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pomegranate / 3764 posts
Thanks girls. I'm actually going to be disappearing for a bit - a spontaneous week away with my parents & Georgia (hubby is working, unfortunately) - so beach, relaxing, and getting away from it all might be exactly what I need to calm down.
I did pack a pee stick deep down in my luggage. Not sure if I'll cave or wait. xx
grapefruit / 4045 posts
@jaguar: Have a great time. You deserve it. Come back when you can/want.
pear / 1986 posts
Hi ladies! Just a quick little update from me. We found out that DHs company will not change our insurance policy to cover IF treatment, so OOP it will be . But on a good-ish note, had a follow up with the hematologist this week. Blood work did not reveal a genetic clotting disorder and I don't have the classic indications of antiphospholipid syndrome (thank goodness), but I do have some elevated antibody levels, so I will have to be on lovenox (blood thinner) from the time I start my IVF cycle through the whole pregnancy. She said there is not really an indication that it will help maintain a pregnancy, but it will prevent me from having a clot, which is even more important really. So with that, we are onto another consult with our RE on Thursday and keeping FX that he will give us the go ahead for a fresh cycle as soon as AF shows up!
@jaguar: Wishing you all the best! Hoping a relaxing time with G and your parents at the beach gives your heart and soul what you need.
grapefruit / 4045 posts
@GreenThumb: that is such a bummer that your insurance won't be covering your IVF. Will your insurance cover anything at all? I've found that even though I don't have coverage for IF treatment, I do have coverage for "diagnosis" type of stuff and that has oddly covered quite a few things. I'm happy with whatever little bit of help I can get! That's great your blood work came back clean of the clotting disorders. Hopefully that elevated antibodies won't cause any issues. I hope your thursday consultation will give you some great info and, better yet, a new IVF schedule!
pomegranate / 3809 posts
@GreenThumb: That's a bummer. I just found out some stupid info on MA plans this weekend too. Turns out it's pretty common for MA plans that cover a number of lifetime cycles, that even if that plan didn't pay for it, it counts toward that max!! Which makes NO sense to me, I thought it would be all about what they already paid for, but nope. ugh!
AFM, CD1 finally yesterday, another 51 day cycle. This cycle sure played a cruel joke on me though, my temps dod plummet like it always does before AF and I was a day late so I finally caved an POAS with some glimmer of hope, only for it to be stark white and AF to start just 2 hrs later.
pear / 1986 posts
@agold: Thanks! Our insurance just sucks… and I honestly cannot figure out what they (ins. co.) consider diagnostic vs treatment (other than the obvious - IVF itself), because to me, bloodwork is diagnostic, but to them I wouldn't be having the bloodwork if I wasn't seeking IF treatment… ugh! Whatever, I'm over fighting about it, we are just going to pay . I want to get to this next cycle!!!! How are things going for you? Can you remind me when you might be doing your FET?
@PurplePumps: That is crazy! If you paid for it, why would it be included in the max?! How can the insurance company determine what your "max" should be? It just makes me mad that IF isn't treated like any other major medical issue in the eyes of the insurance. I'm sorry you had such a long cycle! Where do you stand with moving forward? Did you decide which clinic? I'm sorry things have been on hold so much for you!!
pomegranate / 3809 posts
@GreenThumb: Yes, they are saying even if you paid for your own cycles out of pocket, it counts toward their lifetime max according to another lady from MA on inspire boards. Now DH and I are completely revisiting the idea of him getting a new job for insurance. I did also hear that there is a Cigna plan in MA that has no limits at all for # of cycles, I'd like to get a job at that company if I knew who offered that! We have our one day work up with ccrm next Monday. And we'll see how that goes. It'll either be IVM with them or IVF with BWH or RMANJ. BWH is pissing me off today cause I've been calling all morning to schedule bloods and they have either put me on hold for 6+ minutes until I hang up and haven't called me back yet when I left a message.
pear / 1986 posts
@PurplePumps: I know, we've talked about me going back to work or DH switching jobs so we could change our insurance, but it isn't in the cards for us right now. I'm so curious about the IVM - I don't really know much about that. I hope your work up with CCRM goes well! Boo BWH - don't they know how important all of this is?! I hope they get back to you asap!
apricot / 344 posts
Hi All, Finally catching up on the boards after a weekend away from all things IF.
