apricot / 485 posts
Just finished up with my OB who made me very nervous - she couldn't find a heartbeat on Doppler (we haven't yet, so no biggie) so she rolled in the small US machine. Still couldn't find anything. Called the sonographer in who also couldn't find anything. Then they took me to the US room with the big machine and finally found the nugget. Apparently my uterus is now retroverted and baby is hanging out way down in the pelvis. Everything looks ok though, but gave me some pause!
I really really wish this site wasn't so glitchy. My earlier post from today still isn't showing, and I really need the support of you ladies right now.
The nurse just called with the results of my NIPT, and it came back high likelihood of Trisomy 21 (Down's Syndrome), 90% confidence. I feel so overwhelmed. I am so angry, feel so cheated that pregnancy and childbirth is so easy for some and yet so so hard for us. Why can't we just get lucky with a nice normal, healthy pregnancy. I thought we were blessed getting pregnant naturally after IVF, but now this just feels like another big "fuck you."
Our plan is to get a CVS done on Tuesday. We should get results from that on Friday or next week. Then we'll have to decide what we want to do. It's a little girl.
I need hugs ladies. Lots of hugs.
hostess / wonderful persimmon / 25120 posts
@yellowbeach: oh sweetheart. Congratulations on your little girl! I am so sorry about the test results. I can only imagine how scared you are right now. Big, big hugs. Lots of love. How are you doing? How is dh handling this news?
apricot / 462 posts
@yellowbeach: I am so sorry. You are 100% right, it’s terribly unfair. I had a CVS for my last pregnancy to look for a chromosomal abnormality and will for my current pregnancy too so I have an idea of the fears you are going through. Big hugs and crossing all my fingers and toes for you.
apricot / 389 posts
Oh my goodness! I'm so sorry you're having such a hard day! I'm so so sorry to hear about your results. I'm sending you all my love and strength! I can't imagine what must be going through your mind.
@mediagirl: DH is at work - I called and told him. He offered to come home immediately, but I said it wasn't necessary. He's an ED doc too, so can't just walk out the door.
coffee bean / 40 posts
@ Yellowbeach: I was so sad to see this:( *hugs* I don't know why life is so unfair.. . I looked up the Panorama test, and I saw a lot of stories about false positives. Also, the results were often explained in misleading ways. One poster was told she had a 99% of having a baby with Down Syndrome when the reality was there was a 99% chance that her risk was 68% for having a baby with Down Syndrome. Sooooo, I'm not sure how accurate the information was that you were told. I'm hoping it's just a false positive!
apple seed / 4 posts
hey @yellowbeach I'm so sorry to hear about you NIPT results. Hoping everything ends up OK after the CVS - it's not infallible. Horrible position to be in Hugs and prayers xxxxx
@yellowbeach: I've been thinking about you since last night. I just can't believe the shitty luck. Your daughter has Microcephaly, right? I hope after you have your CVS the results come back quickly and I'll be hoping for a false positive.
persimmon / 1247 posts
@yellowbeach: Oh goodness I am so sorry your results have come back this way. I just want to let you know we are here for you to listen and support, be angry at the universe with you, and send you all the virtual hugs we can.
I wanted to echo what @thepaperbutterfly said that a 90% confidence test result does not necessarily mean a 90% chance of your little girl having Trisomy 21. I know that likely doesn't ease your mind much, but I hope that you can get some more specific info about the testing specificity and sensitivity of the test to get a more accurate 'result'. I'm glad you can get follow up testing so quickly - hoping for easy testing and fast results for you.
coconut / 8865 posts
@yellowbeach: Ugh, I wish the site wasn't so glitchy either... I'm just seeing your post now. Sending you love right now. Will you have a NT scan still? Is there a point if you're doing CVS?
I need to complain for a moment. I called my OB again today to confirm I can get the NIPT done while I'm there b/c I'll be 11 weeks. The nurse called back and said I'll have a general appointment and then be referred out for the testing. So they don't even do it there. I don't have the time (work full time) to go to a million places for various tests and blood work, etc. Ugh. I'm so frustrated. I tried calling another OB in town and it's 2 hours later and they still haven't called me back.
@mediagirl: Ugh that is definitely frustrating since that's what it seemed like you expected based on the info you had before.
