Would you adopt a child with HIV? Why or why not? And if you would, what things would you do differently than with your bio children?
Would you adopt a child with HIV? Why or why not? And if you would, what things would you do differently than with your bio children?
hostess / wonderful honeydew / 32460 posts
I have a difficult enough time taking care of my 2 kids. I think adopting a child with HIV would stress me out too much (the child getting hurt, etc). Stress aside, not sure we'd be willing to take on the financial burden. I'm not sure what needs a HIV pos person has, but from my limited knowledge I know they have to take a lot of medication, lots of visits to the doctor..?
cantaloupe / 6800 posts
I would not.
I don't know enough about it or have any desire to learn firsthand. There are plenty of other kids who need families.
GOLD / squash / 13464 posts
I would consider it if I didn't and wouldn't have any other children in the home. I think a child with such serious health needs would require my full attention. Plus I would be terrified for any other children in the home anytime there was a tiny knee scrape or something like that.
cantaloupe / 6885 posts
@anonysquire: I absolutely would. I worked at a special needs camp for several summers (each week was a different illness or disability) and one of our weeks was always dedicated to kids with HIV. I was a bit nervous at first - I didn't know what to expect - but once the kids got there, it blew me away how 'normal' they were (I hate using that word, but not sure how else to describe it).
Besides for taking medication, we didn't really have to modify their day at all unless they had other underlying medical issues separate from their HIV. You really wouldn't know that these kids had HIV unless you looked at the pills they had to take each day or their medical charts. That's my experience, anyway, and I would adopt a child with HIV, especially if it was their only medical issue.
ETA: That being said, I live in Canada where health insurance is universal. If I lived in a country where I might *not* be able to insure my HIV child, I might be hesitant as the medication alone would be quite costly, as well as any medical treatments that might arise without insurance. I'd be nervous that we wouldn't be able to financially provide them what they needed to live long, healthy lives that are possible these days with the medical advancements.
This is a great article: http://www.ncregister.com/blog/jennifer-fulwiler/8-surprising-facts-about-adopting-hiv-kids
These 3 reasons (copied and pasted from that article) are why I would:
2. Children with HIV who have access to good medical care usually have normal life expectancies
HIV is no longer considered a terminal illness, and is thought of by the medical community more as a chronic condition like Type I diabetes. According to the National Institute of Health, the life expectancy of HIV-positive people who have access to medical care is about the same as non-infected people.
3. There has never been a case of someone contracting HIV through normal household contact
You cannot get HIV from sharing food and drinks or using the same bed or toilet as an HIV-positive person. You also can’t contract it from changing diapers, hugging, kissing, or from bathing or swimming with someone who’s infected with the virus.
4. Modern drug therapies can render the HIV virus almost undetectable
My friend who is the mother of two HIV-positive children tells me, “On average, only one week after beginning HAART (highly active antiretroviral therapy), 90% of all HIV in the body is gone; within one month, 99% is gone.” Related to the above, this also makes the disease much less likely to be transmitted, even in cases of blood contact.
honeydew / 7916 posts
Only with a lot of information and education about how best to care for the child. I'd want to make sure we could be there for him/her whenever they need us, and that they'd have access to a school setting (and socialization) that is right for their situation.
blogger / nectarine / 2687 posts
I think I would. We checked it off as something we would consider on our application for our second adoption. I would just have to make sure we were fully educated on alllllll aspects of the care and any lifestyle changes required.
cantaloupe / 6885 posts
Sorry - me again! This thread has really got me thinking and I've been doing some googling. Here's a great blog post about what daily life is like with a HIV+ adopted child and the few precautions she takes with her bio kids.
http://hosfordfamily.blogspot.ca/2010/06/living-with-hiv.html
Seeing the sheer number of HIV+ kids who need to be adopted - and really how normal their lives can be with medical treatment - it has really got me thinking about adopting an HIV+ child some day. I think there's still such a stigma and lack of knowledge around the issue amongst so many people.
You've got me thinking!!
honeydew / 7589 posts
We absolutely would (we've talked about it at length) if we had the financial ability to sustain all the increased costs of medication and care.
I have carefully researched this, and I know the differences in raising HIV+ kids (although there aren't as many as most people think), but I think our family can handle those.
I'm more concerned about being able to provide financially for them.