@JAGUAR sending lots of positive vibes your way. Enjoy every minute of that relaxing vacay!
@agold - a few days ago I mentioned the Dr. was going to give Hubby and I list of the vitamins that we both should start taking right away. This is the list that we were sent...
Vitamin C - 1000 mg
Vitamin E - 400 iu
CoQ10 - 200 mg
Fish Oil (Mercury Free) - 1000 (can't remember if this is mg or iu...whatever the "standard" measurement is for fish oil)
We started taking them over the weekend. Let's hope they work their "magic" these next 10 weeks.
pear / 1986 posts
@waiting4you: Thanks for posting this supplement list. I'm asking my RE about any "extras" we should be taking when I see him on Thursday. Are you taking these in addition to a standard prenatal?
apricot / 344 posts
@GreenThumb: Yup! and this is both hubby and I (minus the prenatal )
grapefruit / 4045 posts
@waiting4you: Thanks for sharing your list! Are you taking the Vitamin C and Vitamin E in addition to your prenatal vitamin? I am wanting to be sure I'm healthy as I can be now in the event I need to do another fresh IVF/ egg retrieval. ETA - I see you already answered my question!
@GreenThumb: I, also, have no clue about what my doctor considers to be diagnostic testing. I assume I'm 100% out of pocket for all of this and am then just happily surprised when something pops out that is outside of my IVF plan I paid for and, hooray, it randomly is covered partly by insurance! I'm currently doing a mock cycle in which I'm taking estradial and soon progesterone to build up my lining to a desired point.I go in for testing to get it checked out and the doctor changes my med dosages based on that. I go in for an endometrial biopsy next week. Then I will gear up for my FET which is supposed to be at the end of November or early December. What I'm not clear about, and I'm going to as my doctor/nurse tomorrow, is if I can get pregnant during this mock cycle. I've been having sex like mad just in case. As if there's even a chance in hell under any circumstance. BUT - I'm still holding out hope!
@PurplePumps: So are you all tapped out of coverage under your current plan? That's crazy that they would consider IVFs that they didn't pay for. Can you switch to the different insurance without your husband having to switch jobs? You just reminded me that there is an insurance plan, I think, that would cover IVF for me. Its called Kaiser. Have any of you girls used or heard of Kaiser before? How do you feel about Cigna? I've heard of it before, but know absolutely nothing about it.
persimmon / 1132 posts
Hi ladies, I also took some days away from all things IF. @GreenThumb: Really sucks about your insurance, but good to finally have answers! @PurplePumps: OMG, crazy long cycle, but so glad you finally got to CD 1 again.
I have a quick question for you all. I know that fresh cycles are unpredicatable, but how predicatable was your FET date? Work is asking me now to commit to some consecutive dates right on and around my late November FET. I can tell them that one will not work but I can't say both will not work for me. I will definitely take the day off of my FET. Thanks, this is so hard, juggling everything....
pear / 1986 posts
@agold: That is really interesting about the mock cycle. One RE I saw suggested a mock cycle for me, too, if I did another FET. It is good that they can do the biopsy to check and see if the meds are providing the appropriate support before you go through a transfer. We might end up transferring pretty close to the same time if I can get this cycle going soon! I had to do a pregnancy test before I had my endometrial biopsy, so you might find out then if this is your lucky cycle !
nectarine / 2192 posts
@waiting4you: My doc also had me start melatonin to improve egg quality. I also started DHEA. Do you know the reasoning for vitamin E? I am on aspirin so didn't think I should do vitamin E as well, but I should ask my RE.
pear / 1986 posts
@Amorini: The FETs are pretty predictable as long as your lining responds to the estrogen the way it is supposed to. Otherwise, they may let you coast a little bit to build it up a bit more, but I don't think that happens all that often. I know, it is so tough to juggle!
