I know there are a few of us who recently discovered our LOs have dairy and/or soy intolerances, just wanted to check in to see how you are doing! And if you have been dealing with it for a while, I'm sure we would all love to hear that managing this is possible!
*****
LO's age?
Sensitivities? How do they react?
When/how did you find out?
Are you BFing? If so,
-what is the hardest thing for you to give up?
-good meal/snack ideas to share?
Words of wisdom to share?
eggplant / 11716 posts
@LovelyPlum: My LO is 1 year and I've known since she was 3 months. I EP.
Soy oil in small amounts (like in a baked good) doesn't seem to bother her if I eat it, and I can't really tell if soy lecithin affects her--but other forms of soy cause her to have black, tarry poops and she stops eating--same symptoms with dairy, but then she also has bloody poops.
Her initial symptoms were bloody stool and not eating (or rather, at that age, drinking). She would not take a bottle while awake until she was 10.5 months old. That's right--we had to "dream feed" her for every single feeding, from months 2.5-10.5. That was...interesting.
I think because of those issues, she was very reluctant with solids and wouldn't really open her mouth for them until 7 months. She is just now starting to "catch up" to her peers in all things eating/drinking. She now uses a sippy, a straw cup, and eats a decent amount of table foods.
Her weight gain has been fine since 3 months when we discovered the sleep feeding trick--before that, it was dicey. It think eating caused her so much pain, she didn't want to ever do it.
eggplant / 11408 posts
LO is 13 weeks old
So far, she seems sensitive to dairy of all kinds, including butter (boo). It seems to be a cumulative thing-wasn't bad at first, but has gotten worse as she has gotten a bit older
We haven't gotten an official diagnosis, but o started suspecting something was off around 8 weeks. She spit so, so, so much, and she started screaming like crazy at random times during the day. She also.had some yellow green poop. What tipped me off, though, was her increasing congestion. I cut out dairy for about 10 days, and it got so much better. Over the 4th, holiday, though, I ate a little bit of cheese and pastries, and her symptoms came back within a day or two. I've now been back off dairy for 8 days, and yesterday, we finally had a day without tons of screaming and spitting.
I am BFing, and I miss cheese! Also, ice cream, but I got a delicious Rice Dream sandwich last night that was satisfying. I'm taking advantage of the farmer's market and eating lots of stone fruit, berries, sauteed greens, and squash. I'm also loving sweet potatoes, avocados, Larabars, vegan chocolate, and hummus. I also love sausage 
I'm taking some paleo recipes (though I eat wheat and soy) and some vegan recipes (though I eat eggs and meat). Always looking for more ideas!
eggplant / 11716 posts
@LovelyPlum: When you want cookies, but don't want to make them yourself, the Enjoy life crunchy cookies are super good (at least I think they are), and they come in a lot of flavors. Trader Joe's has tons of random foods that are dairy and soy free, because for whatever reason they tend to use Palm Oil or Safflower oil in their products instead of soy oil. Like, they have crescent rolls (in a can) and cinnamon rolls (in a can) that are dairy and soy free. Their kettle korn and spekuloos cookies are also MSPI friendly, as well as a bunch of other products I'm forgetting (chips, pita chips, baked crunchy peas, etc).
Anytime I want junk food, I go to TJs. And almost anything you want, can be home made and dairy free. I made LOs birthday cake and frosting and it was dairy/soy free and tasted pretty delicious. I also make pancakes and muffins fairy regularly.
pear / 1531 posts
LO's age? He is now almost six months.
Sensitivities? How do they react? When/how did you find out? At two months, he started having green poop. Coupled with eczema he had since he was a newborn, the doctors thought a food allergy. I have been off dairy, soy, eggs, and nuts since then although recently reintroduced eggs with no problem. I must admit, there was part of me that didn't believe it (one allergist we say said it wasn't a food allergy but was instead foremilk hinkmilk imbalance coupled with just normal eczema). I was so frustrated because he wouldn't take hypoallergenic formula, and I just felt trapped by breastfeeding since it's hard to pump enough to get ahead. We tried dairy and soy formula a couple times, but that resulted in projectile vomiting and a face rash. So I am nearly positive he has MSPI.
Are you BFing? If so,
-what is the hardest thing for you to give up? The diet hasn't been terrible, although I do miss baked goods. And I hate having to cook all the time. The worst part is feeling like I have to exclusively breastfeed until he's 1 although some recent successes with alimentum are giving me hope.
