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My first had FPIES and couldn't tolerate anything until around 14 mo and then it was a slow process of trial and error, adding maybe one food a month, until he outgrew FPIES. I breastfed him until 21 mo on a limited diet (he self weaned) and had enough BM saved up that he has it until 25 mo. At around 14 mo we started introducing 1 box Splash per day, which is a ready made hypoallergenic nutritionally complete formula for kids over 1 with severe food allergies and GI issues. We added this to replace calories and nutrients missing from solids. He still nursed around the clock like a young baby. After he stopped nursing he got 2 boxes per day in addition to the frozen BM I had. Between 2.5-3 he started to eat a regular diet and has since.

My second was EBF until 11 mo. Everything I ate caused blood in her stools and chronic diarrhea (we thought she had FPIES too, but turns out she has something else that we are still trying to work up). I nursed her while eating the same 3 foods for a year. We tried to introduce an elemental formula for added calories but she wouldn't drink it. We were getting to the point of feeding tube or else, but she is also neutropenic and a feeding tube was a less than ideal option for her hematologist, so we decided to try solids as a last ditch effort. Amazingly she could suddenly tolerate them and the foods in my diet! She has been eating anything she wants since (16 mo now), but is still mostly breastfed. We have introduced whole cow's milk recently and she also drinks water. We went right to a straw cup with those and she has been doing great with them. I have a TON of BM saved for her as well but she will not touch any of it.

Not sure if they really helps answer your question, but you are not alone in this. Others have also been down this road. You will find what works for you and your LO's and also figure out those missing pieces to that puzzle you are currently working on.

@twodoghouse: eh my first is doing well. My second is a mystery. Feeding wise, as far as eating and being able to tolerate everything she is doing great. Loves to eat!!! Eats more than my (almost) 4 year old!

Hmm have they looked at eosinophilic esophagitis? When you said reflux it made me think of that (we had to rule it out with both of mine at some point). Have you tried working with a SLP or dietician/nutritionalist for ideas? Sometimes thinking outside the box is all it takes. Try looking into some FB groups too. you might find more help there.

A real diagnosis unfortunately does not always happen, but it is so much easier for us mamas when we can put a name to whatever it is and then research the heck out of it. I hope you find one.

@twodoghouse: Yea. I feel you on all accounts. I sort of hate how docs always ask about "concerns".... because like, I have questions. Doesn't necessarily mean I'm concerned, but like... what the hell do I know about babies (nothing) lol. So sometimes I just have a list of things and I'm like.. normal? not normal? cool. But then I feel crazy for asking too many questions. Also it is sort of frustrating when our LOs aren't quite "on track".... for so long through our bottle issues I had this 12 mo mark set in my min like if we could make it to then we could get her off bottles and on real food. And now that is basically.... not at all going to happen. My new "goal" or point in my mind is that I'm sort of hoping by 18 mo we will at LEAST be down to just wakeup and bedtime bottles, if not off them all together. But in the grand scheme of things... we'll all get through. Our kids will eat food. Some day.

@twodoghouse: poor babies I feel the same way with Fiona a lot. Because of course what she wants most is whatever I have. Which mostly are things she can't eat due to the MSPI. And I feel like such a jerk all "here kid, eat some black beans and corn and peppers while I have those things smothered in a cheesy quesadilla of deliciousness" and she's staring at my food like.... WANT.

@Mae: @twodoghouse: I have a long list of stomach issues myself, and I just want you to know that F and A and B are lucky to have you as advocates

@anbanan15: good to see you back around these parts!

@LovelyPlum: Thank you! We are expecting again so I decided to come "home" It's just hard to find the time to post.