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IF Check In - 10/17

  1. Shutterbug

    grapefruit / 4703 posts

    @bluestriped bee: I agree that you should demand to be monitored (both with b/w and u/s) for any more IUIs you do, and of course for IVF. Personally I feel like that's a little reckless of them to medicate you and blindly do an IUI when you could have like, 5 follicles!

    FWIW, my clinic has a bit of a reputation for being a 'baby factory' where you feel like a number, but when I said that to DH, he said "Well don't we want a baby? Then shouldn't we go to the factory to get one?"

  2. BSB

    hostess / wonderful apple seed / 16729 posts

    @Shutterbug: Well, I do get u/s to see how many follicles I have and look to see how my lining is. I just don't get blood work.

  3. Shutterbug

    grapefruit / 4703 posts

    @bluestriped bee: oh, good! I thought you meant no monitoring at all. Still, b/w would be helpful, of course. Normally when I go for my U/S I get progesterone, estrogen (estradiol) and LH tested.

  4. BSB

    hostess / wonderful apple seed / 16729 posts

    @Mrs.Someone: Oh, wow. I can kinda see where your ND's comment was coming from. Luckily, it's time and not money, although if they were wasting money and running unecessary test, I would probably more be pissed. I do know that my RE has changed nurses. The one I have currently is just okay. I can't remember how the nurse was before her was.

    This is just a guess but maybe when they looked at my b/w initially everything looked normal so maybe that's why they didn't do periodic b/w.

    I did do a google search and found this thread. http://forums.fertilitycommunity.com/forum/infertility/infertility-treatments/intrauterine-insemination-iui/64880-my-doctor-never-did-blood-work-during-my-last-iui-is-this-normal

    Looks like it's up to the doctor to do b/w.

  5. BSB

    hostess / wonderful apple seed / 16729 posts

    @Shutterbug: So do you still test with OPKs or just b/w?

  6. Shutterbug

    grapefruit / 4703 posts

    @bluestriped bee: just b/w. I call on CD 1, they give me med instructions and schedule a monitoring appointment for CD 12. Then on CD 12 I get b/w and u/s, and the nurse calls me that afternoon to either schedule another monitoring appointment (if needed) or give me instructions to trigger and schedule the IUI and HCG beta (2 weeks after IUI). The first month I had to go in 3 times to do b/w and u/s because my dosage was too low and I wasn't responding. After that I've only gone in once a cycle and then triggered.

  7. Mrs.Someone

    pomelo / 5228 posts

    @bluestriped bee: I guess go with your gut then. If you feel they can still help you, then stick with them. But if you feel like they're wasting your time, then it may be time to move on to a new doc. Does your insurance cover IVF? If not, I'd hate to see you go for it and spend so much $$ without getting a proper IUI.

  8. BSB

    hostess / wonderful apple seed / 16729 posts

    @Shutterbug: Oh, wow. Cool. I really hate those OPK tests. The one thing that is different is they actually inject the trigger shot.

    I would call on CD1, they tell me to start meds on CD3-7, then I would come in on CD10-11 for an u/s. Both times, they triggered after my u/s and scheduled the IUI the next day. Then I would wait til AF would come.

    I always had dreams of becoming a nurse or a doctor, so I was a little disappointed I couldn't inject myself. Though, if I get to an IVF, I'm sure I'll get my chance then.

    Thanks! I see my RE in a little over an hour. I'll make sure to demand b/w. I want blood! I want blood! Haha!

  9. Shutterbug

    grapefruit / 4703 posts

    @bluestriped bee: haha good luck!! DH does my trigger because I sat there for 10 minutes with the shot in one hand, and my skin pinched ready to to be shot in the other, and I just. couldn't. do. it!

  10. BSB

    hostess / wonderful apple seed / 16729 posts

    @Mrs.Someone: No, insurance does not cover IVF. Does yours? I don't think we have those privileges in the state of WA.

    I'm pretty sure, I'm going to have at least one more IUI before IVF. Maybe more IUIs.... who knows. Although, I kinda feel like I'm done with IUIs and want to aggressively go with IVF.

    Though, I'll wait til I get b/w results on my next cycle and see how I feel.

  11. BSB

    hostess / wonderful apple seed / 16729 posts

    @Shutterbug: I think the DH would pass out if he has to do it to me. He is squirmy with needles. Though, he's been to the hospital many times for his asthma, so he has definitely had bad memories associated with it.

    Funny story. He got an epi pen a few years ago and I was going around practicing on stabbing him (and myself) with the trainer pen. He was terrified! Haha. I'm a bad wife considering he didn't have a good experience with the epi pen when he had to use it when he was a kid. At the time, I was thinking I was preparing myself for if and when I had to do it.

