Did you eat dairy substitutes? What were your favorite dishes? Did you just stick to meat and veggies? Where did you buy your food?
Considering milk protein intolerance as a plausible cause for lo's issues and so far I have been living off sweet potatoes and brussel sprouts....
grapefruit / 4110 posts
We were Milk and Soy intolerant. Apparently the soy was worse since he is still intolerant to soy. We did use dairy alternatives such as almond and coconut milk and daiya cheese. But we were much more on the whole real foods diet. I did a total elimination diet to start so nothing but sweet potatoes, zuchini, turkey and rice for a while.
I recommend Paleo recipes. We tried a lot of them.
coconut / 8854 posts
I have a lactose intolerance, so I just try and stay away from dairy in general. Which is sooo hard because this girl LOVES cheese!
I drink almond milk, which is absolutely delicious! Then I just try to limit my dairy in dishes that I make, or eliminate it...
I haven't tried any cheese substitutes, but I've heard there really aren't too many good ones out there 
kiwi / 635 posts
Just be careful with substitutes as many babies with dairy intolerance also react to soy, which is in many of the substitutes. Probably try cutting both dairy and soy at first to see if dairy is the culprit, then try to introduce soy and see if soy is acceptable.
eggplant / 11287 posts
@brownie: I wonder if she might be soy intolerant, too. The worst episodes she has had in her five weeks of life were after 1) I had a soy latte and b) after I had Chinese food with LOTS of soy sauce. Or it could be a total fluke.
How can I find out if it is one or both?
clementine / 780 posts
I second coconut milk and almond milk. Some dairy substitutes are often soy related and gross, so I would streer clear and just go "paleo" for a while. Hope you get to the bottom of her issues!
eggplant / 11287 posts
@brownie: also, what were your LO's symptoms? What made you realize he had an intolerAnce and you needed to eliminate?
Ped initially suspected reflux and prescribed Zantac but it's doing jack squat and I really hate the thought of giving her medication.
pomegranate / 3729 posts
With P, she spit up like crazy, nursed constantly, had very explosive poop and eventually had blood in her stool. This was not until 4 months that I went dairy free and then soy and dairy free for 2 weeks, 6 weeks later.
For me, I ate the same thing pretty much everyday. Either a fried egg sandwich on a kosher pareve onion bagel (which from what I read means no dairy), or scrambled eggs with salsa for breakfast. Lunch was usually a smoothie with coconut milk, a frozen banana, frozen strawberries, and a splash of orange tangerine juicy juice. Dinner was plain meat with salt and pepper, steamed veggies, and brown rice. Coconut milk ice cream for a treat.
grapefruit / 4110 posts
@Rainbow Sprinkles: It is so hard to figure out really. But he constantly seemed to be in pain. He screamed and screamed for 15 hours straight every day. It is common to be intolerant to both soy and milk (thus MSPI) because the soy protein is so similar to the milk protein.
We got a reflux diagnosis at 7 days old. We did the exam as well BUT he didn't have mechanical reflux. Ultimately, it seemed that the prilosec (what he had to do because zantac didn't work) was ultimately making it worse.
As I said, I did a total elimination diet for 2 weeks and his symptoms got so much better, that we knew it had to be food. So we slowly introduced new foods watching his reactions. It is really hard but it is so worth it.
Now at 2 1/2 years old he is back on a weight curve and doing so well.
eggplant / 11287 posts
@bpcmarj: did her symptoms start as early as M's? I wonder if m's will just get worse as she gets older...
eggplant / 11287 posts
@brownie: hm. I wonder. She also is constantly in pain. Screaming after every feeding until she cries herself to sleep.
However, so far she has gained weight extremely well, she doesn't spit up much, and she hasn't refused the breast yet. I wonder if it could still be MSPI.
GOLD / wonderful coconut / 33402 posts
@Rainbow Sprinkles: could it be gas from Brussel sprouts??
pomegranate / 3983 posts
This sounds a lot like my LO's MSPI. Big spit up, crying in pain, started at 3 weeks. I suspect that his intolerance to soy is much worse because he reacts to trace amounts of soy lecithin, soybean oil, etc. That said, I don't really do substitutes. We do a real food diet.
grapefruit / 4110 posts
@Rainbow Sprinkles: Mine never spit up and gained weight until about 4 months old when he started gaining but falling off the growth chart. He never refused the breast in fact he overfed I believe. He was constantly eating.