-good meal/snack ideas to share? Cherrybrook kitchen has some great egg free dairy free nut free baked good mixes.
Also, the gastro said that soybean oil and soy lechitin are fine to eat, and they've given us no problems.
Words of wisdom to share? I wish I had some!
grapefruit / 4988 posts
@LovelyPlum: @Anagram: @raintreebee: Hi ladies! Good to see some others dealing with this right now.
LO's age? 9ish months
Sensitivities? How do they react? When/how did you find out?
I am not entirely sure of the extent of her sensitivities, but right now, I am eliminating milk, soy (including oil/lecithin), eggs, peanuts, tree nuts, corn, and beef. Her early symptoms (around 6 weeks old) were the classic ones: green/mucousy/bloody poops, reflux, fussiness, some mild rashes. That all cleared up when I eliminated dairy, but her stool continues to test positive for blood so that is why I have cut out so many things. I have also tried giving up gluten and legumes, but that didn't help, so the pedi allowed me to bring those back in. I will probably start bringing even more back into my diet soon. She is basically the happiest, healthiest looking baby right now...but she always has microscopic blood in her poop. 
Are you BFing? If so,
-what is the hardest thing for you to give up?
Yup, still BFing. The hardest "thing" to give up is the ability to go out to eat or to just grab something and go. I miss date nights with DH.
-good meal/snack ideas to share?
Burrito bowls from Chipotle! Hummus and pita chips, oatmeal, green shakes, Enjoy Life snacks, dark chocolate. I have started using coconut aminos as a replacement for soy sauce in cooking and for sushi, and it's not bad! Coconut Bliss ice cream. @raintreebee: I will have to try those Cherrybrook kitchen mixes!
Words of wisdom to share?
I just keep telling myself that this is only for a short period of time and it is what is best for my baby. It is so hard though. I try to be proud of myself for sticking to this crazy diet!
pear / 1531 posts
@catlady: Just went to the health food store. You inspired me to get some enjoy life snacks, dark chocolate, and coconut bliss. Not great for my weight loss but yum!
grapefruit / 4079 posts
@Anagram: @catlady: @raintreebee: @LovelyPlum: Hi Ladies! I'm joining you!
LO's age? 9 months
Sensitivities? How do they react? We noticed at 3 weeks that milk formula was horrible for him and landed on soy. Seemed to be doing great until he got the flu at 3 months and threw up every.single.feed for a month unless he was on medication (that they give chemo patients that can't keep food down).
When/how did you find out? I went in and begged to see a GI that day and someone stayed late to see us. She has been amazing. We tried Nutarmigen, Alimentum and landed on Neocate which has been a very, very expensinve God send. Our GI then decided that he was allergic to milk and soy (or MSPI). He recently touched milk and broke out into hives horrible so we just did allergy testing. Milk came back highly positive and soy came back negative. Fingers crossed that we will be introducing soy soon.
Are you BFing? No, I quit by 2 weeks. Wasn't for me.
Words of wisdom to share? Trust your gut!
pomegranate / 3331 posts
Hello friends!!!
LO's age? 7 months today! They grow too fast!!
Sensitivities? How do they react? Dairy and beef and possibly soy. I don't eat much soy anyway but I haven't intentionally cut it out. She did seem uncomfortable after I ate edamame so... Her symptoms are stuffy nose, discomfort, mucousy green bloody stools. She's been great since I eliminated dairy and beef, but all of the sudden the past few days she's had stomach pain, constipation, mucousy bloody stools and a slight rash on her face. I'm not sure if this is another allergy manifesting, if I accidentally had dairy, or if she just was constipated from solids and that caused mucous and some blood and the rash is from drool. Ugh, it's impossible to know and I'm kind of at a loss as to what to do from here. I was hoping this would be getting better by now - not worse!
When/how did you find out? Blood in her stool at 4.5 months. Her doc suggested it and he was right. I was really doubtful, but it definitely seems to be what it is.
Are you BFing? If so,
-what is the hardest thing for you to give up? Cheeeeese!
-good meal/snack ideas to share? I am also gluten free and the best gfdf cookies I've found are Lucy's chocolate chip - so good! And so delicious almond milk is pretty good (I eat ice cream every night so this was a big deal but I've found that to be a decent substitute!
