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Our baby has spina bifida

  1. FaithFertility

    eggplant / 11861 posts

    A million hugs, prayers and thoughts today and every day after

  2. dragonsword

    cherry / 175 posts

    Thinking of you and your family today.

  3. stiletto_mom

    persimmon / 1183 posts

    I don't have any words but wanted you guys to know that I am thinking of you an your family.

  4. MarieJ

    pear / 1579 posts

    I am so sorry. My heart breaks for you. I am keeping you and your family in my prayers. Hugs

  5. Miss Ariel

    nectarine / 2210 posts

  6. MrsB2012

    nectarine / 2466 posts

    Thinking of you today. Sending you strength and courage to get through the day.

  7. NorCalWayfarer

    nectarine / 2134 posts

    Thinking of you and your family. Hugs

  8. JessyMess

    grape / 99 posts

    Just wanted to let you know you and your family are in my thoughts. I remember you from my last pregnancy when we were both pregnant with our now 4 year olds at the same time.

  9. abmamma

    kiwi / 641 posts

  10. bluebubblez

    pea / 17 posts

    sending love and peace your way. my heart absolutely breaks for you and your family.

  11. delight

    pomelo / 5326 posts

    I've been thinking about you all day

  12. MrsF

    honeydew / 7283 posts

  13. Purpledaisy

    nectarine / 2973 posts

    Thinking of you

  14. MrsScallop

    persimmon / 1328 posts

    I have been thinking of you all day. So much love being sent your way!

  15. QBbride

    pomegranate / 3192 posts


    Sending you love and light

  16. winniebee

    hostess / wonderful grape / 20803 posts

    Sweet Dylan James was born sleeping this morning at 3:20 a.m. We got to hold him, see him, and have him in our room with us until we left the hospital. He was just beautiful and it was utterly heartbreaking to leave the hospital without him. I'm home now. The pain is awful, though I know in our hearts this was the only decision for him and for our family. A friend told us that "all he ever knew was love." I hope that's true.

    The compassion we received from the hospital staff throughout our stay was wonderful. They offered warmth and support every step of the way. They gave us a memory box that included his tiny hat and blanket, a few sets of footprints, and a flash drive of photos (for when we are ready) Also a stuffed teddy bear that was cuddled against him in his cradle.

    I have been floored by the outpouring of support from this community. I've been a member here for almost 5 years and have always known it is a special place. But you all have gone above and beyond to show me that you care - private messages and e-mails, cards and packages in the mail, wall posts, words of support on this thread, comments on this thread from those who rarely even comment on the boards. And the meals that have been set up to be delivered through my birth months....my husband and I can't thank you all enough. There are some truly wonderful people in this world, and you are all among them.

  17. mrsbubbletea

    nectarine / 2821 posts

    @winniebee: you are amazing and strong.

  18. wrkbrk

    pomelo / 5084 posts

    @winniebee: Sending love and peace to you and your husband.

  19. pregnantbee

    grapefruit / 4717 posts

    @winniebee: I haven't stopped thinking about you, and I truly hope you can find peace during this difficult time. I'm sure Dylan knew how loved and wanted he was, and I'm so glad you've gotten so much love and good care.

  20. snowjewelz

    wonderful kiwi / 23653 posts

    @winniebee: Dylan James will always be loved and remembered Lots and lots of love to you & your family.

  21. sheskrafty

    persimmon / 1165 posts

    Sending you and your family lots of love.

  22. Adira

    wonderful pomelo / 30692 posts

    @winniebee: Dylan James - what a beautiful name. He will be remembered and missed. So much love to you all.

  23. sandy

    cantaloupe / 6687 posts

    @winniebee: you have always been the most wonderful friend and so incredibly selfless and supportive to so many of us (myself included). We are all heartbroken for you - the pain is unimaginable and I wish nothing but peace and healing for you right now. As you know, I am here for you always in any way you need

  24. JenGirl

    clementine / 756 posts

    Dylan James is a beautiful name and I'm so glad that you got to spend some time with him, thought I know it wasn't enough. I'm glad the hospital treated you well and it has gone as well as it can. I'll continue to keep you in my prayers in the days ahead as you grieve and, hopefully, start to heal.

  25. catomd00

    grapefruit / 4418 posts

    Keeping you, sweet Dylan and your entire family in my thoughts.

  26. MamaG

    pomelo / 5298 posts

    @winniebee: It's heartwarming to hear about your experience at the hospital and how the staff provided for you. Dylan is loved. Your family is too. You are braver than you know.

  27. magnolia

    persimmon / 1168 posts

    @winniebee: I'm sitting here crying reading your post. I can't imagine the pain you are going through. I admire your bravery and strength. I also remember how much support you have showed to others in their time of loss. Thank you for sharing your story, you are an incredible mother.

  28. autumnlove

    hostess / wonderful watermelon / 39513 posts

    @winniebee: I love his name. Thinking about you.

  29. PinkElephant

    grapefruit / 4584 posts

    @winniebee: thank you for taking the time to give everyone an update - your family will be in our continued thoughts and prayers.

  30. catlady

    grapefruit / 4988 posts

    @winniebee: Dylan James is a beautiful name. He is clearly loved and will always be remembered. Wishing you strength and peace for the days ahead.

  31. pachamama

    nectarine / 2436 posts

    Oh my. I am so sad. I am thinking of you, Winniebee, and little Dylan James.

  32. NorthStar

    pear / 1881 posts

    @winniebee: I've been thinking of you constantly all day and am so unbelievably sorry for your loss. Dylan James is a beautiful name and he was and will continue to be very loved. You and your whole family are in my thoughts and prayers

  33. travelgirl1

    cantaloupe / 6630 posts

    I love his name. Love to you and your family and to your sweet, precious Dylan

  34. periwinklebee

    grapefruit / 4466 posts

    Very sorry for your loss

  35. Cherrybee

    papaya / 10570 posts

    I'm so very sorry for your loss. Dylan James will always be remembered and always be loved.

  36. AprilFool

    nectarine / 2591 posts

    So very sorry for your loss

  37. FaithFertility

    eggplant / 11861 posts

    @winniebee: Sweet Dylan will be remembered and loved! I'm so happy the hospital gave you such support
    So many prayers and love always!

  38. Silva

    cantaloupe / 6017 posts

    thank you for sharing your story with us. I'm so sorry for your loss.

  39. SweetCaroline

    pear / 1718 posts

    I'm so very sorry for your loss.

  40. jaguar

    pomegranate / 3764 posts

    @winniebee: So much love to you and sweet Dylan. You are a brave, brave mama. We love you.

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