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i'm so so sorry you and your innocent little baby have to go through this. i hope good news is in store for you both. will be sending lots of positive thoughts your way. no matter what, your little girl is perfect!
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I'm so sorry you're going through this but remember, no matter what, she is your beautiful, wonderful baby girl. She needs as much love and strength you can give her. Be strong and brave for her... your baby's comfort is so important right now. Don't be afraid to lean on your husband for support, let him help you if you feel like you are drowning. I know it's hard but try to take some of his positive energy and give it to your baby.
Sending you lots of love and support. We're all here for you anytime. -
I'm so so sorry you have to go through this. I can't even begin to imagine the fear and worry you must be feeling. I'm hoping that you and your daughter will get the best possible news after the tests, but I know that no matter what she is who she was always meant to be. Sending you positive thoughts
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I am so sorry. Sending you lots of support and positive thoughts.
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I'm so sorry you, your family and especially your precious daughter are going through this. We'll be praying for good outcomes for her tests!
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I am so sorry you're going through this! You guys are in my thoughts! It's okay to be upset. Sending many, many hugs.
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I'm so sorry. I can't imagine what you're going through. I'm hoping all the tests come out normal and there's no further complications. HUGS!
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I'm so sorry for what you your DH, and your LO are going through. I can't even imagine how you're feeling. You are an amazing mother to her and I hope there's positive news coming your way soon.
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I'm so sorry for you and your little girl! I pray that everything turns out ok.
I don't have personal experience with my own child, as my LO isn't here yet, but I can say...I do have a genetic disease that has caused me severe vision loss. My vision is 20/1400. My eyes are too far gone for anything like Lasik, but I can still wear contacts. And - I did well in school. I had friends, didn't get teased or anything. I have a loving family and a good job - as a designer using my eyes all the time. I HAVE had multiple surgeries on my retinas, but, hey, life happens. It doesn't define me, or effect my every day life.
I'm just saying, even if things aren't "perfect", your little girl IS. I hope things start looking up!! My thoughts are with you!
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I'm so sorry!! I can only imagine what you must be feeling...
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I'm so, so sorry. I hope you get some good news soon. It sure sounds like you need some.
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I'm so sorry you are dealing with the unknowns right now. I agree with Mrs. Jacks, to try to take one issue at a time otherwise it is too overwhelming.
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@ValentineMommy: Your story gives me so much comfort. Thank you for sharing that with me. I worry so much about we future quality of life. To hear that you've done so well and thrived makes me feel better. Thank you.
Thanks again for all of your positive words. I feel a little better today. But unfortunately all of the stress and me not being able to eat has negatively affected my milk supply. I don't want to have to give her formula. So my main focus for today is forcing myself to eat so I can get my milk supply up. And I'm calling my office to talk to them about going part-time. I work from home, but I want to drastically cut my hours so I can focus on my baby's treatment and development. And hopefully I can get the appointment with the geneticist today so we can move toward more information. Thank you all. Reading these messages has been a bright spot in the worst two days of my life
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@FabG: yet another way you are working so hard as the best mommy to your baby girl. That milk supply. Stay hydrated as best as you can, get as much rest/sleep as you can, and eat whatever you are craving!! Good luck today and please do keep us updated. And give that sweet baby girl a kiss for all of us here on Hellobee!
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sending lots of hugs your way. i'm so sorry that your family is going through this.
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@FabG: So sorry you are going through this. I pray for strength for you
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@FabG: I'm glad! I obviously don't know all the details of your story, but I just wanted you to know, no matter WHAT the outcome, your little girl will get through it, and become a strong thriving woman one day!
Hugs to both of you!
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@FabG: First, I am so sorry about this news! I cannot imagine how difficult it it for you to worry about your sweet little girl's health.
Our babies aren't here yet, but something you said (feeling like you're falling off a cliff) reminded me of how I felt when I found out some life-changing health news about someone I loved very much. I know it's not the same as when it's your child, but I know what it's like to feel like I'm teetering on the edge of cliff and if I go over I won't ever come back. In my 30 years, I have never felt so close to breaking down. At first, I couldn't share many details with anyone, but I had a couple friends/family that knew just enough to keep me covered in prayers and support. I had to remind myself all the time to just keep breathing and putting one foot in front of the other. My mantra was to take it one minute at a time instead of day-to-day. Thinking of a whole day, much less the next month or year, was too overwhelming for me, but I did better if I just tried to focus on that particular moment and tell myself that I just had to get through the next few minutes. It really helped me to focus on the person in question, to remember that he was the same person he was before no matter what happened in the future. That helped me to be able to try to make life as normal as possible for him. I don't know if any of that makes sense, but I just wanted to share in case any of this clicks with you. I hope you have family or a couple close friends who will keep you in their prayers and thoughts and carry you through this time. I will certainly be thinking of and praying for you and your family.