apricot / 344 posts
@AmeliaBedilia: no clue. Guess I should probably ask more questions...but at this point when the RE says jump...you get the picture. Hard part for me is that I don't swallow pills. Finding the fish oil and the Vitamin E in liquid or gummies in dosages high enough (without having to take half the bottle) wasn't easy. Ended up finding at whole foods but cost me a pretty penny (I think it was $50 for the two). That's about a month supply. Whatever...What's $50 at this point, right?
pomegranate / 3809 posts
@agold: I don't have a cycle lifetime max plan, just a dollar amount. I've been able to get around that and start fresh by changing plan types within my company and jumping around to my husbands plan, then mine. Anything that gives me a new member ID starts my IF benefits over again. I was trying to urge DH to get a new job for something like that 6 cycle lifetime max plan, but if they are going to count my 3, soon to be 4 cycles, it's hardly worth it! Well, I supposed 2 would still be more than worth it.. but 6 more, or at least the option for 6 if i still had my sanity for it would have been a nice option.
@GreenThumb: Oh! I missed your question about diag vs treatment. For me, everything except IVF (full inclusive package price including blood/us) and the sperm washing for IUI was considered IF treatment. Everything else, doc appointments, all blood work, HSG, blood draws and u/s for IUI, the actual IUI procedure (I think I got lucky that they called it a out patient office procedure instead of IF treatment/IUI) was all covered and not considered IF treatment.
grapefruit / 4045 posts
@Amorini: I've been told that the FET will be schedule around whatever day I specifically pick for it to occur. I will pick a Friday so that I can then have the weekend for additional bed rest. How are you doing otherwise?
@GreenThumb: That's great to know you had to do a pregnancy test before the biopsy! Thank you for letting me know that. I'm going to BD as much as possible now!
@AmeliaBedilia: What time of the day do you take the melatonin and in what dosage? Does it give you bad dreams?
@GreenThumb: I was told that as long as I stay within 25% of my current body weight, my body will respond the same to the estrogen they are putting me on right now. Ha! No problem doctor. I will try my best to not lose 25% of my body weight!
persimmon / 1132 posts
@GreenThumb: Thanks! It turns out they want me to take a few days off and kick up my feet afterward ... so I asked them to delay my FET a little... In hindsight, I don't know if that was the right thing to do, but keeping things quiet at work (keeping up the front that all is well!) is my second job right now.
@agold: FET date is December 7 now! What about you?
persimmon / 1132 posts
@agold: My clinic is so much more rigid (not to mention the limited hours they offer). I'm a little bummed with them now. I feel like I don't fit in their one-size-fits-all methods and feel like a bother when I speak out.
I just called the financial coordinator to ask if we can negotiate on our saline sono (the $900 I mentioned last week). You mentioned in another post that you negotiated with your RE, so I'm giving it a try. I would need a saline sono in prep for each and every fresh or frozen cycle, I might as well ask...
Otherwise, just trying to stay positive! Staying off HB kind of helps me sometimes, just avoiding it all. How are you doing?
nectarine / 2192 posts
@agold: I think he said 3mg but I take 5mg. I have some weird dreams but not sure if that is the cause. After he told me this, I read a bunch of good stuff about melatonin in "It starts with the egg." My follicle count was 10 the first month, and 14-15 since, so that, synthroid, vitamins C and D, acupuncture, and DHEA are doing something. Not getting me pregnant, but doing something.
apricot / 365 posts
@GreenThumb: boo! i feel your pain on the OOP front Good luck at your appointment Thursday!
@PurplePumps: bummer for a long cycle and period to start! hoping you have some next steps in mind?
@agold: Interesting about the mock cycle--My RE never even mentioned doing one. Will be interested to hear how it goes! And I'd think you would be able to get pregnant, though I'm not sure where the timing for fertilization would be since it's impacted by the meds.
@Amorini: We picked our FET date a few weeks ago (we were also super concerned with timing bc I wanted DH to take those first 2 days off to help with our 3 yo). I think if you've been fine with your lining thickening up, etc, it should be pretty accurate (our RE only does them on certain days/certain # per day, so we had a calendar to choose dates from), BUT there's always a chance they could delay a couple days for things to thicken up a little more.
