https://boards.hellobee.com/ Pregnancy, Baby and Parenting blog, by Hellobee en Fri, 24 Apr 2026 16:07:08 +0000 https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058759 Sat, 07 Feb 2015 14:46:04 +0000 Mrs. Jacks 2058759@https://boards.hellobee.com/ <p>@Ms.Badger: @Mrs. Tiger: neonates often get OG tubes (oro-gastric) because they have nasal prongs, cpap or other things going on in their tiny nares :) </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058754 Sat, 07 Feb 2015 14:38:36 +0000 Mrs. Tiger 2058754@https://boards.hellobee.com/ <p>@Ms.Badger: Ohh gotcha. I always just put the onesies on feet first to avoid going over the head. Good points! </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058742 Sat, 07 Feb 2015 14:23:25 +0000 Ms.Badger 2058742@https://boards.hellobee.com/ <p>@Mrs. Tiger: because anything that goes over the head pulls the NG down and then come out the bottom and I didn't want the tube by his diaper, with snaps I had control of where the tube went, either just off his face, or out the snap holes in the front. If he wasn't hooked up then you could put things over his head, but L would blow out when he was hooked up again and then you had poopy clothes around a feeding tube. NGs are more similar to broviacs. I'm sure if you're on bolous feeds a few times a day it doesn't matter. </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058729 Sat, 07 Feb 2015 14:01:27 +0000 Mrs. Tiger 2058729@https://boards.hellobee.com/ <p>@Ms.Badger: why the snaps? Did you string his NG back through his clothes? I do avoid things that zip up to the neck...</p> <p>I have no idea why they put it in the mouth first... D had it in his mouth for less than a week. Maybe @lady grey: or @Mrs. Jacks: knows... </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058717 Sat, 07 Feb 2015 13:48:08 +0000 Ms.Badger 2058717@https://boards.hellobee.com/ <p>Just want to put it out there for NG tube kids, it's so much easier to have snap up clothes (carters creepers were best for L). I know intestine transplant kids often kept their N_ tubes over G-tubes because that surgery to place it was dangerous for the new intestines. </p> <p>Bolous feeds are when you feed them a whole meal over a short time, like how you and I eat, instead of a lower rate all day.</p> <p>I dont remember when D got his feeding tube initially but I've seen that NICU babies often get their tubes placed in their mouth, is that correct? Is it just because their noses are too small? </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058683 Sat, 07 Feb 2015 13:02:11 +0000 Mrs. Tiger 2058683@https://boards.hellobee.com/ <p>@lady grey: good ideas!</p> <p>@Grace: I'll go in depth on how I get D dressed (which I think will point out how similar it is to other babies!) long story short baths &amp; tummy time are no different (apart from just after the surgery)... swimming in gross or sandy water depends :) </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058652 Sat, 07 Feb 2015 12:21:47 +0000 Grace 2058652@https://boards.hellobee.com/ <p>I think talking about clothing is good idea. You say it's easy, but to someone clueless, they may be picturing something really complicated. Along that same vein, what things are done "normally"? Can babies with tubes have baths? Have tummy time? What things are we thinking are super complicated, but actually aren't? </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058630 Sat, 07 Feb 2015 11:45:23 +0000 lady grey 2058630@https://boards.hellobee.com/ <p>@Mrs. Tiger: Coming from the nurse perspective, I'd love to know more about what the experience is like for families to learn how to place/replace NG tubes and mic-key gtubes. Also did they feel they we're appropriately educated on complications that can happen from feeding tubes and/or trouble shooting before their child got the tube? for example dealing with granulation tissue. </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058618 Sat, 07 Feb 2015 11:30:25 +0000 Mrs. Tiger 2058618@https://boards.hellobee.com/ <p>@Mrs. Jacks: I've seen/heard of special broviac clothes, but not tubie ones. I'll look into it! </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058585 Sat, 07 Feb 2015 10:41:03 +0000 spaniellove 2058585@https://boards.hellobee.com/ <p>@Mrs. Tiger: I thought she had a g-tube since she was born needing surgery to remove part of her bowel and at a couple months old she'd never been out of the hospital yet. There was so much confusion while I was there about transitioning some aspect of her care because she was about to hit some magic weight number that I really didn't know what was going on! </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058566 Sat, 07 Feb 2015 10:23:12 +0000 Mrs. Tiger 2058566@https://boards.hellobee.com/ <p>@MamaBehr: yes I imagine that's tough to hear constantly, presumably she got a feeding tube because she wasn't getting enough nutrition! Glad my posts were socially helpful :)</p> <p>@spaniellove: totally depends! There are sooo many reasons a little one could need a feeding tube. If she was pulling hers out I guess it was an NG right? </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058563 Sat, 07 Feb 2015 10:22:14 +0000 Mrs. Jacks 2058563@https://boards.hellobee.com/ <p>@Mrs. Tiger: there are lots of questions about that in the hospital, so I thought it would be a question that a new tube feeding parent would have. I believe there are some WAHMs that make tubie onesies? </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058542 Sat, 07 Feb 2015 09:40:35 +0000 spaniellove 2058542@https://boards.hellobee.com/ <p>I'm curious whether the feeding tube is forever?</p> <p>The time we spent sharing a hospital room with a tubie the same age as J made me a bit curious about what was going on over on the other side of the room. Like I couldn't picture what was happening when she pulled out her tube, and I got confused about her timed feedings - the nurses teased her about how she was very serious about her food. (She weighed more than J!) And what is a bolus? </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058527 Sat, 07 Feb 2015 09:01:26 +0000 MamaBehr 2058527@https://boards.hellobee.com/ <p>I think I met a mom who has a little girl who has a feeding tube, the little girl is 16 months old, and everyone kept commenting on how small the LOS was. Like, every 5 minutes someone different said "she's so tiny," and I began to think that the mom must hear that all the time. So what are some things that might be insensitive to say/ask. Maybe, what are some things you are sick explaining over and over again.<br /> Ps, I totally knew what the mom was talking about with the feeding tube because of your blog posts! </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058497 Sat, 07 Feb 2015 08:19:49 +0000 Mrs. Tiger 2058497@https://boards.hellobee.com/ <p>@Mrs. Jacks: hmmm.. is it challenging? I would think to just throw on a onesie underneath regular clothes or pjs and a feeding backpack would cover it. Maybe I'm too used to it to examine it objectively haha :) </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058402 Sat, 07 Feb 2015 01:01:57 +0000 Mrs. Jacks 2058402@https://boards.hellobee.com/ <p>You could talk about dressing a child with a g-tube-- especially challenging for little guys on continuous feeds. </p> https://boards.hellobee.com/topic/what-are-your-questions-about-feeding-tubes-or-life-with-a-feeding-tube#post-2058316 Fri, 06 Feb 2015 22:24:19 +0000 Mrs. Tiger 2058316@https://boards.hellobee.com/ <p>Next week is feeding tube awareness week! I'm putting together a blog post but wanted to crowd source to see if there are any burning questions or lingering curiosity the hive may have about D, his feeding tube, and the mysterious life I live ;)</p> <p>If any tubie parents have cropped up since I last asked, please introduce yourselves! :) </p>