My office also does not do NIPT testing or the NT scan, but I was referred out for the NT during my first appt. at 6.5 weeks because they knew it would take time to schedule. Same for bloodwork (no matter what I was getting). We decided what I would do during that appt. and then they let me know what lab to call after checking my insurance and gave me the lab referral sheet then and there to take with me whenever I was able to go in.
Sorry you're getting the run around. Why can't your office refer you now in advance, is that an option?
Edit: I realize this will be your first appt. with your OB vs your RE. I still wonder if they can refer you in advance, or if maybe your RE can refer you??
@lindseykaye: yeah, they told me it wouldn't be a problem. They did not mention I would be referred out for that. I think I just need to find a new, bigger practice that is closer to my work. I work close to one of the big hospitals in town so I guess I'll just deliver there so I have easy access to appointments. It's just frustrating that I'm 10 weeks and just now figuring this out. Being in limbo stinks.
@lindseykaye: I got a hold of another OB (second I called) and they can get me in next week, they understood the urgency of my request. Shocker....a practice that understands a crazy pregnant woman's concerns.
@mediagirl: OMG why don't they all understand the urgency?! I almost wish I had booked my OB while I was early at the RE, just to have it scheduled. I went through so much of the same sh!t you did. It's SO frustrating.
@mediagirl: I'm sorry you're having a difficult time with you're Dr office. Are you going to go ahead and switch to the second office instead. Sounds like they might be more in-tuned with their patients needs.
I have my first OB appointment tomorrow and I'm having a lot of anxiety. With my first literally every time I went to the OB for a routine check they found something and I would get sent to the hospital for observation and although He turned out fine , it was very nerve racking. Sorry to bug about it, I just didn't realize how much that really affected my feelings for this one until now. I hope I'm not like this with all of my appointments. I feel like I'm going to have a panic attack.
@MrsMom: oh no! I hope everything goes well. Will your husband go with you to your appointment for support? I find having mine there is comforting. I hope it goes better for you this time around.
And yes, definitely switching!
@MrsMom: Aw man, it's hard to know what will trigger anxiety sometimes until you're right there in it. Sending all the positive thoughts your way for a calm uneventful appointment.
Is this the same OB/practice you were with last time? And what kind of problems did they refer you to monitoring for? Knowing that everything was ultimately fine is nice, but I know that does not help in the immediate when you're facing the uncertainty. I just wonder if they are super cautious/lean on referrals possibly.
Happy healthy thoughts your way.
@mediagirl: Unfortunately DH works but my mom is coming, mostly to help with DS because he has an appointment right after mine. It probably would've helped to have DH there since he is the voice of reason in our family.
@lindseykaye: It started at 12 weeks I had a major bleed (soaked my whole bed while I slept) and found I had a SBH which lasted until 22 weeks. They prepared me for a mid pregnancy loss at 18 weeks and ran a lot of tests to try and find out why I was bleeding so much into my second tri since they are usually a problem early in pregnancy. Another time I went in at 21 weeks and the heart rate was only 113, that's when they found out I had the clotting disorder MTHFR and protein S deficiency. Then after that my BP was always high during my appointments so I would get sent for observation and it would normalized. (I now attribute that to the anxiety of the Appt) Thanks for the positive thoughts. I am going to the same Dr and am on all of the medications early this time so hopefully this will be an uneventful pregnancy. I just can't believe I'm freaking out about this.
Would someone mind taking over the role of the board updates? I’m not feeling baby excitement these days. Just feels painful.
@yellowbeach: Oh I'm sending you all the hugs possible. I'm so so sorry you're going through this. Don't you worry about anything else but yourself right now. Sending All My Love!!
@yellowbeach: hugs. Don't worry about anything else right now.
@MrsMom: wow, you went though so much! I really hope this pregnancy is easier on you. How was your appointment today?
Well, exhaustion finally hit. 2:30 hits and I'm dead. 2 hour nap today. Not sure what I'm going to do at work this week!!
@mediagirl: I literally fell asleep at my desk Friday afternoon! Whoops
I was super slouching and thankfully have my own office but this is the frst time I nodded off for an moment for real.
I had to get up and take a walk around the building, get some cold water and put on music to perk up. Hoping the second trimester gives us all a little more energy!
@lindseykaye: fell asleep at work! Ack! I hope second trimester is easier on you!
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