@GreenThumb: should've read your response first
I had an ultrasound and bloodwork this morning. Waiting for a call back at some point today to see if we're still a go for FET next week
grapefruit / 4045 posts
@Amorini: I don't actually have my FET scheduled yet. I think my RE will wait for the results of my lining biopsy and then I can schedule it. The nurse just told me "end of November, or early December". I'm really hoping for November, or no later than December 4. Either way, I will be close to you in time!
Let me know if your RE is open to negotiating! I feel like they will always knock a little off their plan fees or things like that.
kiwi / 538 posts
@waiting4you: I took a CoQ10 called NeoQ10 and another supplement called Ovasitol from Theralogix - both were recommended for egg quality by my RE. From what I understand there is a 3 month lag between what you do and how it affects your eggs- basically what you do now affects your eggs being produced 3 months from now. I also have been on Vitamin D supplements for a while as well- not sure if that is an egg quality thing or just general conception health. I’m not really convinced that supplements helped me at all- I started taking them in February and had my 3rd MC in June (blighted ovum)- but who knows. I know it didn’t hurt and it made me feel like I was doing something in the interim.
@endymion4: both times it was probably a day or 2. This time I’ve been doing a very small cup of decaf in the mornings during the week at work- I’ll probably stop that though once I start adding more meds. Once it gets colder it’s hard to not have something hot in the mornings - I might switch to tea even though it’s not really my fav.
@amorini: I’ll have to look into those prenatals- thanks for that reco. I liked the other stuff I had from that company so I’m sure those are good.
@amorini @agold @northstar: The schedule is more intense (IMO) because the meds are spread out over the course of the day. Like with stims- 3 shots, 4 shots- a lot but at least you could do them at home before and after work. 5 days prior to transfer my schedule is:
- 4 Minivelle patches (every other day)
- Endometrin 3x a day
- Medrol 4x a day (specific times)
- PIO shot (at night)
- Z-pack (antibiotics)
- Prenatal
- Possibly Estrace (will find out about that on 10/26)
…and a partridge in a pear tree . I have this all listed on an Excel spreadsheet and I’m still concerned about remembering everything over the course of the work day. Of course that week my coworker is going to be out on vacation so I’m going to be swamped covering for her- it’s just going to be insane. My FET date was based on the dr's schedule- I didn't really get to pick except from the days that he could do it.
So I just got an email from my RE's office- "you are over your lifetime max from insurance so give us $3500 for your FET today." Um what? Thanks for the notice on that- I honestly had no idea that ER alone was going to blow through that max already. Happy Monday!
pomegranate / 3809 posts
Finally heard back from the nurses! Day 3 bloods and a bunch of other hormone testing tomorrow. Along with u/s, doc is looking for signs of pco. Ugh, hate (messy) day 3 u/s!
grapefruit / 4045 posts
@PurplePumps: I'm so glad you are going for testing tomorrow. I hope this puts you one step closer to where you want to be. I was just reading back at some of your responses earlier today - and oh my gosh, the thought of doing 6 additional IVFs .... do you think you would do 6 additional if your insurance covered it? I've just been thinking about this myself - how many IVfs will I try? Its such a tough thing to undergo, but its hard to stop.
pomegranate / 3809 posts
@agold: If it was all covered, or even just a fraction of the price so that it wouldn't drain my life savings, I would probably go for another 6. At the beginning after the first time didn't work, I remember thinking I'd probably do max 3 times and call it quits, but here I am looking at a 4th and 5th option.
nectarine / 2192 posts
@PurplePumps: Big hugs! I hope the results show something easily fixable!
