com/ <p>Wow, what a journey you've been on and now to finally have a possible answer - such a relief, I'd think!</p> <p>Your sweet girl is TOO cute! Giving me baby fever! Her squishy little face is killing me! </p> https://boards.hellobee.com/topic/we-might-finally-have-an-answer#post-2228321 Mon, 06 Jul 2015 23:16:09 +0000 Boogs 2228321@https://boards.hellobee.com/ <p>It must be a relief to have some sort of answer. And what a precious little girl, congrats on going home soon! </p> https://boards.hellobee.com/topic/we-might-finally-have-an-answer#post-2228318 Mon, 06 Jul 2015 23:12:58 +0000 Ginabean3 2228318@https://boards.hellobee.com/ <p>Wow!! That's crazy that you might have a true answer to everything!! Your sweet girl is just darling!! Sending you best wishes and I hope you guys can go home soon!! :heart: </p> https://boards.hellobee.com/topic/we-might-finally-have-an-answer#post-2228311 Mon, 06 Jul 2015 22:50:22 +0000 Mrs Green Grass 2228311@https://boards.hellobee.com/ <p>Congrats on the great NICU progress! It must feel good to have some possible answers. </p> https://boards.hellobee.com/topic/we-might-finally-have-an-answer#post-2228306 Mon, 06 Jul 2015 22:34:57 +0000 Mrs. Microscope 2228306@https://boards.hellobee.com/ <p>Knowledge is power. Here's to hoping you finally have answers! And I'm so excited that you will all be going home soon :happy: </p> https://boards.hellobee.com/topic/we-might-finally-have-an-answer#post-2228303 Mon, 06 Jul 2015 22:22:30 +0000 Torchwood 2228303@https://boards.hellobee.com/ <p>As many of you know, we've been through a LOT the last two years on our journey to become parents. 2 miscarriages, severe fetal hydrocephalus that necessitated a late-term termination, and now preterm labor that landed us in the nicu (but with a thankfully very healthy baby). Even with all the testing we've done, they've never found a cause for any of it, though it seems like a hell of a coincidence to say it's not all related somehow.</p> <p>My dad was thought to have fibromyalgia, but in the last few weeks he was able to see a specialist (they actually traveled from TN to TX just to see this doctor), and they now think he (and my sister too) has EDS, Ehlers-Danlos Syndrome. If he does, there's a 50% chance that I do as well. It can cause miscarriages and preterm labor for sure, and it *might* cause hydrocephalus (I'm trying to research it, but it's hard on my phone while holding a sweet baby girl). </p> <p>I don't know if there's anything they can do about it, to make pregnancy safer in the future, so this does reinforce our decision to only have one. But it's also a relief to just have a possible answer. It's just been so bizarre, having so much go wrong, and there never being a reason. Maybe it really wasn't just the world's worst luck. For some reason it makes me a little sad, maybe just because thinking about it is bringing back all those memories. But it also makes me extra grateful for the healthy baby that we have, knowing that she was at risk too. </p> <p>And for those who are wondering, she's doing great. She's in a regular crib, no isolette, and they took out her feeding tube in her nose today. As long as she keeps doing so well, we should be home soon! </p> [attach=3674/15/nr3lfa.450x600.image.jpg]