If in the future we can afford it, we will seriously consider adopting HIV+ kids.
pomelo / 5000 posts
I read this recently in an article regarding medication cost for HIV:
"According to the same United Nations report, costs for the cheapest UN-recommended antiretroviral therapy drugs have also decreased over the past 10 years, Reuters reported. A year's worth of the drugs used to cost $10,000 in 2000 for one person; now, it costs $100 a year."
That amazed me. Such a huge difference! I'm not sure, however, about the cost if it has advanced to AIDS.
I would carefully consider adopting a child with HIV.
@Spaniellove: what type of school setting would you hope to find for a child with HIV? I'm curious.
GOLD / grapefruit / 4007 posts
I think I would. It is not the child's fault they have HIV and I don't think they should be devalued because of it. Just my opinion l, though. I definitely see both sides of the situation
coconut / 8305 posts
Absolutely! Tbh I don't know a whole lot of what that would entail BUT I know that it wouldn't be something that would definitely "veto" the prospect for us. Right now it wouldn't be feasible but like @Arden, in the future when we're in a better financial place definitely!
Idk if we'll ever adopt but DH and I have mentioned being open to it in the future.... who knows, we may end up being ol' fogies with a whole slew of adopted kids, medical conditions/not.
FWIW I don't think it's wrong of anyone to not be open to it though. Adopting in itself takes a really special heart & then having to care for a child that comes with extra medical needs is a burden that should be chosen & joyful accepted (in the case of adopting, not biological). Not everyone can do that & that is okay! (sidenote: I felt the same way about remarrying with already having a child... I couldn't fault someone for not wanting a step child).
pineapple / 12234 posts
I think I would. Not now because we have two children and we are on the fence about a third. But the medication is so advanced now that the child can live a somewhat normal life. The only hard part would be always thinking that there's a possible expiration date on my child. But there's that possibility regardless of the disease.
pear / 1895 posts
@Mrs. Lemon-Lime: It's not the child's fault they have HIV, and the fact that that would be THE determining factor for so many people looking to adopt is just sad, to me. I agree that it would be a difficult decision to make, but that just sucks for the kid.
grapefruit / 4649 posts
I don't think I would intentionally seek out adopting a child with HIV but if life pulled me down that path it would not be something that would be a huge deterrent. The biggest issue is that I have an immune deficiency and there is a good chance my bio kids could wind up with it as well. Pairing the issue I already have with the risk of contracting HIV is not a great combination so it would require a lot of soul searching and chatting with experts. The flip side is that I already know more than the average person about immune systems and finding awesome immunologists etc.
honeydew / 7916 posts
@Happygal: I don't have a lot of detailed knowledge, but I'd at least want to see that a school knows how to handle intolerance and welcomes parental input and involvement. It would be important to me that my child never be made to feel like less of a person.
ETA: Obviously I'd want the school to have a nurse 5 days a week...so many schools don't anymore!
nectarine / 2127 posts
I wouldn't, but not due to the HIV status. DH and I both agree that adoption isn't the right choice for our family.
nectarine / 2063 posts
I'm would have to do a lot more research. I know that the medical costs have decreased over the last several years & that with proper care and medication regiment, the child can live a very happy "normal" life. I have no problem emotionally adopting a child with special needs, no matter what those needs are, its the financial burden that might come with it.
ETA: DH would be against it. He doesn't want to burden any other children with a special needs sibling. I'm sure that story would change if we ever had a bio special needs child. His fear is that the other children would miss out because of all the attention being places on the child with more needs.
wonderful pea / 17279 posts
Probably not. I want healthy bio kids and if I had to turn to adoption to fulfil my desire for a family I would still want a healthy child.
blogger / pineapple / 12381 posts
So I probably have a little different perspective than most, but adopting HIV positive children has become a thing in my locale. One mom did it, and then it spread to her circle of friends and beyond. I have connections with the ID clinic where these kids get their care and it makes me sad that a lot of these parents didn't realize that they were getting into something big.
HIV is still a chronic complex condition. Antiretrovirals are great, but the virus is constantly mutating and becoming immune to different therapies... so we are constantly trying to come up with new and more effective ones. This means frequent doctor visits, complex drug cocktails, and follow-up for any complications and therapies.
