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Waiting for HCG to move out so AF can visit

  1. pachamama

    nectarine / 2435 posts

    @yellowbeach: yayy! listen, we're all a little outside our minds here. You have no idea the things I've googled or the charts I've researched. Crazy town.

  2. yellowbeach

    nectarine / 2645 posts

    Ok so I’m a wee bit in uncharted territory, but my HCG is stone cold negative (hurray!) and a faint line on my OPK. Plan is repeat HcG quant on Tues and US sometime next week. If uterine lining is thin, we will be able to proceed with a FET. If not, I might demand a D&C as weird as that sounds.

  3. PurplePumps

    pomegranate / 3809 posts

    @yellowbeach: I think it's normal to have a LH line all the time? I know LH can detect HCG too, but I've never had a LH test be blank, even when my HCG was 0.

  4. karenbme

    persimmon / 1418 posts

    @yellowbeach: I'm in the same boat as @PurplePumps, LH is never totally negative. So it's very possible that you're in the clear.

  5. pachamama

    nectarine / 2435 posts

    yup, I never once got a totally negative LH read. always a little in there unlike HCG. I think you're good! I love that color white :-*

  6. yellowbeach

    nectarine / 2645 posts

    Ugh you guys I’m afraid my HcG is going back up. Took these tests just now and have a faint positive HcG and a darker LH than when I checked a few days ago. Repeat HcG in the morning but I’m losing hope. If it’s not gone I’m demanding D&C. I’m coming up on 10 weeks since TFMR now.

  7. yellowbeach

    nectarine / 2645 posts

    This is my chart - if the spotting bleeding that started on the 19th was truly AF.

  8. bhbee

    cantaloupe / 6085 posts

    @yellowbeach: I think you’re probably right there’s a little hcg, but I don’t think it’s necessarily going back up, if that helps at all. I know from personal experience with trigger testing ... wondfos aren’t reliable for testing to 0. Some tests will pick up very low numbers and some will not. I hope it’s just down to the last bit. I wouldnt worry about the LH stick either way since it’s normal for those to fluctuate but stay under true positive.

    I’m so sorry this sucks so much, i can’t imagine all the waiting and wondering. Hope you get answers ASAP.

  9. pachamama

    nectarine / 2435 posts

    @yellowbeach: here's my interpretation....You're approaching ovulation so the LH is increasing and maybe your pee was slightly more concentrated this time so that tinyyyyyyyyy amount of HCG is showing up. But barely!!! I can't imagine it could go up, it's not like anything is growing ya know?!

  10. LabradorLover

    kiwi / 548 posts

    @yellowbeach: I don't know anything about charting so I can't give an opinion on that but I am hopeful that you are headed towards ovulation and that is why your LH is up. I don't think your HCG would increase so I have to agree with @bhbee: and just say it is probably just the test.

    Hoping for answers for you soon!

  11. yellowbeach

    nectarine / 2645 posts

    HcG 17.

  12. Sams Mom

    grapefruit / 4492 posts

    @yellowbeach: At least that is less than your last one, right?

  13. yellowbeach

    nectarine / 2645 posts

    @Sams Mom: yes - just waiting for a call from my RE on the plan from here. In the office this morning I was pushing for and end to this mess (D&C), but there's a real risk of scarring from D&C, and I have enough fertility issues as is. We had said that if it was >10, he'd schedule me for D&C, but now I worry I am just being emotional, impatient and short-sighted. I trust him and don't want to be influencing his decision.

  14. yellowbeach

    nectarine / 2645 posts

    Ok, plan is to repeat Hcg in 1 week and reassess. My RE is REALLY trying to avoid a D&C and any risk of scarring. More waiting, but the bright side is that it is going down.

  15. Sams Mom

    grapefruit / 4492 posts

    @yellowbeach: I can't even begin to imagine all you have been through... so being an emotional hot mess and impatient is fine. You're doctor is in a sense detached from the emotions you're feeling so he's there to help guide things along. Hopefully you can avoid the D&C!

  16. Shantuck

    pear / 1767 posts

    While it sucks to wait, taking the more conservative wait and see approach is probably really smart. I had asked for a D&C after my post-childbirth retained placenta because I was desperate to put the ordeal behind me and I was urged to wait. When the tissue was finally gone, I did an hsg and the RE said there wasn’t a single scar visible (which was incredible because the doc was yanking at the placenta after childbirth when it wasn’t exiting properly). Hopefully a real AF will come when your hcg gets low enough and anything still hanging on will dislodge.

  17. yellowbeach

    nectarine / 2645 posts

    HcG is 9, so not negative yet. Going to call my RE and see what the plan is, but I'm pretty sure it's going to be "Let's recheck your HcG in another week."

