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My DS receives PT (among other therapies) and it will likely continue for the rest of his life. Following to see if anyone else has insights or suggestions for how to manage.

Our children's hospital just closed 6 out of 9 of their outpatient facilities as of Jan 1. Our therapist actually moved to another provider and is now able to see DS at his daycare which is great for now but may not be possible as he gets older.

I guess it really depends how severe it is, so I don't know how useful our experience would be.... My son had gross motor therapy weekly from about 7 - 12 months, and some fine motor after that (but IMO would have been fine without the latter). He went from being so floppy I couldn't imagine him walking to pretty much caught up in a few months. He did tire easily when walking for a long time, and is in some ways still weaker then his peers (but you can only tell when he tries contact sports). It's like he can do what the other kids do, but it takes three times as much effort to get there. So I guess he'll always need to do some kind of sports to stay in shape.

@Mrs. Starfish: hi! I don’t post very often and I’ve been taking a break from the internet but I just came on to search low tone since I’ve been feeling down about my baby’s progress in physical therapy.

Is it possible to get home base services where you live? My 9 month old is getting PT twice a week at home, which helps me also learn the exercises to work with her.

I also work in a school and it may be worth looking into occupational therapy (OT) in case the low tone is affecting fine motor skills. OT in the school setting can address writing, using scissors and daily living skills like zippers and snaps. We also have PT in our school but mostly
For kids who have some kind of neurological disorder that affects their ability to use the stairs or ambulate safely in the school environment

Just curious if you ever found out what caused the low tone and how delayed she was in meeting milestones. My 9 month old still can’t sit at all independently. I feel like her progress is so slow and it’s really hard

I haven't posted for awhile, but I wanted to chime in because I have a 6.5 year old with low muscle tone. He started walking at 19 months once he got the SMO shoe inserts and has been in PT weekly since 11 months. Though for the last 2 summers, he's taken off from PT because he was so active at camp.
If you aren't looking for it or he's not trying to do a specific gross motor activity, you'd never know he has any issues, which is great. He can generally keep up with his peers on the playground. But... he still has pretty poor endurance. He is starting to notice that he can't keep up in gym class on longer sprinting type running. And he's not even close to being able to do the monkey bars, which most of his friends can do by now. I think it will always be an ongoing struggle for him and we'll be staying in PT for quite awhile so that he can keep working on things like monkey bars, jumping rope, etc. I know that's probably not the answer you wanted, but he's happy and doesn't get teased about it. I think he'll just be a kid who chooses other activities besides sports when he's older.

@Mrs. Starfish: of course! I do think continuing with PT has really helped him, especially with confidence in doing physical activities like climbing and jumping of steps. I like that our PT asks about what he is doing in gym class so that she can help with him gaining strength and endurance while practicing the motor planning of specific activities. Also, our PT works out of a gymnastics place, so he gets to use the pit, bars, beam, etc. He thinks he's doing gymnastics (though he does know it's PT) and loves it.