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I don't have personal experience with it...my LO just has awful reflux that came back with a vengeance but I know that doesn't compare. I've met someone whose child has it and it sounds so painful! Her daughter was diagnosed after an inpatient stay. I hope this is resolved for your LO quickly and she is feeling much better soon!

We also dealt (and still do at 2 1/2) with severe acid reflux, she was diagnosed with eosinophilic esophagitis not Sandifer's Syndrome so I don't know exactly what you are going through, but I know what it's like to watch a child in severe pain. LO wasn't diagnosed until around 6 months, when they kept telling me "she would grow out of it" and finally I fought for a specialist and he helped us get a diagnosis after witnessing her vomiting in his office. We are still on Prevacid, and honestly I think we will be for the forseeable future. She has to get scopes every few months (now we finally get to go every 8 months) to check her cell count. It's no fun, I hope you get answers and your LO gets relief soon!

@cmbknyc: He started on Zantac and switched to Alimentum around 3 weeks old, and the Zantac didn't work so then we switched to Prilosec. After a pH probe showed not a whole lot, we took him off Prilosec and then months later after an exposure to dairy he started projectile vomiting daily for over a month.

Long story short, we got him back on a high dose of Prilosec and he's doing better and finally eating solids (he's almost 8 months). I know now not to give him anything fruit-based because it triggers the reflux again, and he's been diagnosed with a dairy allergy. Something else that was interesting is he's struggled with tummy time and his EI therapists feel he probably won't crawl because of the reflux pain.

I hope the GI appt goes well and if they can't get you in right away your ped should be able to switch the med too.

@cmbknyc: I'm so sorry you're going through this. I'm glad you're headed to the GI. My LO has reflux, MSPI, and intolerances to wheat and beef. I found that the GI was also helpful in validating my concerns and worries and getting a plan going forward.

Hugs. Stomach issues are so difficult