Words of wisdom to share? I wish! Haha.
pomegranate / 3580 posts
LOs age: 15.5 weeks
Sensitivities? How do they react?
Dairy and soy - although we're still in the 2 week elimination phase and may be able to rule out soy eventually.
When/how did you find out?
She's always had bad spit up but we thought it was reflux. When her reflux meds didn't help, other symptoms popped up and our ped suggested dairy elimination. One week in and so far, so good.
Are you BFing? If so,
-what is the hardest thing for you to give up?
-good meal/snack ideas to share?
Yes, still BF. I miss cheese, baked goods and chocolate! Although the Best Life chocolate chips are delicious! I'm going to attempt cookies tonight! I image going out will become frustrating soon
Luckily it's summer so lots of produce to munch on. I've been eating a lot of veggies, fruit, hard boiled eggs and lunch meat for protein. Meals aren't hard and I pretty much eat as I used to minus cheese, but snacks are kind of difficult since I have a huge sweet tooth!
Words of wisdom to share?
I've been searching lots of vegan and paleo meals on Pinterest and adjusting as necessary.
eggplant / 11408 posts
@raintreebee: @catlady: @ladybee: @Pirouette: @fussygal: hi ladies! Sorryvto hear that you're here, but glad for some company!
@Anagram: I never thought of TJs! Thanks for that idea.
@Pirouette: that is so frustrating, I'm sorry. I hope you can figure out what is causing the reaction.
Does anyone have insights on ghee? I'm not sure if it is considered dairy. At first, I figured it was, but all the milk solids are separated out. I can't decide how she would tolerate it.
Also, I cannot tell you how different my child is when I don't eat dairy!! She screams so much less, she actually naps, she doesn't projectile spit. It is like she is a new baby! I just knew her spitting wasn't normal. Glad I went with my gut!
grapefruit / 4712 posts
LO's age: 5 months
Sensitive to: dairy and soy.
Reaction: projectile spit up/forceful throw up. Increased fussiness and gas. Blood in stool.
Found out: pretty early on. Probably around 3 weeks, confirmed around 3 months.
Bf: yep.
What I miss most: dairy. Although I shouldn't have it either.
Go to snack: fresh fruit.
Advice: go with your gut!
pomegranate / 3331 posts
@LovelyPlum: thanks i'm cutting all solids but pear for the moment since i know she does fine with that, so if it doesn't improve, it's clearly from my diet. and isn't it amazing what a difference it makes? it makes me feel so guilty though, like i've been poisoning her all this time!! she's such a good baby, too (she rarely complains, just looks pained) which makes me feel even worse!
and yes, ALWAYS go with your gut!
persimmon / 1273 posts
@LovelyPlum: Ghee should in theory have the milk proteins removed which might make it ok, but it could depend how sensitive G is. I think it's possible, especially depending on how/where it's prepared, that ghee could have some casein remaining. I've been using earth balance for butter flavor while we figure out what's going on.
nectarine / 2636 posts
I'll join too!
LO's age? 5.5 months
Sensitivities? How do they react? She reacts to dairy and soy. Including soy oil. She gets green frequent poop for about 2 weeks. I only messed up once by accidentally having fries that were fried in vegetable (soy) oil. I've been super careful otherwise and have been able to avoid her having any reactions. Pedi said we could try at 6 months, but I'm so nervous!
When/how did you find out? She was at her 2 week check up and had a poo while we were there and the pedi looked at it and saw it was mucousy and did a blood test right away and confirmed that she had microscopic blood in there. She told me to go dairy and soy free. We went back 2 or 3 weeks later because her poops hadn't gotten better, did another blood test on her poo and came back with no blood.
Are you BFing? Yes.
If so,
-what is the hardest thing for you to give up? SO MANY THINGS. The day I found out, i literally cried the entire rest of the day. I miss pizza so much. And I miss being able to easily go out to restaurants! I've found a couple go-to meals at some places, but I miss the freedom of picking whatever I want.
-good meal/snack ideas to share? Apple, Jif natural PB, and dark chocolate chips. NadaMoo coconut ice cream, delicious. Hail Merry products are all really good. Bear Naked maple pecan granola with rice krispies, almond milk and sliced strawberries is my go-to breakfast. Amy's non-dairy frozen burrito with avocado and salsa. Lots and lots of hummus! Lol.