I don't take a position on whether it is or isn't right for different people, I just think it ends up getting romanticized and individuals think they are doing something really great for the world by doing it. It is still an adoption, only with the added complication of negotiating all the adoption issues plus chronic complex condition issues. That is a lot to juggle!
I think it is important for every perspective adoptive parent to realize that adoption is something they are doing for themselves, not to "save a child" or "better the world". If you would select an HIV positive child in the absence of "saving a child" then it might make sense... Otherwise, I'd encourage people to challenge themselves and examine their motives.
GOLD / papaya / 10206 posts
I honestly don't know. I can't say I'd jump at the chance, but we've also never considered adoption either.
blogger / wonderful cherry / 21616 posts
I honestly don't believe I have what it takes to be a mother to any special needs child. I wish I did. I know if I had a bio child with special needs I would learn to adapt but if I had a choice I just don't think I'm equipped for it emotionally, financially, mentally etc.. I truly admire any mother with a special needs child- the love and patience astounds me.
hostess / wonderful apple seed / 16729 posts
I would consider it if I did enough research. I would have to make sure I had enough saved up just in case there are any unexpected medical issues come up.
I don't know if I would seek it out, but if we started the adoption process and fell in love with a child with HIV, we would entertain the idea.
pomelo / 5000 posts
@Mrs. Jacks: ". . . I just think it ends up getting romanticized and individuals think they are doing something really great for the world by doing it."
Yes, I have seen this, too. Definitely not something to take lightly.
pomelo / 5093 posts
HIV would not be a deal breaker for me in the way that autism or fetal alcohol syndrome would be.
grapefruit / 4079 posts
@sarac: just out of curiosity, why would autism be a deal breaker for you?
pomelo / 5093 posts
@ladybee: My personal experience with people who have autistic family members makes it something I wouldn't choose, if I had the choice. If I had an autistic child, I would certainly rise to the occasion, but it would not be my choice. HIV feels less overwhelmingly difficult, to me.
grapefruit / 4079 posts
@sarac: I appreciate your honest answer, I was just wondering. I teach children with cognitive disabilities and autism so I found your first comment a little shocking but of course it's all based on personal experiences. There is such a wide spectrum of need on the autism spectrum that even I admit I find some of the more severe overwhelming.
pomelo / 5789 posts
I am far more pro adoption than SO.
If I had the money and time to take care of a special needs child, i would. hiv positive is not something I would seek out, nor a deal breaker for me.
I would be more open to it if I was living in a country with universal healthcare.
watermelon / 14206 posts
I wouldn't. Maybe I would, if I didn't have children in my home already, but I firstly need to protect the child I have already in my home. I know there's plenty of ways to keep everyone safe, but even the slightest chance of my kid getting hurt because of it would deter me.
honeydew / 7968 posts
I wouldn't. Don't think I have it in me to take care of a special needs child. if I had a bio kid w special needs, I would do what I have to do, but I wouldn't choose to have special needs child.
apricot / 280 posts
No, I wouldn't. I feel the same as @tequiero21. If we had a biological child with special needs then we would do whatever we had to do but that's not something that I would sign up for if I had a choice.
blogger / nectarine / 2010 posts
@anonysquire: oh my gosh. I was JUST thinking about this today. I saw a Facebook post about how an agency was looking for homestudy ready families to adopt a 4 yo HIV positive girl. I don't know much about HIV, but I would have to read a lot, and discuss it a lot with Mr. I don't know if it is something I could deal with, so I definitely want to look into to more. I won't say no now, but I also can't say yes.
honeydew / 7504 posts
If we had the financial means to do so, I absolutely would. Unfortunately, knowing how expensive the medications and physician visits would be, I just don't see it being an option for us. If we were going to adopt a child with special needs (HIV or anything else), I would want to know ahead of time that we would always be able to provide all the care they would require. We are simply not in a position to do that, though, sadly.
papaya / 10473 posts
I absolutely would. I'm actually a pediatric HIV social worker and have fostered kids with HIV and have several friends who have adopted HIV positive children. There is no risk to the parents of the child or the other children in the home in normal living situations. It's a chronic manageable disease now, not a death sentence, and it's not a huge expense or ordeal to care for them. In fact, Ryan White insurance coverage usually pays for all their care and meds. If you are considering it I'd be happy to post my contact info to your wall
honeydew / 7589 posts
@grizz: Yes please! I'd love to get more information for future reference from someone who really knows what they are talking about.
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