Does anyone else feel like EVERYTHING about this is so hard? A few months ago, I had a debacle with WinFertility where they refused my electronic payment, and so had to pay last minute with a credit card to get my meds on time. My bank ended up sending them a paper check, so I double paid. It took them two months to finally send me a check for the extra payment. I cashed it, and just got a note from my bank that WinFertility stopped payment, so now I'm out the money plus the bank fee. I called them, and their claims department is closed, and they are SUPPOSED to get back with me tomorrow. I have had so many problems because people didn't do their job- my initial CD3 labs were run incorrectly (did the wrong test instead of AMH, and since my FSH was 6, we didn't do it again, only to find out 18 months later my level is 0.27), my HSG was charged $1000 more than it was supposed to, problems getting meds, problems getting records...I'm just so angry about all of it.
Tomorrow is my monitoring ultrasound. I'm hoping for two follicles and IUI#3 can be Friday. If this doesn't work, I am almost certain we will be doing IVF. We don't have any insurance coverage, and we're doing a major house renovation, so the financial timing is not good. DH and I are also trying to plan holiday travel, and I don't know when we would end up doing IVF. I hate how hard it is to plan anything!
persimmon / 1132 posts
@AmeliaBedilia: All I can say is that I totally get it. You know that book "Alexander and The Terrible, Horrible, Very Bad Day"... Everyone has one of those days every so often, but I feel like they happen in greater frequency to me lately.
So many emotions, fears, hormones, money, life dreams and goals, logistics, phone calls, time-sensitive dates, detailed medication protocols swirling about my head and then even more money! And then on top of it all, for as long as it takes, we hold our "normal" non-IF lives together.
My advice to myself is this: Try to be less frustrated and more incredibly amazed because you are doing something SO hard, like running an emotional marathon, and you are doing it every single day... It might not get easier, in all honesty, but all of this hardship is preparing you for something so great!
apricot / 344 posts
@Amorini: beautifully put. I needed to see that, today. I thought after round 1 I could slam this chapter closed and not deal with anything till the new year. Yet, slowly but surely it's creeping it's way back into my everyday life. I thought being on the drugs was bad....I'm learning that coming off them is even harder (at least in my case) and the AF after is pretty much torture.
But as you said, try to be amazed not frustrated. The options and opportunities ahead are amazing. Just keep "running the marathon".
apricot / 365 posts
@dookie32: ugh! i remember walking into the RE office and them asking me for a payment (that I was supposed to have been told about before hand). i ended up splitting it on 3 cards and keeping my fingers crossed it would all be covered!
@PurplePumps: hope you get some answers in the right direction tomorrow!
@AmeliaBedilia: SO HARD!! sending hugs and good thoughts for your u/s tomorrow!
@Amorini: you've put it so well!
anyone who has been through FET--what were your lining/estrogen levels the week before. i didn't catch my exact number, but my estrogen level is over 1000, which seems high?
nectarine / 2192 posts
The ultrasound showed one 19mm follicle on the left (good, everything is always on the right and had me worried), two others 13mm and 12mm. He told me IUI Thursday or Friday. Thursday morning is problematic for both of us at work, plus Thursday is only day 11. They told us Friday morning was booked except too late (we are supposed to be going out of town). DH called me on the way to work and asked if I felt they were rushing it out of convenience. I do. We think that Saturday would be the ideal day, but they aren't open. One day early would be ok, but triggering the morning of CD10 makes me nervous- that going too fast could compromise egg quality. So I called back and said we'd figure something out and take the late Friday morning, except someone had just booked. I asked for an exception. She spoke to the RE who said they can't do Friday morning, but that Thursday is fine. I think going early also means the two little follicles have no chance of catching up. We are leaning towards just doing times intercourse and doing the third IUI next cycle. What would you do? I'm a little worried they will bill us for the two ultrasound (we have a three IUI package) but DH says $400 is not a big deal in the scheme of things. Also, my ovidrel was left in the cooler in the fridge anextra four days and I know it's fine for 30 days but worried if it will still book for next cycle. (My cycles are usually 25-26 days.) DH and I both don't have a good feeling about this IUI. I have liked the RE but I feel like they prioritize convenience too much and DH and I are contemplating switching docs though the other option here is not great. Sorry for rambling but I'm flipping out here. Advice please!
pear / 1881 posts
Oy! I don't even know where to start in responding to everyone's posts the past three days, but I'll try (sorry if I miss anyone)..
