admin / wonderful grape / 20724 posts
@.twist.: I'm so sorry to hear! I hope you and L get a lot more time with your dad...
pineapple / 12802 posts
Thank you for all of the continued support. Sounds like they have a strict no-kids policy on the floor my dad is on. Which I totally understand. I am just so sad. He wants to see Lukas so badly.
grapefruit / 4997 posts
I'm so sorry and my heart goes out to your family. I hope you get to spend lots of quality time together and praying that you get more time with him.
squash / 13208 posts
@.twist.: I know its not the same but maybe you can take a video of him on your phone and show it to your dad?
wonderful kiwi / 23653 posts
Big hugs And I'm so sorry LO is not allowed to visit Can he get off that floor at all in the foreseeable future?
pineapple / 12802 posts
@Mamaof2: I have been doing that already. I try to send as many videos and pictures as possible.
@snowjewelz: I'm not sure. He really not in very good condition. I'm going to suggest it, but I'm just not sure.
pear / 1998 posts
Ugh this is just so awful for everyone. I'm so, so sorry. Sending love and comfort to your whole family.
cherry / 229 posts
That's so rough, I'm so sorry. I hope you get a lot more time with him.
honeydew / 7916 posts
I'm so sorry your family is going through this and hope your dad can be as comfortable as possible.
apricot / 394 posts
So sorry you are going through this Sadly, I hear stories like this all too often, CANCER sucks! We recently lost my father in law last summer and my sister also went through this with her mother in law. My advice is to see and spend time with him as much as possible. We are in Chicago and my father in law was in Arizona. My husband was out there every couple weeks and he is so grateful for the time they had. Do lots of Facetime with your sweet boy if he's not able to visit with you. Sending hugs!
eggplant / 11824 posts
I'm so sorry. Don't hesitate to reach out if there is any way I can help
blogger / watermelon / 14218 posts
I am so very sorry, lots and lots of love to you and your family I hope he gets a chance to see Lukas soon.
blogger / eggplant / 11551 posts
I'm so so sorry you're going through this. It's so hard...
pineapple / 12526 posts
Im so, so sorry. I really wish you and your family all the best during this.
pomelo / 5820 posts
@.twist.: I am so, so sorry to hear this. I wish I could give you a hug. I've been in your position with my mom, and words can't express how much it hurts.
I don't know your dad's condition or the plans for his care, but when my mom was in ICU after they told us that there was nothing else they could do, we requested that they transfer her to a hospice facility. Initially, they were just going to keep her at the hospital, but agreed to transfer her. She was stable enough to do so, and hospice was wonderful to her. Absolutely wonderful. They were a comfort and a light in a dark and horrible time. My reason for mentioning this, is that hospice encouraged me to bring in C to see her (I didn't because he was only 4 months and she wasn't at all lucid to even see him). If hospice is an option, that may be a path to allow L to see your dad.
Sending so many hugs and so much love.
wonderful clementine / 24134 posts
@.twist.: I am so very sorry to hear this. I had HL as well. Did he do the AbVd treatment? I have heard of many people who had a release and responded well to other types of treatment. There is a great Facebook support group if you want the link.
Praying that you find hope.
honeydew / 7295 posts
Colossal hugs honey. I am so sorry that your father is suffering and that it looks like you may lose him. I can only imagine how you feel but nearly losing my mother to two brain tumors just after my son was born was incredibly scary. I will be thinking of you and sending
pomegranate / 3244 posts
Oh my gosh, what a heartbreaking situation. Lots of love from over here
kiwi / 714 posts
I am so, so sorry you and your family are going through this. Heartbreaking =(
eggplant / 11716 posts
@.twist.: I agree with Pepper. My dad wanted to be at home when he passed, so when his doctors finally felt like there was nothing else they could do, they transferred his care to Hospice--who came to our house with a bed for the living room, a bedpan, and other essentials. They were a great help and were there to support my mom (they had daily visits the last week) and give my dad palliative care.
Don't be afraid to ask your options.
cantaloupe / 6059 posts
Oh man. This is so tough. Thinking of you all in this time - big hugs and lots of love.
pineapple / 12802 posts
Thank you everyone. I don't have the words to express how much all of your well wishes mean to me.
UPDATE: I spent the day with him today. Obviously, we would much prefer a different setting, but it was a good day with lots of family and love. I got a better idea of what's going on. They are doing 15 treatments of radiation and hoping that that will help reduce the tumours in his brain enough for him to be comfortable and in a place to go home. Ultimately, he is terminal. The radiation is not a cure, but an extension of time. I would honestly say 2 months is being generous. It will be amazing and very welcomed if he manages to make it longer.
He wants very much to have Lukas be a big part of the rest of his life and I am going to do my best to make that happen for him.
@Pepper: @Anagram: It sounds like my dad will want to be at home. If we can accommodate him, we certainly will. He kind of has an attitude right now of giving no Fucks and wants to see Lukas all the time so that his last days are happy ones.
@T.H.O.U.: I'm honestly not sure what all of his treatments have been. Although, I do know that after the radiation, they have said there is nothing else they can do.
pear / 1622 posts
That is wonderful that he wants to spend time with your LO now. These are precious moments and it is so hard to see our parents decline in health and face death. My mom is declining in health, was in the hospital for a month now, went home for 2 weeks, and is now going to assisted living. She has no interest in socializing because she is so depressed and in pain. She loves my LO but also shows very little emotion and interest and that is hard. I am focusing on all the years she was there for me and am thankful I have my husband and LO for support.
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