Hellobee Boards

I'm so sorry. I don't have any personal advice. My best friend has MS. She's doing relatively pretty well. She gives herself a shot in the leg every couple of days. I know she's eligible for super super cheap utilities since keeping her house cool is a medical necessity. Her kids do not know about her condition. I hope you can take advantage of the best resources available and that you have all the psychical and emotional support you need.

I'm sorry you're going through this. I have personal experience with MS via my uncle and a close friends father but both had progressive forms of the disease. On the other hand, I deal with many patients at work with relapse remitting and from my experience most have quite high quality of life. Maintaining good strength and flexibility to continue with regular exercise and activities of daily living is crucial. I'm sure you'll get a good action plan soon but the waiting is so difficult. One small thought: my uncle hid his diagnosis from our family for years until his disease had progressed too far. As I said, he had the rarest progressive type of MS so not the same as you, but I encourage you to find support wherever/whenever you feel comfortable. I wish my uncle had reached out to us instead of trying to handle it all on his own in secret.

@ladybee: I sent you a message to your wall!

I got diagnosed with RR MS seven years ago (at 28). I only found out because I went blind in one eye over the course of a week. Combined with that, plus a MRI showing some lesions on my brain and spine, I was diagnosed with MS and started on medication straight away. My eyesight came back with only a very, very slight change to seeing bright colours out of one eye.

I'm lucky in that I've only ever had that one relapse and got better straight away. People are shocked when they find out I have MS.

My neurologist said that in the past, it was difficult to definitely diagnose MS and people would be having attacks in different parts of their bodies, wearing them down until finally starting medication.

Nowadays, people are diagnosed quicker and start treatment sooner. The medication available combined with the huge amounts of research being done on the disease means that quality of life is so much better for someone diagnosed with MS. My neurologist is confident that in his lifetime, there will be a cure.

In the seven years since I was diagnosed, I have seen so many new treatments introduced. In the beginning I was injecting myself daily. Now there are tablets you can take or even once a month injections.

Feel free to wall me if you have any questions!