  12. Mrs.Someone

    pomelo / 5228 posts

    @bluestriped bee: We're pretty lucky, our insurance covers up to $15,000/each for IF stuff. So far, I haven't seen anything I've had done come out of that amount yet. Also, the clinic said they can bill anything outside of my body to DH's record so we can use more of the $30,000 together.

  13. BSB

    hostess / wonderful apple seed / 16729 posts

    @Mrs.Someone: Oh, nice! I've heard from dr that I have good insurance. My accupunturist still can't believe I get 30 visits a year and the DH was approved for this new medication that costs $2k per shot and he gets the shot every 2 weeks. But, yeah, my insurance covers the diagnostic tests of IF only, which was gone a long time ago. Everything else is on us.

  14. Mrs.Someone

    pomelo / 5228 posts

    @bluestriped bee: I guess they are each good in different ways I only get $750 towards acupuncture, which is gone quick. And really thankful that my ND isn't considered "alternative" on our new insurance.

  15. BSB

    hostess / wonderful apple seed / 16729 posts

    @Mrs.Someone: You know the clinic you go to is actually closer and more convenient to my work. I work on Eastlake so I was tempted to go there.

    I picked my current clinic, because it was across the street from my work offices. My work moved last year and now it's kind of a pain to travel up to the Capital Hill area. I had paid parking when I worked there but now I have to pay for parking.

    So out of a scale of 1-10, how would you rate your clinic?

  16. Mrs.Someone

    pomelo / 5228 posts

    @bluestriped bee: Yea, I thought I remembered you mentioning working on Eastlake. You'd save tons on parking if you could walk there! I'm going to give you a few different ratings:

    HSG Overall Experience: 9. I really liked the doctor who saw me. She even thought she saw something on the x-ray, so took me over for a quick ultrasound and checked my ovaries when she was in there. Plus, I wasn't billed for the bonus ultrasound. They were very empty that day though. If you want to switch, I can give you this doc's name (and tell you which to avoid!)

    2nd Doctor + blood tests: 5. The doctor was aloof and not sensitive. I wasn't too fond of her nurse either. Also, they ran progesterone without checking whether or not I wanted it done, and what day I was on. Nothing major, but enough for me to want to switch to the original doctor.

    I have liked the medical assistants, the one who drew my blood (and maybe made the mistake?) was probably the at it that I've ever had. But they are always running like 20mins late.

  17. FaithFertility

    eggplant / 11861 posts

    Scale of 1 to 10 I'd give my office an 8 I'm overall super happy with them I just hate how at times I wait forvever for a call back!

  18. FaithFertility

    eggplant / 11861 posts

    A woomen with an IF question is a ticking bomb....lol

  19. spaniellove

    honeydew / 7916 posts

    @bluestriped bee: How did your appointment go?

  20. BSB

    hostess / wonderful apple seed / 16729 posts

    @spaniellove: @Mrs.Someone: @Shutterbug: So my appointment was okay. RE said that we can go ahead and do another IUI next cycle. Since I've had a history of enlarged follicles, I'll mostly likely have to do a medicated cycle followed by an unmedicated (natural) cycle. RE looked over my history and wants us to do the trigger and IUI closer to CD14 (instead of CD10-11, we've done in the past). She wants my lining to be thicker. She said she was okay with us doing a IVF cycle if we wanted to in January. (This is was the plan I had in my head. Which is good!) Although, she says that she would feel better if we tried one more IUI after this upcoming IUI cycle. She would like 4 IUIs before going to IVF but she said it's up to us.

    She's going to dose down my Femera from 5mg to 2.5 mg for this cycle.

    She did not recommend another HSG because the one I had last year showed no signs of blockage. She only repeats it for patients with history of blockage. (It's is a relief for me, since I didn't have the best experience because of post op pain that made me stuck in bed all weekend.)

    Even though, she said I've had a history of not responding well with OPKs, she does want me to continue using them. Just to make sure I don't ovulate earlier than CD14. Oh, they want me to test only in the morning after my SECOND morning urine. (I've never heard of second urine before. I thought it was always first morning urine.) Also, I asked her if I should check in the afternoon, like I thought I was suppose to. They said no, only check second urine and test once a day.

    Sorry for the buildup but I spoke to her about the blood draws. For her (and maybe at this clinic?), they only do Day 3 blood draws once every 6 months. Since it's been 6 months since my last one, I will have my blood drawn this cycle. They don't do monthly/continuous blood draws. I asked the nurse and then the RE about 4 separate times. They feel as though the blood draws are too expensive and the ultrasound with OPKs are a better indicator of ovulation. Also, this is based off of my blood tests, in the past, being normal for AMH, estrogen and FSH. I asked about whether blood draws could better monitor how my estrogen and progestrone levels were. They said the femera and trigger shot should be enough progesterone in my system and therefore should not need to be monitored. I asked about blood draws being able to better measure LH surge. She said it does but I would have to get blood draws every 12 hours and that could get expensive. She said ultrasounds were better at seeing ovulation. I asked if I could have more ultrasounds then. She said I could but once again it could get expensive.