  18. Mrs. Toad

    persimmon / 1095 posts

    @yellowbeach: I'm sorry. Hope it all works out.

  19. yellowbeach

    nectarine / 2645 posts

    @Mrs. Toad: Thanks - I'm just starting to feel like it's groundhog day or something...

    RE's office just called - and yes, they just want to repeat the bHcg again in a week. It's not falling in a linear way, so I'm expecting it could still potentially be up next week.

    On a positive note, I have an appointment this afternoon with a psychiatrist who specializes in infertility and loss. Hoping to find a positive channel for some of my anxiety, energy and emotion in all this. We shall see.

  20. karenbme

    persimmon / 1418 posts

    @yellowbeach: Sorry to see you're still struggling with this. Waiting for the levels to go down is torture. But I hope your appointment went well. Therapy has been a big help for me in moving through the grief over my losses, but it's hard work and definitely not a quick fix.

  21. lilyofthewest

    pear / 1697 posts

    Ugh. Yeah, at higher numbers it declines in a very orderly way, but as it gets closer to zero it asymptotes down slooooowly. After my ectopic, I think I spent 3 or 4 weeks getting from 26 to zero. Which is forever.

  22. yellowbeach

    nectarine / 2645 posts

    @lilyofthewest: Ugh - so you know first hand. This is exactly where I am right now. Our lab reports anything 6 or greater as the actual value, but anything 5 or below displays as "<5" and is technically negative. I hope hope hope I can drop the 4 points needed to make it to negative, but based on my luck and history, it'll probably be 1 point a week for another 4 weeks. Unlikely, but I've become a bit of a pessimist. And on a side note, I appreciate the geeky math terminology

  23. yellowbeach

    nectarine / 2645 posts

    Finally both look negative. I get another beta in the morning which I hope to god is negative.⛔️ If so, ultrasound to prove retained products are gone gone. I also have to have my first mammogram tomorrow 😮 and have a second appointment with the psychologist I saw last week. Big day. Wish me luck. Feeling pretty alone right now. ❤

  24. Sams Mom

    grapefruit / 4492 posts

    @yellowbeach: yay to the rare time a negative is a good thing! And hopefully the ultrasound shows no retained POC.

    As to the mammogram, you're going to have to let me know if it's as bad as I think, I have to start getting them early to due to family history and am not looking forward to the boob squish.

    Hoping the therapist works out for you too

  25. mrsbubbletea

    nectarine / 2821 posts

    @yellowbeach: Ugh what a long road for you. I am so sorry for how it's gone! I have been following your story but I haven't really commented because I am too lazy to log in usually... that's silly but anyways just wanted to say thinking of you and your family I truly hope ultrasound is clear as a bell!

  26. Katrocap

    persimmon / 1230 posts

    @yellowbeach: Good luck with your ultrasound and mammogram. I imagine both will cause anxiety and tension, but fingers crossed for doubly good results! I hope seeing the therapist proves helpful. If nothing else it might help you feel less alone. I think of you regularly and send good thoughts your way.

  27. yellowbeach

    nectarine / 2645 posts

    @Katrocap @samsmom @mrsbubbletea: thank you ladies. I think I’m just feeling pretty down tonight because I tried to reach out to my sister ( one and only) and three best friends and essentially have heard crickets for hours. I’m sure they don’t know what to say - or maybe they have no frame of reference for how I could still possibly be struggling this far out. IDK but it hurts.

  28. yellowbeach

    nectarine / 2645 posts

    Well ladies there’s good news and bad news.

    Good news: bHcG is finally negative. That’s a big win. Nothing was going to happen until that dropped.

    Bad news: still have some retained products which are not coming out on their own at this point and are beginning to look calcified (old blood). So he recommended misoprostil. I’m going to start it tonight. Had it once for my induction but that was totally different. Low dose, etc. Any advice on what to expect? He said ibuprofen (my usual go to meet) won’t help bc if how both medicines work. Fortunately I’m working part time now and had nothing planned for tomorrow. Thursday we fly to NY for my nieces bat mitzvah. The flight might be miserable, but hopefully I’ll be ok by the actual event on a Saturday.

    This is good. At least I feel like I have a plan and there’s an end in sight. He gave this 80% chance of working, but of course there’s still the possibility of needing a D&C if it doesn’t.

  29. periwinklebee

    grapefruit / 4466 posts

    @yellowbeach: I'm really sorry that this process has been so long and drawn out after everything you've been through already I don't have experience with misoprostil but know there are some other ladies here who can chime in. I hope that you'll be able to schedule your transfer and that things will start to get better soon.