This is a video at about 4 weeks old when he was better on zantac but this is still how he acted. If you listen carefully you can hear when he silent refluxes.
pear / 1609 posts
@Rainbow Sprinkles: I didn't eat cheese substitutes because I didn't like them but the daiya cheese is soy free as well. My 13 mo old still can't have dairy and I give him the daiya cheese. We also do coconut milk yogurt and hemp milk for him ( I use almod milk for me).
DS would nurse constantly, had reflux, terrible gas and eczema. DH actually gave him a bite of chocolate with dairy yesterday and this morning we had an eczema outbreak and he's had gas all day.
I'm really hoping he grows out of it...
eggplant / 11287 posts
@brownie: that video makes me think my LO has a tongue tie. Her tongue does not lift up like that when she cries...
grapefruit / 4110 posts
@Rainbow Sprinkles: You should definitely get that checked out. We didn't have any latching or nursing problems so that wasn't a concern for us. Unfortunately it is so hard at this age (and even as they get older). My son is 2 1/2 now and still can't/won't/doesn't tell us there are problems. He has an ear infection and he said his ear hurt 3 times in the last 3 days. He will have other issues that I know would put most people flat on their backs and he won't even grimace.
eggplant / 11287 posts
@Smurfette: lol I only started eating brussel sprouts the day before yesterday because I love them and they satisfy me!!
eggplant / 11287 posts
@brownie: my LO doesn't have any issues latching or nursing at all! But I do know that tongue tie signs can be misdiagnosed as reflux or gas....since a tongue tie can give them tummy pain.
papaya / 10473 posts
Can @erinpye come check out M's tongue and upper lip for tongue tie or lip tie? She helped me SO MUCH when C had both. He was far less fussy and nursed for a shorter amount of time after I had the ties revised
pomegranate / 3706 posts
@grizz: (@Rainbow Sprinkles): I did watch her as she cried and thought I saw a tongue restricted, and notice a lot of similar symptoms to how S was, but I'm not a doc or IBCLC, so it's so hard to know for sure. I gave my lovely friend my diagnosing IBCLC's info, so she knows she can see her if she feels like she would like to have sweet M assessed.
cantaloupe / 6669 posts
@brownie: My LO cries a lot like that when she is worked up, but what does the silent reflux sound like? (She does spit up though not a crazy amount, and has terrible gas.)
pomegranate / 3729 posts
@Rainbow Sprinkles: she was spitting up like crazy right away, but was never a screamer and just nursed all day and night. She was gaining weight, too but was VERY lanky/skinny. The only thing that made me eventually think MSPI was the blood in thh stool.
I really hope things will settle for M. Can you go see the LCD erinpye suggested?
GOLD / wonderful pomegranate / 28905 posts
@Rainbow Sprinkles: why don't you start cutting major dairy and see if it helps?
M was a crier non stop from the beginning and nothing I did help. She wasn't spitting up so we were able to eliminate reflux. I cut all gassy (coffee, cabbage, broccoli, etc) foods and that seemed to help for a while. When I finally cut major dairy items we saw immediate results and a completely different baby within 10 days.
I really didn't change my diet much because we cook from scratch. Rather I abstain from things with dairy. ie I drank almond milk, no ice cream, no cheese, no pizza (sob), etc
eggplant / 11287 posts
@erinpye: @grizz: the only reason she hasn't been called yet (the ibclc who helped Erinpye) is because my husband thinks in crazy. To say it has been a battle is an understatement.
pear / 1799 posts
I plan on going dairy-free & gluten-free when the baby arrives.
As far as substitutes ... Almond milk is wonderful. You can make cheese from cashews. The 'fake' cheeses are okay these days.
Here are a few of my favorite dairy free blogs:
http://ohsheglows.com/
http://www.healthytippingpoint.com/ (she actually eats dairy now, but didn't while BFing).
http://www.veganricha.com/
We don't do many substitutes, but sometimes, I really just want lasagna (I'll make a cashew ricotta). Comfort food! I'm a vegetarian, too, which makes it a bit more challenging. UGH.
So yeah, I'd say, just try sticking with whole foods (maybe a paleo kind of diet). As far as places to shop, our Fred Meyer (like Kroger) has a huge natural foods section with lots of options. Trader Joes is just okay, and Whole Foods has tons.
Good luck!
pomegranate / 3706 posts
@Rainbow Sprinkles: oh honey- I know. Mine said the same about me and it was a HUGE fight. I went anyway. I figured we were going to fight about it either way, so might as we'll see if the IBCLC had any ideas. It made a world of difference to have an answer and a plan, and DH did apologize. You know I'm here for you and love you 
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