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Yeah, no more ordering online without a prescription. Suckssss.

ETA: I'd be very surprised if your doctor would actually write you a prescription for it knowing it isn't FDA approved for lactation purposes!

I wasn't able to find a way to get it

@Skadi: this topic just came up at my weekly nursing group. one of the mamas is taking dom and needed a refill, but ran into the same problem of needing a script to re-order. one of the other mamas in the group recently purchased a refill (after being told she needed a script) and said if you pay by e-check you don't need a script. not sure how accurate that is, just wanted to pass it along to see if that is an option you've tried!

@ms.janedoe: Yes, they can. I use off label medications for kids all the time.

@Charm54: It's not FDA approved because in the IV form, it can cause heart problems. This hasn't been shown in the oral form.

@Skadi: I would talk to your doctor in person (i.e. not through a nurse) and say, "I have been using Domperidone for XX weeks, and the side effect risks of Reglan (tardive dyskinesia) are far greater." You can also ask your LO's pediatrician, and finally, call the lactation consultants at your hospital and see what they say. They may have a nurse practitioner willing to write the script for you. Many hospitals have "lactation boutiques" you can call for support.

@Skadi: I am SO sorry. Reglan didn't even work for me because it didn't address my underlying issues. I would try talking to your doctor again, and check around if there are any LCs or nursing groups that can recommend physicians who might be willing to prescribe. This just seems really unfortunate to me.

@ms.janedoe: It is entirely legal, but the doc has to disclose that it is off-label. The FDA doesn't regulate how drugs are prescribed, just which ones are approved, if that makes sense. For example, some pediatricians prescribe an old-school antidepressant for bed-wetting, because it has a "side-effect" of helping that condition, even though that is obviously not what it is intended for!

My pediatrician gave me a script, primarily because I hadn't established with an OB yet. Next time, I'll ask my OB or my PCP. The lactation benefit of Domperidone is fairly well recognized, so honestly, it's lack of familiarity on the physician's part. (i.e. Some docs only use certain antibiotics, because that is what they are used to prescribing.) And I would waaaay rather take Dom than Reglan. I've seen a patient with tardive dyskinesia from haldol and it isn't reversible. I had to have Domperidone too, but realize it costs about $130/month from a compounding pharmacy. It's not cheap!

@jaypegs: where are you purchasing it if you don't mind me asking?

I had low supply with my first and didn't find out about dom till I was about ready to wean. But i am definitely exploring it immediately if I have low supply again with #2.

@Skadi: it was OTC in Italy, too! I had a straight-up panic attack when I noticed the site that was recommended to me started asking for a script (they wouldn't accept my italian prescription), and since i didn't have a doctor here, I was s-o-l.

I'm sorry that my post isn't helpful, but I just want to let you know that I know where you're coming from. Luckily, we were at the point where baby-led weaning was starting to happen, so I just slowly weaned myself from the dom, and then she slowly started to wean even more since my supply tanked. But...now I'm pregnant again and REALLY worried that I'll need to use it again. Thanks for reminding me that I need to start talking about it with my OB.

@locavore_mama: i used inhousepharmacy.biz

@ms.janedoe: My midwife wrote me a script for domperidone for lactation. I filled it at a local compounding pharmacy.