  30. bhbee

    cantaloupe / 6085 posts

    @yellowbeach: wishing you luck and a smooth process with the meds. It must be so hard waiting for this to finish! Hugs

  31. LabradorLover

    kiwi / 548 posts

    @yellowbeach: I’m glad to hear it is finally negative!! I hope the Meds work for you and it isn’t too bad. 💜

  32. lilyofthewest

    pear / 1697 posts

    @yellowbeach: I think you already know I work in abortion care and have for many years. Misoprostol is a prostaglanin analogue and it used to be thought that using NSAIDs with misoprostol would make the miso less effective and/or it would make the NSAID less effective. But that's really outdated. Like 10+ years outdated. Here's an ACOG position statement that indicates that NSAIDs should be first-line pain management for use with misoprostol management of induced or spontaneous abortion. https://www.acog.org/Clinical-Guidance-and-Publications/Practice-Bulletins/Committee-on-Practice-Bulletins-Gynecology/Medical-Management-of-First-Trimester-Abortion So take your ibuprofen! Acetaminophen is also fine, just not as helpful for most people.

    If you're taking the misoprostol orally, buccally or sublingually then anti-nausea meds can be really helpful. If you're inserting it vaginally or PR, nausea/vomiting isn't usually much of an issue.

  33. karenbme

    persimmon / 1418 posts

    @yellowbeach: sorry to hear that you’re still fighting through this. When I had misoprostol for a medically managed mc a heating pad was the best thing for the pain. I had codeine from the doctor and she told me I could take Tylenol, but the heating pad was the only thing that really helped. Even the codeine just left me sleepy but still hurting. I also had nausea meds, but didn’t need them. The thing that I felt like I wasn’t prepared for is that I cramped for about 10 hours before there was any bleeding, which apparently is totally normal, so I would recommend taking the meds first thing in the AM, in case you’re like me and don’t start bleeding for a while. For me the bleeding was extreme for about an hour, I literally just stayed in the bathroom with my phone and bled, but then it mellowed out to like a heavy period for about a day before tapering off over a few days. I’m sorry you have to go through this, it’s not fun, but the hard part only lasts about 24 hours, and you’ll get through it.

  34. Shantuck

    pear / 1767 posts

    I was given misoprostol for my retained placenta when it was first discovered. It was not at all painful for me. With my situation, I still had active blood flow to the retained tissue so the misoprostol caused a ton of bleeding and I had to be hospitalized and monitored but I’m guessing that you wouldn’t have active blood flow to the tissue, like I did. I have heard of people using it for miscarriages and also have bleeding scares so I wouldn’t take it when you are home alone, watching your child alone, etc in case you don’t react well to it. The calcification was a good sign to my RE for my retained placenta situation. He thought that meant it had a better shot of sloughing off after my first real period. I know you had some light bleeding but hopefully a real period will be enough to shed the retained product if the misoprostol doesn’t work.

  35. yellowbeach

    nectarine / 2645 posts

    @lilyofthewest @KARENBME @Shantuck: Thanks for providing all of your advice/experiences. I took the first dose at 4:30pm yesterday and didn't really start feeling anything until maybe 7pm. I had preloaded with a gram of tylenol just in case and took a benadryl at 7 to help with sleep.

    The cramps have been equivalent to what I would say is a contender for my worst period, but no more than that so far. In fact, based on how terrible friends and others have said this could be, I'm starting to wonder if it's working at all. I mean, I'm *pretty* sure I put the medicine in the right place.

    I've had some light spotting only, but then again there's only a tad bit of stuff in there that needs to come out anyway. I take dose 2 in a little while here and just plan to pack for our trip to NY when I can. DH dropped LO at daycare today since we didn't know how all of this would be.

  36. pachamama

    nectarine / 2435 posts

    @yellowbeach: girl. You can't catch a break. I'm sorry this is dragging on so much. Thinking of you...

  37. karenbme

    persimmon / 1418 posts

    Sorry it’s dragging on for you, but glad it’s not so bad. Good luck with your trip tomorrow, hopefully this will be over soon.

  38. yellowbeach

    nectarine / 2645 posts

    Talked to my RE and based on how little flow I had from the miso, he’s assuming it didn’t work. He wanted to try again, but I work the next three days and have already missed too many. We are proceeding with D&C Friday instead.

  39. bhbee

    cantaloupe / 6085 posts

    @yellowbeach: I’m sorry this is still going I hope the d&c goes smoothly with no scarring and gives you some closure. Lots of hugs

  40. LabradorLover

    kiwi / 548 posts

    @yellowbeach: Ugh, I'm so sorry you have to deal with that again but hopefully this will be the end.

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