My oldest N was diagnosed with EoE last fall. Fast forward to now we are being sent to an allergist to figure it out. So tell me your experience.
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Anyone?
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I don't, but thought I'd bump this to keep it current in case someone else does.
I Googled EoE because I didn't know what it was, and found this blog written by a mom with three kids with EoE:
(article about the family):
http://blog.cincinnatichildrens.org/rare-and-complex-conditions/life-with-eoe-times-three/(Mom's blog):
https://livingtheallergylife.wordpress.com/<hugs> for you and N
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@ballerinabee: we are actually going to Cincinnati children's next week. Thanks for the links.
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@MrsRcCar: at my work I have occasionally. I know some families are very active on the support boards. One of my patient's moms was so obsessed with getting transferred to the Cincinnati clinic (we are in California so it wasn't really doable) because apparently it's the best. I hope you can find some Good resources and support on this new road.
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@junebugsmama: I only live about 1.5 hours from Cincinnati Children's. We are pretty lucky and were able to get in pretty quickly. We live near a wonderful children's hospital locally they just don't seem to get EoE at all.
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@MrsRcCar: bumping this as our doctor thinks this is what our 8 month old has and I don’t know anyone who has even heard of it in real life! I’d love to hear more about your LO and how things are going now! Googling this makes it seem like a pretty tough path for figuring out what foods to eat!
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6 comments