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@FabG: Please remember to take care of yourself and make sure you keep your supply up! Drinking lots of water is the best plus it helps keep you refreshed.
Remember that each child is different no matter what. If you are up for some reading, this is a bit point that Kelle Hampton makes on her blog when she found that her second daughter had down syndrome. Her daughter is different than her first but thats because she is just a different child, not necessarily because she has DS. Your daughter will be the same! Bloom where you are planted!
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HUGS HUGS HUGS.
I can't even fathom what you are going through, but wanted to send you my support, prayers, thoughts...
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Oh @FabG I am so sorry to hear this. *Hugs*
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HUGS to you - good for you for reaching out too. You're doing everything you can as a mom.
Also - the vision thing - I know she's young, but I wanted you to know that I had lazy eye when I was little and it's something that you can fix. Just offering the support I can.
HUGS.
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My heart aches for you, and am so sorry you have to go through this. Happy to hear your hubby is being strong and positive for you both right now. Keeping y'all in my thoughts and praying to give y'all strength to handle the hurdles you must endure with your LO.
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I'm so, so sorry! Thinking about you and hoping you get good news soon xo
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I'm so sorry to hear this
I hope the MRI brings you good news
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I'm so sorry to hear about your beautiful baby girl! Try to be strong and we are here for you!!
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So many hugs, and so much support! I'm so sorry you're going through this. I hope the MRI brings good news. Hugs hugs hugs.
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Hi! I am an audiologist and diagnose and treat hearing loss all day, every day. I work primarily with adults now but have worked with kids some in the past. I will tell you - hearing loss is generally really treatable and managable when diagnosed early (and it was - hooray!) and it will not hold your daughter back in any way. She's going to be great. If there are any questions I can answer, let me know!! Good luck and keep on moving, stay strong and positive for her!
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@earinej: Thank you so much for your words of wisdom. I'm happy to know that her hearing loss will not be a major obstacle for her. Do you see many people who have accompanying vision problems?
Thank you all again. I am overwhelmed with gratitude at the support I've gotten from this community. You are all wonderful people. My husband is out of town tonight so it is just me and LO, and I'm having trouble thinking positive. I appreciate the kind words so much.
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Thinking about you during this difficult time. I hope that everything works out for the best, although I'm sure your little girl is perfect no matter what! She already has a wonderful and supportive mommy that loves her and that will make all of the difference as well! Stay strong, we are all here!
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@FabG: I am so sorry to hear this!
But even if something is wrong--if they catch it now they can probably fix it. They will do everything they can for your precious little girl.
I will pray that everything is alright for her, and pray for your nerves so you can breathe a little easier.
Big hugs!
She will always be your sweet girl.ETA: My son is at risk for hearing loss and is constantly going to the audiologist because like @earinej said--if you catch hearing problems early then the baby will likely still develop normally.
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I'm so sorry you and your baby girl have to go through this. I hope the MRI brings good news!
Big, big hugs.
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UPDATE: Just got off the phone with the doctor's office. My LO's brain MRI was NORMAL!!!!!!!!!!!!!!!!!!!!!!!!!!!
I am so so happy. Thank you all so much for your support. We're still watching her to see how she develops. She's a bit behind in her milestones, but that is very likely to be due to her visual and hearing impairments, rather than a cognitive problem. And her vision seems to have improved a lot since I posted this. She's six months now, and looks at everything. And I'm just so happy I could cry. I thought for sure they would find something abnormal about her brain. But they didn't! YAYAYAYAYAYAYAYAYAYAYAYAY!
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@FabG: SO amazing to hear this!!!! I'm so happy for you and your baby!!
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@FabG: Awesome news. Hopefully things will even out over time, she'll adapt well, and her impairments won't hold her back at all. I'm sure you're feeling so much better about things!
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What fantastic news. Overjoyed for you!
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Yay! I'm so happy for you!
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That is GREAT news!!! So happy for you and your LO!!!! :))))
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@FabG: whew, I am so relieved for you. YAY!!
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@FabG: So happy to hear the good news!
Hugs to both of you!
I hope the MRI brings you good news
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