Has anyone been diagnosed with endometriosis? What were your symptoms? Does pain have to be a symptom?
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Pain is not always a symptom. it's one of the reasons why endometriosis is a leading cause of infertility--many women don't know they have it until they can't get pregnant, then the RE does a lap surgery and finds a whole mess of stuff going on.
my symptoms were classic--heavy periods and pain, mostly. When they opened me up, they found that the scar tissue had fused my bladder and bowels together and was causing some issues there.
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I just shared this thread with @Cole: http://boards.hellobee.com/topic/laparoscopy and I think info in there will be interesting to you.
I haven't been definitively diagnosed through surgery, but the RE strongly suspects that is what we're dealing with. I have pain sometimes during sex (but I always thought that was just the position), and I definitely have discomfort in one area. It's strange--it can really bother me, but when I touch that area, it's not tender to the touch. It's like the pain is deep inside me.
I've been to my (now former) midwife for this one painful area, and she said it's round ligament pain. When I researched round ligament pain, I found that it's something people who are pregnant or have endo complain about! I don't have heavy periods or lots of pain during them--I will get cramps on the first day or so, but it's nothing drastic.
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@swedishfish: I responded to the thread @Happygal: linked about my experience. I do not have the typical symptoms but have endometriosis as diagnosed by my lap surgery
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I shared my story on the thread linked to above, but my answer to the pain question is yes and no. As a teenager, I had all the classic endo symptoms. I was on BCP for 11+ years and had very few symptoms. When I went off BCP to TTC, I did NOT have the typical endo pain with AF, but I started having a lot of pain around O. Now that I am TTC#2, the pain is the same - only around O.
Whether and when you have pain depends on whether there is endo growing (versus scar tissue) and where the growth/scar tissue is in your body.
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I have been diagnosed with endo due to a stuck ovary seen on the ultrasound. Other symptoms I have are a tipped uterus (although many woman have this without endo), diarrhea during AF, and occasional severe pain (not necessarily during menstruation). The pain used to happen more when I was younger, maybe a few times a year. No it is more like once or twice a year. But it is debilitating--cramps so bad that I basically have to stop in my tracks and scream.
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@septca: Ugh. I am really starting to suspect that I may have it too and it sounds a lot like you. BCP 11 years, no symptoms that I know of. Now post-partum I'm having some really heavy periods, pain around O (and what I think are normal cramps with AF), and lots of tenderness in the abdomen especially around O (like it I push on it or lo steps on it). And then a history of 20 months of infertility to go along with it...one natural chemical pregnancy, one successful IVF.
I'm going to follow along!
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@raintreebee: I had the debilitating cramps (like I might die) a few times before BCP, and just this month, I couldn't get out of bed in the morning without Advil...I called my husband to bring it up to me. : (
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My only symptoms were mid-cycle pain - literally a few stabbing pains on one day in the middle of my cycle, and some discomfort during sex. Lap showed several blood cysts, a mess around my bowels and one ovary. I posted about it before, it's been almost two years by now (fx it doesn't come back) and I realize I've forgotten a lot about it.
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@Mrs Green Grass:
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