    Prices for tests (each additional ultrasound- $180; each additional blood test with LH testing-$100+)

    As for IVF, we did meet with the financial counselor and the numbers weren't that bad. Thanks to @JustDarling: for sharing me her RE's website for IVF plans. Also, @spaniellove: for giving me ballpark figures for IVF. Pretty much spot on for my RE's office. I didn't have much of a sticker shock when I saw their numbers. Thanks guys!

    So, in summary, I was disappointed that my dr/clinic doesn't do more blood tests and that their reasoning was that it was unnecessary and expensive. Which I value that they didn't want to make my treatment too expensive. I can still do more ultrasounds and blood draws, if I want to pay for it. Maybe they adjust their IUI process based on if you are paying out of pocket or if it's covered under insurance. Or maybe they don't and it's standard for them.

    I am hopeful for IVF in January.

    Oh, I asked the financial counselor about the refund plan and the multi-cycle IVF plan. I apparently have to bring this up with my dr to be approved for those plans. I guess I'll bring it up the next time I'm in.

    So here is an overview of what's to come.
    CD1: call office
    CD3: blood draw
    CD3-7: Femera at 2.5 mg
    CD10-14: OPKs once a day at second morning urine. If I get a positive, I'll come in for HSG trigger shot. (Maybe ultrasound, too?) Followed by IUI.
    CD14- If I have all negative OPKs, I'll come in for ultrasound and they will trigger. IUI will be schedule the following day.

    So that's that. Sorry for the super long update. Thanks for reading.

    So what do you guys think? Should I pay to have more ultrasounds and/or blood tests?

  21. FaithFertility

    eggplant / 11861 posts

    @bluestriped bee: sounds all about right, but the CD 12-14 BLOODWORK can show estrogen levels, that will let you know if your eggs are really mature or not. .... each mature follicle will/should produce 100-250mg of estrogen???? Don't quote me but.... my office had said you can have a follicle 17mm-20mm but if your estrogen levels are low, your body more than likely won't ovulate it, or it's big but not mature to get fertilized

  22. Shutterbug

    grapefruit / 4703 posts

    @FaithFertility: @bluestriped bee: that's true! My first IUI cycle I had a mature follicle but my estrogen was low, so they had me wait another day and then my estrogen went up. Without the b/w I probably would have triggered too soon.

    @bluestriped bee: sounds like a good plan! I'm most likely doing IVF in January as well

  23. spaniellove

    honeydew / 7916 posts

    @bluestriped bee: As @FaithFertility: and @Shutterbug: said it's important to track your E2 levels, and if you're considering IVF it's a good idea to go in with some history of what your levels and follicles tend to do during your cycle.

    I think the doctor's reasoning about LH is a little off...they don't need it every 12 hours! They only really need it at the appointment when your follicles look mature and possibly at the appointment before that just to be safe (to make sure you're not surging too early) which could be a day or two before. In the past my clinic has told me to ignore a positive OPK because my LH hadn't surged enough to trigger.

    When you mention enlarged follicles, do you mean one runaway follicle that has gotten bigger than the others? Or that they're all overmature?

  24. Mrs.Someone

    pomelo / 5228 posts

    @bluestriped bee: It sounds like the doc is at least listening to you and answering your questions. But I don't like how her reasoning for not doing things is because its too expensive. Its also too expensive to keep having more and more IUIs if one isn't monitored correctly. As for what is the correct protocol, I would trust anything that @spaniellove: recommends

  25. spaniellove

    honeydew / 7916 posts

    @Mrs.Someone: Aww you're too nice

    FWIW my clinic actually makes patients do a monitoring-only cycle when they start out. That made me mad at first because I was impatient but they really believe in the data. Having it to refer to was what enabled us to figure out the real problem with my follicles (not just the vague "DOR") and and doing the monitoring allowed us to switch treatments every few days.

  26. BSB

    hostess / wonderful apple seed / 16729 posts

    @FaithFertility: @Shutterbug: @spaniellove: @Mrs.Someone: Yeah, I'm kinda at a loss of what to do. The DH even mentioned to me that the nurse and Dr was getting rather annoyed that I brought up the blood work so many times during our meeting. I was annoyed for about 20 minutes that the DH didn't support me.

    On one hand, I want to trust my RE but, on the other, I've read things from you and the internet that makes me think I should get blood work.

    I just don't know what to do. I don't really want to change clinics because I might have to do all the tests over again (including the HSG). Plus, getting into another clinic will delay our timelines.

