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Praying for you and Charlie!
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@Mrs. Jacks: we won't know the details of how they plan to do his surgery until tomorrow. All I know at this point is that they will be putting him on bypass, reconstructing his aortic arch, and ligating his PDA. Hopefully they will work quickly enough that his kidneys and other organs don't get much worse than they already are too!
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@MrsScallop: I also hope that they'll get a better idea about the other dysplastic valves.
I'll keep my fingers crossed that bypass goes smoothly and that liver, kidneys and brain are stable to improving!
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Thank you everyone! We are having another very quiet and restful day, with a few tweaks to his dialysis that seems to be improving his fluid output. Maybe he will actually lose weight today!
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@Mrs. Jacks: Yes, I hope so. As far as I know, they have no plans to do anything to his valves, but that could change during surgery. We are definitely hoping for no surprises in there!
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@MrsScallop: Hope everything goes well for Charlie on Weds.
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@MrsScallop: Praying for you and Charlie, always!!!
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@MrsScallop: fingers crossed for Wednesday! Big hugs mama, you're doing great.
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@MrsScallop: I just now saw this. Sending so much
and 
to you and Charlie on Wednesday!
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@MrsScallop: Good luck with surgery! Dylan had a PDA ligation while he was in the NICU. I wish you all a successful surgery and speedy recovery.
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@MrsScallop: Good luck with Charlie's surgery. You are in our thoughts.
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Sending much love
and to Charlie for his surgery. I just can't imagine how difficult this must all be. You are in my thoughts.
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@MrsScallop: Best of luck and sending lots of well wishes for Wednesday!
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@MrsScallop: thinking good thoughts for you and Charlie!!
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Well, it looks like surgery will be delayed for another 2-4 weeks. Charlie has been doing so well over the past couple days, the doctors want to keep going and let him get as strong as possible before taking him to surgery. So we will be here for a while still, hopefully with very uneventful days!
Thank you always for everyone's thoughts, prayers, and messages checking in. It means so much to us!
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@MrsScallop: great update! Fingers crossed for you guys. Hope the 2-4 weeks sails by.
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@MrsScallop: so happy to hear Charlie is doing so well! That is so great
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Glad he is doing better and will be healthier and stronger for his surgery! Will keep him in prayers.
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@MrsScallop: That's wonderful news! Continued good thoughts to your family!
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My Charlie and I are rooting for you and yours!
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Glad to read a good update! Will be thinking of you and Charlie.
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That's a good update! Thinking of you!
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@MrsScallop: that is great news!
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@MrsScallop: Yay, Charlie is such a fighter! Hope things continue to look up!
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Glad to hear that things are going well enough to delay the surgery! Thinking of you and Charlie
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Good news, and I'm crossing everything that there's even more good news to come!
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@MrsScallop: so glad to hear this. Thinking of you!!
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@MrsScallop: glad he's doing better.. Thinking of you!
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So glad he is a little fighter. Continued prayers sent your way.
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@MrsScallop: Keeping Charlie in my thoughts, I hope days continue to be quiet and progressive. And I hope the rest of the family is hanging in there and maintaining some sense of normalcy.
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@MrsScallop: thinking of you and Charlie!
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@MrsScallop: What a great update! Sending positive thoughts and prayers your way.
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Thinking of you and Charlie!
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@MrsScallop: thinking of you & little Charlie! Hope today is a good day!
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@MrsScallop: You and Charlie are on my mind this afternoon. Hope things are continuing to progress steadily for him. And I hope your daughter and the rest of your family are adjusting well.
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Hope things are still progressing uneventfully in the right direction!
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@jhd: @MamaG: @lady baltimore: Thanks ladies! It is so nice to see you all checking in on us!
Things have mostly been going well, just one scare (his vent got plugged) and a few blips here and there. He has lost quite a bit of weight at this point (close to 2 lbs in just fluid), they started feeding him tiny amounts to see if he can handle it, and has been weaned down off of many of his blood pressure meds. He is still very dependent on his vent and doesn't handle being unparalyzed for more than a few hours very well, but I think we are making some progress overall.
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@MrsScallop: so glad to hear things are moving in the right direction! I think of you and little Charlie often
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@MrsScallop: Been thinking about you and Charlie.
to you and Charlie on Wednesday!
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