I felt like I should update since so many people have tried so hard to help me here!

So yesterday morning I tried to make an appointment with a GI specialist at our local children's hospital, but they don't take appointments without a referral from a primary care doctor. So I called the pediatrician (who I've lost all faith in) and she refused to give me a referral-- wanted me to come in for another appointment with them. Which there was just no way I was going to do.

So I got some recommendations from friends and found a pediatrician who seems to know more about eating issues and she got me in yesterday afternoon (seriously?? SO nice of her to fit me in). She was wonderful. Spent 45 minutes with us actually listening to the whole history of Fia's eating, checking her over, and trying herself to feed her. (The last ped didn't even want to see me try to feed her). She absolutely agreed that the way Fiona is acting when we try to feed her is not anything approaching normal or okay behavior.

Unfortunately she didn't have an answer. She said given the whole history, her symptoms don't really match reflux, but they don't really fit an allergy either. She's been a pediatrician for 25 years and has never seen a kid with her same combination of symptoms. Sigh.

So the good news is that she totally agrees that this is not sustainable and is committed to helping me find an answer. She said for now we continue to act as though she has reflux (zantac and elevation after eating) just in case it is an odd presentation of that, and we also go dairy free in case it is an odd presentation of milk allergy. She told me to stop eating major sources of dairy and she gave us a case of nutramigen to start giving her to supplement with. But she said she is also going to do some research and talk to some of her colleagues to get opinions and she is definitely going to refer me to a specialist-- she just hasn't quite decided who. Probably either pediatric GI or a feeding clinic (both of which we have at the local hospital-- yay).

So while I"m discouraged that we still don't have an answer-- and at this point we are getting almost all of her ounces in while she is asleep (thank god we figured out how to do that this weekend!!!!!), I'm so happy that I found a doctor who understands that this is NOT OKAY and is committed to figuring it out with us.

So-- fingers crossed that this either turns out to be a weird presentation of dairy allergy and we have our answer in the next week or two if she gets better-- or we get into a specialist fast who can tell us what the problem is (and how to fix it!)