    As for my clinic, I guess I'm looking at their stats compared to other clinics and they both seem to making babies. Whatever their process is is working. The poll I asked, it seems like at least 3 people had IUIs where blood work was not taken every cycle. So this practice might not be completely abnormal and unheard of.

    I don't know. I don't know. I'll admit it, but I'm stuck between trusting my doctor and trusting you guys. I don't really have a gut feeling on who to go with. You both have valid reasons. I'm torn.

    ETA: Maybe I can request that they take blood at my CD14 ultrasound to confirm my estrogen levels. Although, can they interpret how my E2 levels are based off of CD3 blood and CD 14 blood? Or will they need a series of blood draws to see how my E2 levels are really behaving. Is it worth it to spend $400 on just two blood draws or more if they want more? What happens if it's normal? Will they just give me a look of 'I told you so?' I guess it's a part of me that thinks my RE knows what she's doing and she has my results to determine the best plan of action. I know you guys are looking out for me and giving me your experiences, but I don't know your past history and diagnosis. I don't know how your results might have affected your treatment course.

    I really do love all of our input and support and I'm know I would lost without you guys.

  27. Happygal

    pomelo / 5000 posts

    @bluestriped bee: If your doctor has stats to show what they're doing is working, and it will help with your stress to follow their protocol, I vote for doing that. It's good to be informed, but I've learned that every doctor does things in a different way. I like to ask my doctor, share what I've read, and hear their explanation.

  28. Happygal

    pomelo / 5000 posts

    Just back from the RE for a CD 21 ovary check, and it was not so good. Lining close to 6, but not quite. She thinks it's time to move on to injectables. I appreciate that she said, "Maybe you'll be pregnant!" but I don't have a lot of hope.

    I did that bad TTC things where you start to get hopeful that this cycle is the one, and I thought how fun it would be to tell our family at Thanksgiving.

  29. spaniellove

    honeydew / 7916 posts

    @bluestriped bee: Ultimately it's about what you can live with. I struggled so much with the decision to leave my first clinic and couldn't decide what it would take to make me leave. The first time I wanted a second opinion before IVF and scheduled the appt with the other clinic but then made so many excuses to myself and ended up canceling. So I ended up doing IVF with the first clinic and they screwed me over. That's when I finally got mad enough to switch for real. So you'll know it in your gut when and if the time comes.

  30. spaniellove

    honeydew / 7916 posts

    @Mrs.Someone: We got our 23andMe results back and boy am I glad I did it. I initially did it because I wanted to know which mutation I have (since I'm too lazy to just request my clinic records), and not only did I learn that but I found that DH is compound heterozygous. His grandfather died of heart issues and his father has major heart issues as well so maybe this will help us.

  31. Mrs.Someone

    pomelo / 5228 posts

    @spaniellove: I found the same about my DH! He doesn't want to do anything about it though. Valuable data to know for our future kids though. Have you played around searching for things in the raw data? I think its a pretty cool tool.

  32. spaniellove

    honeydew / 7916 posts

    @Mrs.Someone: I don't really know yet what I can look for! My DH wants to take the same things I take since MTHFR-related symptoms factor so prominently in his family history and his own life. I love data though so having this at my fingertips is amazing. We laughed at the ancestry part that said I'm only 99.6% East Asian while he's only 90% Jewish and 0.1% East Asian.

  33. Mrs.Someone

    pomelo / 5228 posts

    @spaniellove: you can search for almost any genetic condition. I usually go to google and type in the condition + snp, then put the snp into 23&me. Have you gotten any interesting relative results yet? I'm Jewish too, so I have a ton of closer cousins in there. My DH is even listed as a distant cousin.

  34. FaithFertility

    eggplant / 11861 posts

    Finally back in the game afyer such a long month it seemed....CD 4 today had my base u/s and b/w and fot the clear so I started clomid last night .... joy joy I go back on Halloween to check where I am at!!!! Goes sooo fast one you get started!

  35. TheSwissWifeStyle

    nectarine / 2600 posts

    @FaithFertility: awesome, good luck!!

  36. FaithFertility

    eggplant / 11861 posts

    @TheSwissWifeStyle: Thank you! How are you?

  37. TheSwissWifeStyle

    nectarine / 2600 posts

    @FaithFertility: ok. Just waiting til my next scan on Monday. Hoping for good news, and excited about going to the US on Tuesday!!

  38. FaithFertility

    eggplant / 11861 posts

    Good luck as well :)))

  39. Mrs. Jump Rope

    blogger / coconut / 8306 posts

    @FaithFertility: good luck! I have my scan today.

  40. FaithFertility

    eggplant / 11861 posts

    @Mrs. Jump Rope: Let me.know how it goes :)))))

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