Today is CD99 for me, the first one off BC, and I have a doctors appt this afternoon. I'm not TTC right now, i'm just concerned my long cycles are a symptom of a problem that may make it hard to conceive when i do want to try.
any advice? I'm not sure i need my period induced because i'm not trying and i dont know that it woudl "fix" the underlying issue... I guess i just want the doc to start doign tests to determine if i do have anything wrong
pomegranate / 3160 posts
I went in for a long cycle and...it wasn't really worth it. 
Granted, I was only on my 2nd cycle off of BCP, and I think I was at CD56 or something (my 1st cycle was 50-ish days I think). My doctor basically told me to wait it out, but if it hit 90 days, I could come back in if I "wanted to" and they could induce a "period." If I remember correctly, they only reason to induce a period was so the lining of your uterus doesn't get too built up (so when you actually would have your period, you wouldn't get flooded out or something equally gross).
Anyway, this is really no help, sorry. I'd say you might be stuck just waiting it out, but it never hurts to call! Good luck!
bananas / 9899 posts
Make sure they do blood work and an ultrasound. Have them check for TSH, Free T3, Free T4 (for Thyroid), Prolactin (for Pituitary), Estrogen and Testosterone. That will give you a good basis to go on.
I would say induce your period now (but still get all these tests)... I am on like CD120+ (lost count) and now I'm wishing I had just induced it.
pear / 1563 posts
I had an appointment for long cycles while not TTC. Mine were about 45 days long and semi regular, so a little different from your situation. She just ran blood work similar I think to what Pui mentioned. She wanted to rule out thyroid issues, PCOS, and pituitary problems.
pear / 1556 posts
I would definitely ask for blood work. When I first went in for a long cycles (between 45-60 days), they didn't do the blood work that was needed to diagnose my PCOS. My friend is a nurse practitioner and told me I needed to request a full hormonal panel (I was having some other symptoms as well). Once those results came back it helped with my diagnosis and treatment.
pomegranate / 3809 posts
That happen to me also, and I just waited it out. My first cycle off BC right around 100 days. And then it was pretty normal after that. It might not be a bad idea to have bloodwork done anyways. Personally, with what I know now, I wouldn't induce since I'm not convinced of the benefits of more artificial hormones. I'd just let my body work itself out.
clementine / 880 posts
Thanks everyone! I wrote this all down and will be taking it in with me, helps me to feel more prepared which makes me less nervous!
watermelon / 14467 posts
I charted and waited it out. My cycles are generally longer than average (around 35-40 days), but I did have a few that pushed 90 days. By charting, I realized that my body was just taking longer to ovulate at that time, and it was generally during a stressful period of my life (husband traveling, car troubles, illness, etc.). I had my period induced twice prior to charting, and it didn't result in a normal cycle.
clementine / 880 posts
@pui I did get blood work done and have a follow up appt thursday for an ultrasound... i didn't get much info, though, do you think it's a transvaginal ultrasound?
eggplant / 11861 posts
They will also be able to tell by blood work if AF is coming out not, if not I say unless you REALLY want to TTC ASAP wait it out, let your body figure it out, but good luck!
bananas / 9899 posts
@LaughLines: Most likely, but don't sweat it it's not a big deal! The worst part is having to hold your pee lol.
clementine / 880 posts
so I took 10 days of progesterone to induce period and still haven't gotten it (though the doc said it could take up to 2 weeks AFTER i finish the pills to get it, only 3 days past right now). I'm on CD112 right now.
The ultrasound showed I only had very few small cysts, he said it looked fairly normal and not like PCOS. The bloodwork all came back "normal" and they tested thyroid, Prolactin levels, and Progesterone levels. all normal.
sooo does anyone know of a medical reason for very very long cycles that isn't PCOS, thyroid, prolactin or progesterone related? Not sure if it's worth mentioning but i'm normal/thin weight with no other known health issues.
cantaloupe / 6397 posts
@LaughLines: Hmmm. I am not sure. I had crazy long and irregular cycles with no real clue as to why... still managed to get pregnant twice though!! 
grapefruit / 4311 posts
@LaughLines: I took progesterone in June to get my period going and it ended up taking about another 5 days for it to start after my 10 day prescription. I was feeling down, but it did start! (Mine was due to still not getting my period back after D&C in early march).
bananas / 9899 posts
@LaughLines: Sound like you are in my exact position. :\ I have super long (basically non existent) cycles and no known cause of it (blood work and ultrasound all normal). I'm hoping my RE will be able to shed some light on it.
On the bright side I seem to be successfully Oing on Clomid. I took it starting CD121, O'd 10 days later and got my period, ending my 140 day cycle.
Since this is your first cycle off BCP, it's possible you just need to kick start your system and then it will be smooth sailing from there! Good luck!
clementine / 880 posts
@pui it's good it looks like the clomid is working! was it hard to get the doctor to let you use clomid? did you have to get that from your RE? what are you doing to test for O? temping? OPKs? or is the dr doing testing?
bananas / 9899 posts
@LaughLines: No my doctor (GP) just kinda gave it to me after all other options were exhausted, lol.
I see the RE September 10th.
I tracked my BBT and used OPKs to conform O... First time ever I saw a sustained temp rise. Also I'm pretty sure my period was also proof that I O'd (otherwise it's quite a coincidence that AF just happened to come back then after being absent for 140 days haha!)
clementine / 880 posts
@pui thanks for all the advice! I think right now i'm in 'wait and see' mode, esp since i'm not currently trying, but it does sound like my dr is receptive to putting me on clomid when the time comes. Let me know if your RE gives you any other info, i'll be interested to see how things work out for you!! fingers crossed!
bananas / 9899 posts
@LaughLines: Thanks! I'm kinda hoping my second dose of Clomid does the trick and I get to cancel my RE appointment! 
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