coconut / 8079 posts
Praying for continued good news! I hope you can all get some rest tonight and that tomorrow is a good day!
nectarine / 2527 posts
Praying for baby Charlie and a fast recovery as well as good health
pomegranate / 3533 posts
@MrsScallop: No need to answer, but I'm curious... What were Charlie's surgeons able to learn about his anatomy during surgery?
pineapple / 12793 posts
I hope you had a calm night together and that Charlie is recovering well.
blogger / pomegranate / 3044 posts
So glad the surgery went well! Hope the recovery is smooth.
blogger / persimmon / 1231 posts
@MrsScallop: so glad his surgery went well! Hope today is a good day for you all and that his recovery his quick and uneventful.
persimmon / 1328 posts
@FliegepilzHut: As far as I know, they didn't really see anything new when they were in there. They only really operated on his aorta, but the surgeon did say that Charlie's PDA was huge, like the size of his thumb huge. I just can't imagine what that looked like!
Charlie had a mostly quiet night and day today. The doctors generally seem really pleased with how he is doing. He is having some trouble with staying warm, some arrhythmia, and not coordinating his breaths with the vent at times, but otherwise looks great. They are working to wean his vent, took out 2 of his 5 lines, stopped all blood pressure meds, and have kept him unparalyzed since he came back from surgery.
Thank you all again for your thoughts! He is such a trooper
coconut / 8079 posts
@MrsScallop: what a little fighter you have! I am glad to read this good update & will continue to keep your family in my thoughts and prayers.
pomegranate / 3533 posts
@MrsScallop: That all sounds like great progress! Thanks for the update!
pineapple / 12053 posts
@MrsScallop: Sounds like great progress! So glad for a successful surgery!
blogger / eggplant / 11551 posts
So glad to hear the surgery went well!! Thank you for updating us. I hope you're able to get some peace and rest tonight.
wonderful pomelo / 30692 posts
Great update! It sounds like Charlie is doing well! I hope he continues to do well and they are able to wean him off the vent. Sending healing and healthy thoughts his way.
pear / 1786 posts
Glad to read he is improving! Will continue to keep you all in my prayers!
pomelo / 5298 posts
@MrsScallop: I saw your awesome update on FB today. I'm so glad to read all the positive things about Charlie and I'm sure you are relieved a little more with each positive thing he achieves. Keep up the good work momma, you are doing great!
blogger / pomegranate / 3044 posts
@MrsScallop: yay! Hope vent weaning goes well. Don't be discouraged if it feels like one step forward two steps back sometimes...
persimmon / 1328 posts
@jhd: thanks for checking in! I have been meaning to update here, just haven't taken the time to do so. Charlie is doing really well overall. Still intubated, but he passed his last two pressure support trials, so we are getting very close to getting that tube out. He only has one IV med left, which they will start weaning upon extubation, and is doing amazingly well weaning off his pain/sedation meds. The only thing that is still a big question mark is how his kidneys are doing as he has barely had any pee out since his surgery, but he has also been on a fairly aggressive dialysis regimen. We were finally cleared to hold him a little everyday if we want and he has been awake and gaining strength everyday, so that has been great. We even saw his legs move for the first time in 6.5 weeks today! I have no idea how much longer we will be in the hospital, but I can actually see us going home sooner than later now. Definitely looking forward to that!
bananas / 9118 posts
@MrsScallop: Wonderful! Still sending tons of good thoughts to your family!
pomegranate / 3192 posts
@MrsScallop: thanks for updating! I love reading updates on Charlie. What a fighter!!! ️
grapefruit / 4731 posts
@MrsScallop: Yay! Thanks for the update. Glad to hear he's doing better.
wonderful pomelo / 30692 posts
@MrsScallop: What a great update!! I look forward to the day that you finally get to bring Charlie home!
coconut / 8079 posts
@MrsScallop: sounds like great progress! and I'm so glad you have been able to hold him!! praying for more good news!
blogger / pomegranate / 3044 posts
@MrsScallop: I'm so glad you get to hold him! yay for his little moving legs hope he continues to progress and gets that vent out
pomelo / 5298 posts
Keeping your family in my thoughts. I hope for nothing but progress for Charlie. Stay strong and keep hanging on, your family is amazing.
pomelo / 5298 posts
@MrsScallop: requested thoughts and prayers for Charlie on Instagram this morning. Hellobee has always responded graciously for babies (and families!) in need. Please send some good vibes Charlie's way today.
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