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Praying for you and baby Charlie
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Thank you everyone again! Charlie had a good night considering where he was yesterday. His blood pressures came up, glucose is near normal, and they have started to reduce his medications. His kidneys took a big hit and haven't made any urine since he crashed, but the doctors say they should come back with time. Here's hoping for a quiet day.
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@MrsScallop: Keeping little Charlie in my prayers.
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glad to hear a positive update, thinking of your family and little CHarlie!
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thinking of charlie and you. thank you for the update--glad to hear that the night was better. hoping for continued improvement.
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Good thoughts for you and Charlie....baby steps in the right direction!!!
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Great update! Lots of positive thoughts for your LO!
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So glad that things are going better! I am putting lots of energy into wishing for many less eventful days coming your way. And hoping you get some more of those amazing snuggles today. Thinking about you and your family.
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thnking of you and your family.
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Great news for Charlie! He's a little fighter
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Glad he is on the upswing, sending you lots of positive thoughts!
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So glad to hear things are on the upswing. Thinkng of you.
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I am thinking of you.
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Love and prayers
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So glad to hear things are moving in the right direction. Thinking of you and little Charlie
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praying for you and Charlie!
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So glad to hear improvement! Still praying for little Charlie
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Thinking of you and your family and so happy to hear the positive updates!
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Sending thoughts and prayers!
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Praying things keep improving
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Praying for continued improvement!
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Praying for you and Charlie!!
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How's it going there? Charlie is in my thoughts today. Sending you all the best.
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So glad to hear things are improving! You, Charlie, and your family will be in our prayers.
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I feel like we are on the worst roller coaster ride here. Yesterday was quiet, but his kidneys are still not working, so he likely needs dialysis today or tomorrow. Then overnight the doctors noticed he was having seizures. An ultrasound suggests he has an infarction near the back of his brain, so he is getting an MRI now to find out the extent of it. After expecting to only have to worry about his heart at birth, to now have bowel, kidney, and brain problems is incredibly overwhelming. Thank you everyone for your continued thoughts and prayers. My little guy can really use them.
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@MrsScallop: I can't even imagine what you are going through. I'll send more good thoughts. What is the underlying heart condition?
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@Mrs. Jacks: he has a hypoplastic aortic arch and all four valves have some issues as well, whether they look small or thick, but they haven't said much more about those.
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@MrsScallop: ugh, I'm so sorry! You are at a regional children's hospital? Wish I could run down to the CICU and give you a hug! Even though dialysis sucks, it may help Charlie feel a lot better.
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Sending love and prayers for babies health
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@Mrs. Jacks: I am. The dialysis sounds scary as they describe it for such a small guy, but I know it will make him feel better. The brain damage is the scariest part right now. My husband and I think it is due to an air bubble we saw in his central line, but didn't catch in time to get the nurse to do something about it.
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@MrsScallop: the air bubble would go to the body not the head (unless there are holes in the heart that would send the air bubble to the brain.)
There are so many complex things going on that I couldn't even begin to tell you what might be causing the seizures, but we often think about poor oxygenation, clots, toxins (build up due to poor liver or kidney function), underlying genetic disorders that are associated with the heart defect, metabolic disorders... The differential is long.
Maybe the imaging will give some clues?
In the meantime, I hope things stabilize and you are able to find a little peace amidst the uncertainty.
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Continued thoughts and prayers to your family.
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@MrsScallop: more prayers coming Charlie's way. I pray for those taking care of him as well. Sending hugs of comfort your way as well momma.
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Sending many prayers and much love to Charlie and your family today.
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@MrsScallop: so incredibly scary and stressful. Charlie is a little fighter - I'm continuing to send positive thoughts and prayers his way. Hang in there, mama.
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@MrsScallop: Hoping little Charlie stabilizes and can get the answers and help he needs very soon. I'm sending all my love to you and your loved ones.
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Sending you and your family lots of prayers and good thoughts!!
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Continued prayers that God will heal sweet Charlie's body and for peace for you and your family.
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I am so sorry that you're facing more challenges. I am thinking of you and baby Charlie often
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Sending so many good thoughts to you right now!
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377 comments