Words of wisdom to share? If you do go out to eat, indulge in a steak or fish or something! You deserve it for dealing with this diet.
Anyone have any restaurant tips? I found Maggiano's Italian is super allergy friendly. The chef even came to my table to tell me what he could alter on the menu for me. Really nice. Also, Chick-fil-a uses canola oil for their fries, and the grilled chicken is d/s free. Chipotle is awesome! Their tortillas have soy oil, but their rice is ok. And their guac is delicious.
apricot / 347 posts
LOs age: 8.5 months
Sensitivities? How do they react?
Dairy and *maybe* soy...react with bloody mucousy stool and fussiness
When/how did you find out?
She started with reflux and fussiness at 2 weeks so we stopped dairy, soy, wheat, egg etc and then slowly reintroduced. Reintroduced dairy at five months and ended up with persistent green bloody mucousy diarrhoea 
back off the dairy!
Are you BFing? If so,
-what is the hardest thing for you to give up?
-good meal/snack ideas to share?
Yip, still BF. I missed everything, but I'm on dairy now and she's okay, she just can't tolerate it straight
Words of wisdom to share?
Meringues have no dairy 
@Anagram: ooh do you have a recipe for that birthday cake??
eggplant / 11716 posts
@abbydabbydoodlebug: Pizza: I found out a good trick, you can verify on the website. When you are desperate for pizza and don't want to make one (I make it at home usually, but sometimes I have those weeks where I want to order out).
You can order Papa John's pizza, regular crust (it has no dairy or soy, not even soy oil) and the italian sausage or regular sausage with whatever other veggies you want. Ask for no cheese (you can even do no cheese when you order online.) it's still really good---and fewer calories than pizza with cheese!
For whatever reason, their "chicken" has soy. Weird. But their sausages don't. I can't remember the other meat options but it's all online.
eggplant / 11716 posts
Other fast food tips: Wendy's chili, baked potato, and their junior (junior only! the adult sized buns have bun oil and soy oil in them) burgers have no dairy or soy. Again, check their website to make sure in case it's changed.
I ordered a junior bacon cheeseburger, no cheese or mayo. And it was AWESOME.
eggplant / 11716 posts
@imbali: I used a regular white cake recipe from my mom's Betty Crocker cookbook and just substituted Vanilla almond milk for milk and the red box of Earth Balance butter for the butter.
The icing: I tried two things. One was using coconut cream whipped with sugar but I wanted to be able to pipe a border and the texture was more like whipped cream. So then I just did a version of a buttercream and used a TON (like literally, two containers) of earth balance soy free, whipped with powdered sugar and vanilla until the consistency was right. Honestly, it was overly sweet and I'm not sure how to make it less sweet since I was using the powdered sugar as a thickener.
It was a 4 layer cake and in between the layers, I used homemade strawberry jam. That part was the delicious part.
nectarine / 2636 posts
@Anagram: Oh awesome! Didn't know that about Papa Johns, I will check that out.
If you have a Mellow Mushroom near you (not sure how wide spread they are), they have Daiya cheese you can put on a pizza. I haven't tried it because the one in my city is like 20-30 minutes away.
That's great to know about Wendy's too!!
Carl's Jr has a pretty detailed menu online of allergy options, some of their buns are ok to eat, but that's where I accidentally had the fries that were in soy oil. I hate that the FDA doesn't qualify soybean oil as an allergen, so I always have to double and triple check.
pomegranate / 3580 posts
Those that have been dealing with this a while ( @Anagram: @imbali: @raintreebee: and maybe other I'm forgetting to tag!), did you avoid beer and wine? I'm reading some stuff that days it's ok and other that say no.
Also "natural flavoring"? I saw it on a no-no list and looked into what it really is and sounds pretty broad. Wondering if any of you avoided it?
eggplant / 11716 posts
@fussygal: I didn't avoid it. But i also only get to drink rarely...like 2 drinks a month. Never noticed any issues with LO though.
pomegranate / 3580 posts
@Anagram: Thanks! DD is 16 weeks and i still haven't had a drink....need wine!
eggplant / 11408 posts
@fussygal: you still haven't had a drink?! Why??? I say, do it!
Also, I found a rockstar brownie recipe that is safe!
Mix:
-1 cup sugar (white, or a mix of white and brown),
-1/3 cup of oil (I used canola),
-2 eggs, and
-a dash of vanilla (if desired)
by hand in a bowl until no lumps remain.
