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She's so beautiful! What a crazy journey you've been on so far. I'm glad that you have gotten such good news, but it sounds super frustrating not to have answers. Hoping that your little girl continues to thrive, and that you can get some of the closure that you need.
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@LovelyPlum: Thank you very much
I'm hoping all of the frustration will end soon but I guess we will see... -
@aMohror: A little tip about genetics. I wouldn't wait on a call from them. I think I'd be proactive and call their scheduler... Otherwise, you could be waiting for a long time!
Hang in there!
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@Mrs. Jacks: I will keep that in mind, thank you! They have to refer us and I have no idea where or who the place even is! If I don't hear anything this week I will make sure to call the neurologist back and see what I can do! Thanks again!
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She is so adorable I can't stand it. What a sweetheart. Love her! Doctors are people too and they can make mistakes. I'm glad you are getting her help where she needs it. That's the est you can do as a parent and watch her grow.
I'm hoping all of the frustration will end soon but I guess we will see... 
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