So we are 2 weeks in. Well 1.5 weeks. Ok so we've probably only had it on half of the time so far. Ever since she got it on, anytime she laid down she would just scream. And she was waking up ALL night every 5-15 minutes. So we called her surgeon and he said to leave it off when she sleeps til her appt at 1.5 weeks after the start of the helmet. Keep in mind we had been keeping on the silly thing 23 hrs a day.

Well sunday she started screaming bloody murder so I took off the helmet. She had a hard goose egg looking thing on the side of her head. I left the helmet off all day and called monday and they said to come in as planned today. So we went in today and apparently she has a bone cyst? And is having surgery Nov 3 to remove it. And now i feel like the worst mom in the world because I couldn't figure out why she was screaming her helmet has been readjusted.

Well at least she looks good in it (first pic is the cyst)