Add:
-3/4 cup flour
-1/4 cup cocoa powder (I used dark chocolate...yum)
and stir. Do not overmix.
Pour into a greased 8x8 pan. I also sprinkle the top with salt before baking.
Bake for 20-25 minutes at 350 degrees.
SO yummy!
apricot / 347 posts
@Anagram: thanks! sounds delicious LO's 1st bday coming up, so will try it !
apricot / 347 posts
@fussygal: I haven't avoided either - go for it
@lovelyplum: oooh yum 
can't wait to try them!
persimmon / 1273 posts
@LovelyPlum: I have been desperate for brownies all weekend but too lazy to adapt my recipes...you're a lifesaver!
pomegranate / 3331 posts
@abbydabbydoodlebug: you can have steak? My lo reacts to beef too
@fussygal: wine is fine (I'd even go so far as to recommend it 
natural flavoring must be labeled if derived from milk or soy, at least in the us
eggplant / 11408 posts
@imbali: @gilmoregirl: be prepared to eat way too many. They will make you question why boxed brownies were ever a thing
pomegranate / 3580 posts
@LovelyPlum: Isn't it crazy? It's been a whole YEAR! LO still doesn't take a bottle (whyyyyy?) so I'm paranoid to try it. She usually has a 4 hour stretch of sleep after dinner so I might just have to do it then!
Those brownies sound soooo good. Best of all, no funky weird ingredients - I have all of that stuff!
Here are the cookies I made. I omitted the cranberries and used Enjoy Life chips. They're very almond buttery and crumbly, but I didn't mind one bit. http://www.twopeasandtheirpod.com/almond-cranberry-oatmeal-cookies/#_a5y_p=1496234
pomegranate / 3580 posts
@Pirouette: Oh, interesting about the flavoring! Did you avoid it at all?
eggplant / 11408 posts
@fussygal: oh lady, do it! One glass of wine won't hurt her, that is what I've been told. Then again, I had a small glass every once in a while while pregnant. But I definitely think a glass now will be OK!
And thanks for the recipe!
nectarine / 2636 posts
@Pirouette: Oh man, that sucks! I'm sorry.
LO is getting closer to 6 months and I'm probably going to get the go-ahead from her pedi to try dairy/soy myself to see if it causes a reaction. I'll ask her what to try first, but does anyone have any thoughts on this?
@LovelyPlum: That sounds delicious! I might try making that today... I have Ghiradelli (probably spelling that wrong!) cocoa powder in the pantry that I want to use!
pomegranate / 3331 posts
@fussygal: nope, i don't avoid it at all unless the labels says (milk) next to it.
@abbydabbydoodlebug: my LO wasn't diagnosed until 4.5 months, so we're waiting longer, so no advice but GOOD LUCK!!! i hope she can tolerate it now!!
apricot / 347 posts
@abbydabbydoodlebug: I went back onto dairy when LO was six months, and it was okay - she was fussier and more gassy but managed it muuuch better than at two weeks. She can't have any dairy herself still though (directly)... worth a try!
pomegranate / 3580 posts
If anyone had a slip up and accidentally got some dairy and/or soy in their system, how long until LO was feeling better? LO has been basically spit up free (except a few *tiny* episodes that I think a normal baby would have) for two weeks now, but the past two days she's been back to her old ways. We ate out at a local place I thought was safe Saturday (theyre really big on health, allergy and nutrition info), but I think that my meal may have had something in it to upset her. wondering how long it will last.
pomegranate / 3331 posts
@fussygal: i had one meal with dairy in it sort of as a test a few weeks after eliminating it and she had blood/mucous for a few days. i pumped and dumped and gave her frozen milk to try to hasten the process a little. hope she feels better soon!
eggplant / 11408 posts
@fussygal: I'm sorry I am sorta in the same boat, but I am at faul. We went to a festival this weekend with SO MANY good cookies, and I was a bad mommy and ate some. I'm wondering what the repercussion will be Hoping both our babes are good as new soon!
eggplant / 11408 posts
So it looks like we are also dealing with reflux as well as allergies. She keeps arching her back, and the doctor has put her on Zantac. The good news is that she doesn't yet want me to eliminate soy, so we can see what is going on one thing at a time.
How is everyone else holding up?
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