@jaguar: Enjoy your time away and the unbelievable relaxation that you should be able to get!
@GreenThumb: What a downer that your IVF will not be covered! It seems like it's a never ending battle for everything fertility related..I'm not sure about the differences in diagnostic vs. treatment, but I am always happy surprised when something is covered and pretty much assume that it don't be.
@PurplePumps: That insurance rule is the dumbest thing that I've ever heard! If it doesn't affect them and they aren't paying anything on it, why should it even count on the insurance. Do you have a way of it not being submitted and denied by insurance or how do they even find out about it?
@dookie32: holy meds! wow - I didn't realize it was so involved. Can you put alerts or reminders in your phone for each med and time you need to take them and then have them as recurring so that they pop up every day and remind you? I think that I'm going to do that with my fresh cycle so that I don't forget..
@AmeliaBedilia: Yes - it's SO hard and SO unfair! How crazy about your experience with Winfertility and definitely frustrating! Good luck this morning for your ultrasound
@Amorini: Your advice is perfect and beautiful! I am way too type A for my own good and just need to trust the process and honor what we are going through as it will become something wonderful.
Well, started my IVF meds today - Lupron 20 units/day and will start stims on 10/30. The Lupron shot was easy peasy, which was nice.
pear / 1881 posts
@AmeliaBedilia: I agree with you that having the IUI on Thursday seems too early, but then won't the 19mm follicle be too big or likely already ovulated by Friday/Saturday? I thought that they grew 1-2mm/day. If you feel rushed or that the timing isn't right for an IUI this month, I would probably lean towards doing timed intercourse instead or you could do the IUI on Thursday, but then try to have lots of BD Friday, Saturday, etc (if that is possible)? I don't know - that's a hard one. But, I don't like that they cannot fit you in based on what your body is looking like and instead are doing it based on their availability..
pomegranate / 3809 posts
@NorthStar: I thought it was pretty dumb too! It wasn't for mine though, it was another lady on resolve boards. When she asked her doc why previous cycles was even mentioned to insurance, she said they claimed that they had to by law.
nectarine / 2192 posts
@PurplePumps: That is so ridiculous. All this is hard enough, and then stupidity makes it even harder!
For a small piece of good news, my bank waived the fee for winfertility's stupidity, and I talked to a pharmacist who said the ovidrel is fine for next cycle. So now the issues are whether to do the IUI Thursday or just do femara/timed intercourse this month, whether RE will charge us $400 for these two ultrasounds or count it as part of the package (not optimistic, and if we had known they couldn't do Friday, we wouldn't have done either), and whether to stay with RE. He's very on top of the medical stuff and found some issues that others might not have (my elevated NK cells), it's just hard to schedule. We still have the third IUI paid for in the package, so I'm leaning toward TI this cycle, IUI with same RE since it's already paid for, and then decide whether to go there or someplace else for IVF. We probably will stay put since he knows me and someone else would be starting over. All this trouble makes me think that God is telling me this isn't the time for IUI. I'm really frustrated and angry.
grapefruit / 4045 posts
@PurplePumps: Big hugs to you. I hope this next attempt - whether it be IVF or IVM - gives you what you need.
@AmeliaBedilia: I'm so sorry you are having such a hard time with your third IUI. Yes, every thing about IUI and IVF is so very hard. But if you can just be flexible then the scheduling of doctor appointments should be the least hard thing of it all. Is your doctor's office able to fit you in for an IUI on the day/time that your doctor suggests the IUI be done? If so, I would ditch your work plans and have the IUI done at that time and then, like @NorthStar: said, BD like crazy after wards on the weekend. Please remind me - are you on injectible meds? If you aren't doing injectibles, then you could also just skip the IUI and save your third IUI for an injectible cycle. And for what its worth, I've just never found any part of this - IUI or IVF - to be convenient at all with respect to my job or my emotional life in general. Bummer.
@endymion4: I have not gone through a FET yet, so I'm sorry I don't have advice. When is your FET scheduled to occur? Did you doctor say if your levels are okay?
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