I'm in the process of trying to figure out what is causing my digestive issues and I'm curious as to how it went for others diagnosed with gluten, lactose, or fructose intolerance?
Did you get an official diagnosis? Just process of elimination? How is the changed diet going? Any tips? 
persimmon / 1390 posts
Celiac runs in my family so I planned to do a one month elimination trial, then eat it again for a week and get tested (since you need to have it in your system). I felt so much better I decided not to do the test because I didn’t want to go through eating it again. Kind of a unique situation though since most women in my family have gotten an official positive on the test so I was able to assume. The switch was easy since my mom was diagnosed when I was 10, so I knew what I could/couldnt eat and what to watch out for.
pomegranate / 3973 posts
@Becky: Bummer about having celiac but glad the switch was easy for you. I did get tested for that (negative) but haven't ruled out an intolerance yet.
I went on a 4 week no dairy, no gluten (although I cheated with a cookie here and there) and was doing way better. Added dairy back in to a definite affect on Saturday but then just read back through my dr. report and I was also supposed to cut fructose - I had watermelon in between the ice cream and feta cheese so it could've just as easily been that, dangit.
And I'm trying to figure this all out before my appt. on Friday, lol.
pomegranate / 3272 posts
I've done a blood test twice. The first time was about 10 years ago and it showed strong sensitivities to soy and gluten. I used to break out into hives when I ate soy and I linked my severe bloating to gluten. It all went away once I got pregnant. But started to come back about 6 months ago. I took another blood test and tested negative for just about everything. I don't break out into hives when I eat soy but only eat it sparingly. I do get severe bloating and other digestive issues so I cut out gluten again and feel much better. I tend to cheat here and there with varying side effects. I don't have celiac. But elimination was what worked for me.
pomegranate / 3973 posts
@Mommy Finger: I'd love it if a blood test would just tell me what not to eat, so much easier.
I never had any consistent issues until late February after I had a virus.
coffee bean / 36 posts
I have a weird story because I have celiac disease but without any digestive symptoms. I was diagnosed because of a wonderful doctor who pushed for testing for Celiac after I broke my pelvis and foot within 6 weeks of each other. As it turns out, I have silent celiac which caused osteoporosis. The celiac was diagnosed with a blood test followed by an endoscopy (technically you have to have both in order to be confirmed positive).
The diet change hasn't been terrible. The first two months were very hard emotionally, but I'm very used to it now, almost 5 months in. I'm also a vegetarian, about 85% vegan, so I'm quite limited in what I can eat, but it's not been that bad! There are some awesome whole food cookbooks that I've enjoyed cooking through, and I despise cooking.
nectarine / 2262 posts
I've tried a low FODMAP diet for IBS symptoms. Works amazingly well but it's almost impossible to follow. I wish I had time to try it again and play around with it, though. I usually look like I'm 5 months pregnant due to bloating and have horrible gas all the time. The diet made it disappear.
GOLD / wonderful coffee bean / 18478 posts
Hmmm, same thing here. Have you been tested for Covid? I’ve had digestive issues, too, since being sick with a virus in Feb. I do wonder if I had Covid since it also causes digestive issues. I’d be curious to get the antibodies test soon. I don’t have any food intolerances that I know of. It’s definitely more of a recent issue since I was sick in Feb.
blogger / kiwi / 626 posts
@MrsADS: I'm with you. Low fodmap changed my life but I've slowly fallen back into my old ways. I've got to get back onto it fully because it make such a huge improvement for me.
pomegranate / 3973 posts
@Andrea: I have not and have also wondered if I had it, but I was sick before it was even on the radar here. I would love to get the antibody test once it's available.
Ideally this is all just because of the virus and will go back to normal in a few months. The dr. did say it was a possibility.
GOLD / wonderful coffee bean / 18478 posts
@josina: Good to know that your doc said it's a possibility. I've been taking probiotics and eating healing foods in the meantime.
pomegranate / 3973 posts
Well, looks like I will mostly be diagnosing myself... I am leaning towards a lactose intolerance, maybe fructose, but can't get in to do Dr. to do the testing until August. 
I've been adding gluten back to my diet and so far so good.
pomegranate / 3973 posts
Took the lactose/glucose/fructose tests last week and this week. I failed the fructose test, passed glucose, and I believe passed lactose although haven't gotten the official from the dr yet.
So if anyone is fructose intolerance give me all the tips?! Any great resources out there? I'm quitting the obvious, sweets, most fruit, pasta sauces, ketchup , bbq sauce soda, but some things still sneak up on me (texas toast) so I'm got a lot of learning to do. My insurance doesn't cover a dietician.
pomegranate / 3983 posts
@josina: The best way to know for sure is an elimination diet. If you want to DIY you can do a Whole30 - tons of resources online. If you want professional guidance I’ll wall you the info of who we use. (From personal experience a gut healing diet will clear up all intolerances- but it takes some time).
pomegranate / 3973 posts
@Baby Boy Mom: Thanks! Would love to be able to clear it up completely!
pear / 1565 posts
@josina: I’m glad you finally figured out the culprit! I’m sorry for all the work involved in figuring out what you can/cannot eat
pomegranate / 3973 posts
@graceandjoy: Thanks! I meet with a dietician next week to get some more info. since what I find online doesn't always match up between sources.
cantaloupe / 6017 posts
I went to my doctor for fatigue and possible depression. When I described my digestive symptoms (which I'd been ignoring/blaming on whatever), she ddi blood testing which came back positive for celiac. I did an endoscopy to confirm.
Food sensitivity blood tests are not really supported by a lot of evidence. If celiac is ruled out, I"d consider speaking with a good nutritionist. I work with one in a professional capacity who helps people figure out dietary solutions for their IBS all of the time. She's great!
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